A vivência do cuidado familiar em casas transitórias de apoio

Nascimento, Jaqueline Dias do; Lacerda, Maria Ribeiro; Girardon-Perlini, Nara Marilene Oliveira; Camargo, Tatiana Braga de; Gomes, Ingrid Meireles

doi:10.1590/0034-7167.2016690317i

Cited by 4 publications

(7 citation statements)

References 11 publications

(14 reference statements)

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“…In overburden per domain, general stress and disappointment were the ones with higher averages. These data support a studied carried out with 127 caregivers of disabled elderly people, in which the disappointment domain obtained score of 1.91±0.77 and the general stress domain, 2.18± 0.85 (13,15) . In the study carried out to evaluate the subjective impact of 29 caregivers of Alzheimer's elderly patients, the domains with higher scores were general stress (score of 2.39 and standard deviation of 0.49) and isolation (score of 2.28 and standard deviation of 0.72) (16) .…”

Section: Discussionsupporting

confidence: 86%

“…Before this scenario, overburden is straightly related to the care the patient needs. The more care the patient needs, the highest will be the overburden lived by the caregiver and, consequently, the lesser he will look after himself (13) . Thus, it is necessary to ponder on family routine, which is modified due to the demands inherent to caregiving of children and adolescents under these conditions (14) .…”

Section: Discussionmentioning

confidence: 99%

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Sobrecarga de cuidadores familiares de crianças e adolescentes em pós-transplante de células-tronco hematopoéticas imediato

Roberto¹,

Mercês

Mazza

et al. 2021

Enf Global

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Objetivo: Evaluar la sobrecarga de los cuidadores familiares de niños y adolescentes en el post-trasplante inmediato de células madre hematopoyéticas.Método: Estudio de tipo cuantitativo, analítico y transversal, realizado en dos instituciones de salud, con 31 cuidadores de niños y adolescentes en post-trasplante inmediato. La recolección de datos se llevó a cabo entre octubre de 2018 y junio de 2019. Se trazó el perfil socio demográfico de los cuidadores y se evaluó la sobrecarga de los mismos utilizando la Escala Caregiver Burden. Se utilizó estadística descriptiva y la correlación de Spearman. Resultados: Se obtuvo un puntaje de sobrecarga global de 2.4/4, los dominios que presentaron los puntajes más altos fueron: tensión general y decepción, ambos con 2.8/4. Conclusión: La comprensión sobre la forma como la familia enfrenta los desafíos impuestos por el TCMH en la etapa inmediatamente posterior le sirve de orientación al equipo interprofesional para realizar cuidados centrados en la familia y para ofrecer el máximo apoyo y orientación al cuidador. Objective: To evaluate the burden on family caregivers of children and adolescents in immediate post hematopoietic stem cell transplantation.Method: Study of quantitative nature, of analytical and traverse type, accomplished in two institutions of health with 31 caregivers of children and adolescents in immediate post transplantation. The data collection was accomplished between October of 2018 and June of 2019. The caregivers' social-demographic profile was characterized, and the burden was evaluated by Caregiver Burden Scale. The descriptive statistics and the Spearman correlation were used.Results: It was obtained a burden global score of 2.4/4; the domains with larger scores were: general stress and frustration, both with 2.8/4. Conclusion: The understanding of how the family faces the challenges imposed by the immediate post hematopoietic stem cell transplantation guides the multiprofessional team a care centered in the family and to offer maximum support and guidance to the caregiver. Objetivo: Avaliar a sobrecarga de cuidadores familiares de crianças e adolescentes em pós-transplante de células-tronco hematopoéticas imediato. Método: Estudo de natureza quantitativa, do tipo analítico e transversal, realizado em duas instituições de saúde, com 31 cuidadores de crianças e adolescentes no pós-transplante imediato. A coleta de dados foi realizada entre outubro de 2018 e junho de 2019. Caracterizou-se o perfil sociodemográfico dos cuidadores e avaliou-se a sobrecarga pela Caregiver Burden Scale. Utilizaram-se a estatística descritiva e a correlação de Spearman. Resultados: Obteve-se um escore global de sobrecarga no valor de 2,4/4, tendo sido os domínios com maiores escores: tensão geral e decepção, ambos com 2,8/4. Conclusão: A compreensão da sobrecarga vivenciada pela família e o modo como enfrenta os desafios impostos pelo pós-transplante de células-tronco hematopoéticas imediato orienta a equipe multiprofissional a um cuidado centrado na família e a ofertar o máximo de apoio e orientação ao cuidador.

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Section: Discussionsupporting

confidence: 86%

Section: Discussionmentioning

confidence: 99%

Sobrecarga de cuidadores familiares de crianças e adolescentes em pós-transplante de células-tronco hematopoéticas imediato

Roberto¹,

Mercês

Mazza

et al. 2021

Enf Global

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“…After hospital discharge, the patient needs to assume a new lifestyle, different from what they had previously lived 7 . In order to maintain the quality of life, it is necessary to acquire new knowledge, skills and attention to the therapeutic impositions of HSCT 6 - 7 , which also requires the caregiver to adapt to the necessary care. These different characteristics are highlighted in this study in association with cleaning and food and water intake, which need to be specific, repetitive and of excellence.…”

Section: Discussionmentioning

confidence: 99%

“…When it comes to child care, this issue is even more prominent, since children are dependent beings because of their natural condition as an infant and because the caregiver previously presents a referential for the care of the child, which allows better understanding and action in situations that may emerge, such as illness, as well as in the use of the potentialities and limitations of the child in the face of the experience faced 6 .…”

Section: Introductionmentioning

confidence: 99%

Care performed by family caregivers of children submitted to hematopoietic stem cell transplantation

