Perceived quality of life and meanings attributed to the experience of extreme maternal morbidity: a qualitative study

Abstract

Experiencing extreme maternal morbidity (EMM) implies multiple changes, where the perception of quality of life is modified, generating a gap between what is perceived and what is desired. The aim is to understand the meanings attributed to EMM by survivors of the experience and the effect of these meanings on the processes of reconstruction of daily life. A qualitative study from the perspective of symbolic interactionism that included an analysis based on elements of grounded theory by conducting semi-structured interviews with women from a Colombian city. The experience of EMM is understood by the participants as “a suffering that is worthwhile” and is constructed from the meanings given to each stage that is experienced: (1) pregnancy: an unexpected event that is better when accompanied by a partner/family; (2) the complication: separation distress; (3) life after near-death. Women’s perception of quality of life depends on both the experience of the event and social support, as well as on the baby’s survival. The role of health services is critical because loneliness, worry, and stress intensify when health personnel have a dehumanized relationship with women.