Educative Process With Relatives of Children With Special Health Needs in the Hospital-Home Transition

Abstract

Objective: to analyze the dialogical educative process as a strategy to prepare the relatives of children with special health needs in the transition from hospital to home. Method: qualitative study developed from the Creative Sensitive Method, carried out between February and June 2018 at the Inpatient Unit of a public hospital located in the city of Rio de Janeiro. Family caregivers of nine children with special health needs in transition from hospital to home were included in the study, totaling nine participants. The empirical material was evaluated through the analysis of the French discourse. Results: the educative process allowed the relatives to unveil demands for technological and medicative care, modified habitual elements, clinically complex care and social demands to be worked on by the nurse in the transition from hospital to home. From the analysis, the following category emerged: The educative process as a strategy to prepare the relatives of children with special health needs in the transition from hospital to home. The dialogue was produced, however, without exhausting the I-You relationship, maintaining the dialogicity in the group and encouraging the exchange between the different realities of the relatives. Conclusion: the educative dialogic process is an adequate strategy to prepare the relatives of children with special health needs in the hospital-home transition, where the nurses act as coordinators, suggesting a minimum program-related content.

Parents’ Perspectives on the Health Education Provided by Clinicians in Portuguese Pediatric Hospitals and Primary Care for Children Aged 1 to 10 Years

“…At the same time, HE is perceived as a frequently performed practice, and is evidenced taking advantage of opportunities, complying with current legal guidelines; the role of nurses, as professionals sensitive to emerging health needs and vulnerabilities, and the application of their knowledge in HP, is highlighted [ 17 ]. This result corroborates a study conducted in Ireland, in which parents yearned to participate actively in the educational process, together with health professionals, to implement care plans according to their children’s needs [ 18 ].…”

Characterization of Home Care Services and care for children with special health care needs

“…Regarding the admission of CSHCN, it was evident that in most SADs in SC it is carried out by workers from EMAD, with emphasis on the nurse who is usually responsible for the educational process with the families and for identifying the needs, strengths, and weaknesses in the execution of care. This finding corroborates a study (21) which reaffirms the importance of nurses actively participating in the educational process of family members, to identify the child's needs and the care that will be carried out at home, since CSHCN demand continuous and complex care. In addition, it is essential that health professionals welcome these families, understand the impact of caring for a CSHCN at home and, at the same time, enhance the skills of caregivers in relation to the care demanded by them, to stimulate the importance of the domain in the practice of procedures and techniques to be performed (22) .…”

Necessidades de aprendizagem de familiares de crianças e adolescentes em tratamento com quimioterápicos antineoplásicos orais

“…12 Portanto, antes da implementação de práticas educativas em saúde, especialmente em se tratando de crianças e adolescentes dependentes de cuidados domiciliares, é preciso ouvir os familiares, conhecer suas necessidades de aprendizagem, dúvidas e medos para, assim, pensar em estratégias que visem ao melhor para a família, a criança e o adolescente. 13 Contudo, evidências científicas acerca das reais necessidades de aprendizagem de familiares frente ao tratamento com quimioterápicos na apresentação oral entre a população infantojuvenil, que possam alicerçar a construção de práticas educativas pelos profissionais de saúde atuantes nessa área, incluindo os enfermeiros, ainda são escassas. Assim, o objetivo da pesquisa foi descrever as necessidades de aprendizagem de familiares de crianças e adolescentes com câncer quanto ao tratamento com quimioterápicos antineoplásicos orais.…”