Determining Factors in the Situational Transition of Family Members Who Care of Elderly People With Parkinson's Disease

Abstract

Objective: to investigate the facilitator and inhibitory factors in the transition of elderly caregivers with Parkinson's disease. Method: a qualitative, exploratory and descriptive study, based on the family transition nursing theory developed with 20 elderly caregivers of elderly people with Parkinson 's disease, enrolled in the Associação Parkinson de Santa Catarina, from March to August 2015. To analyze and interpret the data, we used the thematic analysis of content proposed by Bardin, with the help of the ATLAS.ti software for data organization. Results: some factors were identified and considered as facilitators for the process of transition from the familiar to the exercise of the role of caregiver, such as: previous experiences as caregiver; spirituality and religiosity; family support network and health services. Other factors were identified as inhibiting factors for transition: emotional and physical health conditions; advanced age; personal life activities/commitments; family financial burden; and inadequate family support. It was observed that most family caregivers reported having previous experience in caring, having advanced age, and being able to care for the elderly with the disease. However, he considers his condition of emotional and physical health insufficient, resulting in overload. Lack of access to health services and family and financial support make it difficult to provide care. Conclusion: nurses should seek strategies to direct attention to facilitating factors in the family context in order to help the family to achieve well-being and healthy transition to the role of caregiver.

Id jog cuidador em ação: desenvolvimento de jogo de tabuleiro para cuidadores informais de idosos

“…29 As redes de apoio aos cuidadores de idosos são importantes ferramentas para a satisfação deste cuidador, sendo assim, é essencial reconhecer na comunidade a família, vizinhos, amigos, e nos serviços de saúde, quem são as pessoas que fazem parte desta rede de apoio ao cuidador. 30 Quando se joga o Id Jog -Cuidador em Ação com um grupo de cuidadores se amplia a rede de apoio deste público, fortalecendo as atividades de cuidado prestadas ao idoso.…”

The care offered by nurses to elders with coronary artery disease from the perspective of Transitions Theory

“…discharge (17) . Therefore, their participation in the entire process of implementing transition care leads to a better preparation for home care, especially when the elder depends on them (18) . However, the transfer from the care of trained professionals to that of relatives/caregivers responsible for the elder with CAD in the home can be a stressing moment when the necessary support is not provided by an effective communication between health professionals, patients, and relatives/caregivers (1) .…”

Metamorfosis in the Lives of Elderly People Caring for Dependent Elderly in Brazil

“…The literature shows that elderly caregivers are mostly women, with a mean age of around 70 years and mean care time provided by ten years 4,[8][9][13][14] . Research in Belgium, however, identified that the average age of caregivers is 80 years 15 , which signals the growing reality of spouses and elderly family members as caregivers of older people.…”

“…When there is support from the team of health professionals for the provision of physical and mental care, elderly caregivers feel more security in their routine and perceive greater stability in the health status of the dependent elderly relative [13][14] . Regarding this support, however, only those who experience it are a minority of the Brazilian population that has a financial condition to fund professionals with their own resources.…”

“…In addition, financial difficulties represent a social burden for elderly caregivers in the care of their loved ones [4][5][6][7][8][9][10][11][13][14] , because both are exposed by them to severe social vulnerability and the risk of worsening diseases 5 . Several studies point to this problem [2][3][4][5][6][7][8][9]21 and to the way some countries have dealt with it.…”