Gomes

Lacerda

Rodrigues

et al. 2019

Rev. Latino-Am. Enfermagem

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Objective:to know the care provided by family caregivers of children submitted to hematopoietic stem cell transplantation. Method:the Grounded Theory was used as methodology. The study comprised four sample groups, comprising 36 caregivers. Data were collected by semi-structured interviews and analyzed according to the coding proposed by Strauss and Corbin in three phases: open, axial and selective. Results:eight propositions were identified for the care provided to the child in the researched context, namely administering medications; attention to cleaning issues; care with water and food intake; care with the body; experiencing protective isolation; addressing the child’s need for emotional support; addressing the child’s self-care; and facing complications. Conclusion:the different aspects in which the caregiver acts in the care of the child were understood. Such care equips the health team to elaborate measures for guidance and preparation of home care that are effective and directed to the needs of the patient and their family. The understanding of the care that they accomplish enables the caregiver a greater understanding of their role, as well as of the decisions they will make by their being under treatment.

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“…It was evidenced in their languages that, when they worried about the future of the sick family member, each caregiver assumed. 14 It was understood in this study that caring for a sick person at home is a great responsibility. It is revealed, from the speech of family caregivers, that some realize that home hospitalization provides some comfort and freedom, because they are in the patient's own space; on the other hand, feel that care at home generates feelings of guilt and greater responsibility, if the loved one passes away under their care.…”

Section:  Strategies For Self-care For Health Deviationsmentioning

confidence: 92%

Autocuidado do cuidador de adoecidos em cuidados paliativos oncológicos domiciliares

Vale

Neto

Santos

et al. 2019

Rev enferm UFPE on line.

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RESUMOObjetivo: conhecer as necessidades de autocuidado de familiares cuidadores frente ao cuidado de adoecidos em cuidados paliativos oncológicos domiciliares e propor estratégias a esses cuidadores para a realização do autocuidado. Método: trata-se de um estudo qualitativo, descritivo, realizou-se a coleta de dados por meio de uma entrevista com base nos requisitos de autocuidado de Dorothea Orem. Submeteram-se os materiais gerados a processos analíticos preconizados pela Análise de Conteúdo na modalidade Análise Temática. Resultados: definiram-se duas categorias temáticas: Categoria 1 – Ser cuidador: sobrepeso e qualidade de vida e Categoria 2 – A necessidade de cuidado do outro como obstáculo para o próprio cuidado. Conclusão: constatou-se que as necessidades de autocuidado dos cuidadores estão ligadas ao sono e repouso inadequados, alimentação e hidratação ineficazes, interação social prejudicada, risco à saúde, vulnerabilidades socioeconômicas e falta de instrução. Traçaram-se estratégias sugestivas para a realização do autocuidado voltadas para essas necessidades consideradas como fortes fatores contributivos para o avanço dos estudos voltados para o autocuidado. Descritores: Autocuidado; Cuidadores; Cuidados Paliativos; Neoplasias; Enfermagem; Visita Domiciliar.ABSTRACT Objective: to know the self-care needs of family caregivers regarding the care of patients with palliative care at home and propose strategies to these caregivers for self-care. Method: this is a qualitative, descriptive study, the data was collected through an interview based on Dorothea Orem's self-care requirements. The generated materials were submitted to analytical processes recommended by Content Analysis in the Thematic Analysis modality. Results: two thematic categories were defined: Category 1 - Being a caregiver: overweight and quality of life and Category 2 - The need for care of the other as an obstacle to one's care. Conclusion: it was found that the caregiver's self-care needs are related to inadequate sleep and rest, ineffective feeding and hydration, impaired social interaction, health risk, socioeconomic vulnerabilities and lack of education. Strategies suggestive for the realization of self-care focused on these needs were considered as strong contributory factors for the advancement of studies focused on self-care. Descriptors: Self-Care; Caregivers; Palliative Care; Neoplasms; Nursing; House Calls.RESUMEN Objetivo: conocer las necesidades de autocuidado de los familiares cuidadores frente al cuidado de enfermos em cuidados paliativos oncológicos domiciliarios y proponer estrategias a los cuidadores para la realización del autocuidado. Método: se trata de un estudio cualitativo, descriptivo, se realizo la recolección de datos a través de una entrevista basada en los requisitos de autocuidado de Dorothea Orem. Se sometieron los materiales generados a procesos analíticos preconizados por el Análisis de Contenido en la modalidad Análisis Temático. Resultados: se definieron dos categorías temáticas: Categoría 1 - Ser cuidador: sobrepeso y calidad de vida y Categoría 2 - La necesidad de cuidado del otro como obstáculo para su propio. Conclusión: e verifico que las necesidades de autocuidado de los cuidadores están relacionadas al sueño y de descanso inadecuados, alimentación e hidratación ineficaces, interacción social perjudicada, riesgo a la salud, vulnerabilidades socioeconómicas y falta de instrucción. Se platearon estratégias sugestivas para la realización del autocuidado dirigidas a la necesidades consideradas como fuertes factores contribuyentes para el avance de los estudios dirigidos al autocuidado. Descriptores: Autocuidado; Cuidadores; Cuidados Paliativos; Neoplasias; Enfermería; Visita Domicilliaria.

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A vivência do cuidado familiar em casas transitórias de apoio

Cited by 4 publications

References 11 publications

Sobrecarga de cuidadores familiares de crianças e adolescentes em pós-transplante de células-tronco hematopoéticas imediato

Sobrecarga de cuidadores familiares de crianças e adolescentes em pós-transplante de células-tronco hematopoéticas imediato

Care performed by family caregivers of children submitted to hematopoietic stem cell transplantation

Autocuidado do cuidador de adoecidos em cuidados paliativos oncológicos domiciliares

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