Cuidados, mobilidade e poder num contexto de epidemia: Relações familiares e espaços de negociação

Scott, Russell Parry

doi:10.1590/1678-49442020v26n3a207

Cited by 8 publications

(4 citation statements)

References 12 publications

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“…But in all cases, the social network of the mothers, (family, relatives, neighbors, friends) is severely affected by having to submit to a routine of multiple therapies and consultations in the city, and almost always in different institutions because of the specialization (i.e., physical therapy, occupational therapy, gastroenterology, ophthalmology, pediatric neurology, etc.) ( 32 ).…”

Section: Gendering Experiences Of Multiple Alignments and Administrative Insecurity: Observations From Fieldworkmentioning

confidence: 99%

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Women, Administered Insecurity, and Multiple Alignments to Assuage Gender Inequalities in the Brazilian Zika Epidemic

Scott

2021

Front. Glob. Womens Health

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This article deals with the Brazilian Zika epidemic that started in 2015 and became an important event for understanding Gender and Power in health treatment contexts. It discusses a combination of reinforcement of gender normed care and therapeutic itineraries overburdening mothers and the construction of political awareness and practice associated with demands for state services. Working with a concept of administered insecurity elaborated to understand people displaced during the implementation of planned government development policies, it argues that the planned nature of health systems, despite their explicit emphasis on the objective of treating the health of the population, also generate administered insecurity as planned administrators of scarcity. It uses data from a 4-year research project entitled “Doing Ethnography on Care” in Recife, Brazil, to show the multiplicity of contexts that are brought out through the practice of mothers in providing care for their Zika-syndrome stricken children, and how they reflect varying power relations that constantly re-dimension maternity along lines of gender relations in different institutional domains of treatment and research. The severe gender inequality in caring for infants was partially assuaged by multiple alignments made by the mothers and infants promoting dialogue and practice in varied contexts, including interaction with the research team. Family and Community Relations, Mediation, Favors, Accusations, Judicialization, Collective Action, formation of Associations, and learning to produce videos are seen as constructors of complex meaning and practice of mothering in a way in which gender goes beyond the limits of an overburdening practice of care. Gender provides a significant difference for mothers whose knowledge and familiarity of domains of health and health-related provision of services and knowledge, forged in their search for treatment for their child, create and legitimate spaces for the exercise of informed citizenship and a sharp awareness and resistance to practices by the state and other agents who administer insecurity. The final remarks synthesize some of the more important reconfigurations of gender relations and power in the context of the Zika epidemic and alerts to the challenge of the transitory nature of an epidemic and the gradual, and not so gradual, exhaustion of institutional interest for the dilemma of the mothers and also shows the role of anthropological research in promoting gender equality in epidemic contexts.

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Section: Gendering Experiences Of Multiple Alignments and Administrative Insecurity: Observations From Fieldworkmentioning

confidence: 99%

“… 16 The text, which had been proclaimed by the president as unchangeable under the threat of rescinding the measure, was, in fact, modestly changed after congressional committee hearings in which our research team participated directly with the testimony of Silvana Matos ( 28 , 32 ). …”

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confidence: 99%

Women, Administered Insecurity, and Multiple Alignments to Assuage Gender Inequalities in the Brazilian Zika Epidemic

Scott

2021

Front. Glob. Womens Health

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“…The dispute emerges between employees whose practices move different domains of care. It often takes the form of a dispute between the technical and the scientific, on the one hand, and the domestic, on the other (Diniz, 2016;Marques et al, 2021;Scott 2020a). It is a dispute in a common field, shared in the desire to alleviate the suffering caused by an illness.…”

Section: Introductionmentioning

confidence: 99%

The end of unfinished health emergencies and the Congenital Zika Syndrome

Scott

2024

Physis

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Understanding health problems as always unfinished, this article examines consequences of the declaration of the end of a health emergency on the practice of different and interconnected care networks. As part of the “Action Ethnography on Care…” research project, this is a qualitative case study of three documents produced after the announcement of the end of the Congenital Zika Virus Syndrome epidemic. It shows the contexts of narrative production involving researchers, managers/ public service workers, mothers and families of the ill, and mothers’ associations and their different perspectives about what care is. Analyses of a presentation for researchers and of a working paper for the Applied Economics Research Institute (IPEA) question the technical narrative celebrating the end of the emergency based on knowledge and health service without taking into account the relational, affective and political care (of mothers, families and associations), leaving the latter invisible. It describes the process of elaboration of a motion by the Zika Pandemic Forum, listing and systematizing action proposals produced in an explicit dialogue among participants in different care networks to approach unfinished post-emergency questions. It suggests that similar practices of dialogue between networks can promote greater inclusion and sensitivity to care that contribute to reducing suffering and defending the rights of people who continue to live daily with a syndrome or disease whose consequences persist.

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“…A disputa emerge entre colaboradores cujas práticas movimentam diferentes domínios de cuidados. Frequentemente, toma as feições de uma disputa entre o técnico e o científico, de um lado, e o doméstico, do outro (Diniz, 2016;Marques et al, 2021;Scott 2020a). É uma disputa em um campo comum, compartilhado na vontade de aliviar o sofrimento causado por uma doença.…”

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Fim de emergências de saúde inacabadas e as redes de cuidados com a síndrome congênita do Zika vírus

Scott

2024

Physis

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Resumo Entendendo que problemas de saúde sempre são inacabadas, este trabalho examina consequências da declaração do fim de uma emergência de saúde sobre práticas de diferentes redes de cuidado interconectadas. Parte da pesquisa “Etnografando Cuidados...”, é um estudo de caso qualitativo de três documentos produzidos depois do anúncio do fim da epidemia da síndrome congênita de Zika vírus. Mostra contextos de produção de narrativas envolvendo redes de pesquisadores, gestores/prestadores de serviço, mães e famílias de acometidos e associações de mães e suas perspectivas diferentes sobre o que é cuidado. Análises de uma apresentação para pesquisadores e de um texto de discussão no IPEA questionam a narrativa técnica da celebração do fim da emergência com base em conhecimento e atendimento, sem tomar em conta a importância dos cuidados relacionais e afetivos e políticos (das redes de mães/familiares e de associações), deixando-os invisibilizados. Descreve o processo da elaboração da moção para o Fórum Zika na Pandemia, elencando e sistematizando propostas de ações através de um diálogo explícito entre integrante das diferentes redes para abordar questões inacabadas pós-emergenciais. Sugere que práticas semelhantes de diálogo entre redes possam promover maior inclusão e sensibilidade a cuidados que contribuem para diminuir sofrimento e defender direitos de pessoas que continuam a conviver cotidianamente com uma síndrome ou doença cujas consequências persistem.

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Cuidados, mobilidade e poder num contexto de epidemia: Relações familiares e espaços de negociação

Cited by 8 publications

References 12 publications

Women, Administered Insecurity, and Multiple Alignments to Assuage Gender Inequalities in the Brazilian Zika Epidemic

Women, Administered Insecurity, and Multiple Alignments to Assuage Gender Inequalities in the Brazilian Zika Epidemic

The end of unfinished health emergencies and the Congenital Zika Syndrome

Fim de emergências de saúde inacabadas e as redes de cuidados com a síndrome congênita do Zika vírus

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