Estratégias de enfrentamento adotadas por pais de crianças com deficiência intelectual

Santos, Manoel Antônio dos; Pereira-Martins, Maria Laura de Paula Lopes

doi:10.1590/1413-812320152110.14462016

Cited by 15 publications

(11 citation statements)

References 24 publications

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“…Spirituality and belief in a higher being were also reported in this review's articles as factors that helped parents and families to find meaning in the reality they are facing and strength to cope with the new condition (disability) that appears as a stressor in the family's organization. The same is found in other studies 71,72 , that identify religiousness as an effective coping strategy for the family to adapt to the child's disability, not only at the time of diagnosis but also during tasks in caring for this child for life.…”

Section: Family Redefinitions and Adaptationssupporting

confidence: 82%

Repercussões do nascimento e do cuidado de crianças com deficiência múltipla na família: uma metassíntese qualitativa

et al. 2019

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A deficiência múltipla em crianças, presente em diversas síndromes, é uma condição que acarreta problemas de ordem física, econômica e social e afeta os pais dessas crianças e suas famílias. O anseio de conhecer melhor essa problemática, sob a perspectiva da análise qualitativa, deu origem ao objetivo deste estudo, que é de identificar e sintetizar o que a literatura científica aborda sobre as repercussões do nascimento e do cuidado de um filho com deficiência múltipla na família. Trata-se de uma metassíntese qualitativa, realizada nas bases de dados Scopus, PsycInfo e SciELO, utilizando-se os descritores: qualitativo; crianças com deficiência; relações pais-filhos; relações familiares; e cuidadores. Os dados foram analisados em três etapas, segundo o método adotado por Noblit & Hare: extração de conceitos de primeira ordem; produção de conceitos de segunda ordem; e síntese interpretativa. Depois do processo de busca e elegibilidade, oito estudos foram incluídos; desses, emergiram seis conceitos de segunda ordem: restrição social; desgaste nas relações familiares; sentimentos que afligem; instabilidade financeira; mudança na dinâmica familiar; e estresse na saúde e no bem-estar. Com base nesses conceitos, elaboraram-se três sínteses: deficiência e parentalidade ideal; o ônus do cuidado; e (re)ssignificações e adaptações da família. Os estudos apontaram que os pais e a família passam por dificuldades advindas das representações sobre a deficiência múltipla e dos encargos do cuidado (problemas de saúde, limitação para outras atividades, aumento dos custos financeiros, mudança de rotina). Indicam, também, que esses elementos penetram e podem interferir nas relações familiares e sociais.

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Section: Family Redefinitions and Adaptationssupporting

confidence: 82%

Repercussões do nascimento e do cuidado de crianças com deficiência múltipla na família: uma metassíntese qualitativa

et al. 2019

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“…Second, we found that raising a child with ID was accompanied by high levels of psychological distress, related to concerns about the course of the child's disease and the multiple changes that can arise from the diagnosis of the ID [58]. The search for solutions and professional support were some of the strategies used by parents to adapt to the new situation [3,59,60] and the use of such strategies has been shown to have a buffering effect on the caregiver's burden [61,62]. Moreover, participating in work activities is another strategy that can help these parents.…”

Section: Discussionmentioning

confidence: 99%

Quality of Life and Concerns in Parent Caregivers of Adult Children Diagnosed with Intellectual Disability: A Qualitative Study

Fernández-Ávalos

Pérez-Marfil

Ferrer‐Cascales

et al. 2020

IJERPH

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Background: Previous studies have confirmed that parenting a child diagnosed with an intellectual disability (ID) can negatively affect the parents’ quality of life in several dimensions. However, fewer have assessed its impact years after the initial diagnosis. The objective of this work was to carry out an in-depth analysis of the current quality of life and concerns of both mothers and fathers of adults diagnosed with ID, having as a reference the moment of the diagnosis. Methods: 16 parents of adult children with ID were evaluated using a semi-structured interview format. A thematic qualitative analysis was carried out by employing ATLAS.ti software. Results: The results suggested that both the emotional and physical well-being of parents, as well as their interpersonal relationships, had declined. In addition, the multiple life changes that had occurred over the time considered in this study, as well as day-to-day worries, had prevented improvements in their quality of life. Conclusions: Several dimensions of the parents’ quality of life were affected years after a child is diagnosed with ID. These included poor physical and psychological health, economic difficulties, lack of social and family support, and lack of time for self-care.

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“…However, the discourse of parents revealed evidence of adaptive coping strategies involving the search for solutions and support from relevant professionals and constantly striving on behalf of their child (Oñate & Calvete, 2017;Santos & Pereira-Martins, 2016).…”

Section: Discussionmentioning

confidence: 99%

Feeling of grief and loss in parental caregivers of adults diagnosed with intellectual disability

Fernández-Ávalos

Pérez-Marfil

Ferrer‐Cascales

et al. 2020

Research Intellect Disabil

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Intellectual disability is characterized by a significant limitation in intellectual functioning and adaptive behaviour before the age of 18 years (American Association on Intellectual & Developmental Disabilities, 2010). The diagnosis considers disorders in conceptual, social and practical domains, according to the fifth edition of the Diagnostic and Statistical Manual of Mental Disorders (DSM-5; American Psychiatric Association, 2013). More than 1,000 million people worldwide are considered to suffer some type of disability, and it has been estimated that there are 273,418 people with intellectual disability in Spain (Institute for the Elderly & Social Services, 2017; World Health Organization, 2011).An intellectual disability diagnosis can have a major impact on families, especially when unexpected (Bourke-Taylor et al., 2010;Van der Steen et al., 2016). It has been reported that parents first experience strong emotional shock, confusion, surprise, sadness, frustration, guilt and/or resentment, even denying the reality of the

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Estratégias de enfrentamento adotadas por pais de crianças com deficiência intelectual

Abstract: Estratégias de enfrentamento adotadas por pais de crianças com deficiência intelectualCoping strategies adopted by parents of children with intellectual disabilities

Cited by 15 publications

References 24 publications

Repercussões do nascimento e do cuidado de crianças com deficiência múltipla na família: uma metassíntese qualitativa

Repercussões do nascimento e do cuidado de crianças com deficiência múltipla na família: uma metassíntese qualitativa

Quality of Life and Concerns in Parent Caregivers of Adult Children Diagnosed with Intellectual Disability: A Qualitative Study

Feeling of grief and loss in parental caregivers of adults diagnosed with intellectual disability

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