Resilience of family caregivers of children and adolescents in treatment of neoplasms and associated factors

Abstract

Objectives: analyze the level of resilience of family caregivers of children and adolescents hospitalized for cancer treatment and associated factors. Methods: cross-sectional study, carried out in 2018, with 62 family caregivers in a university hospital in the state of Rio Grande do Sul, Brazil. The instruments CDRisc-10-Br, SRQ20, PSS-14 and WHOQOL-Bref were used to measure resilience, minor psychological disorders, stress, and quality of life, respectively. Inferential statistics were used. Results: female caregivers, married, with one child and who practice some predominated religion. They were classified as having a moderate level of resilience (48.4%); with suspicion for minor psychological disorders (45%) and high level of stress (41%). In terms of quality of life, they were satisfied in the Physical, Psychological and Social Relations domains; and dissatisfied in the Environment domain. Conclusions: there were direct weak to moderate correlations between the level of resilience and quality of life and inversely with stress and minor psychological disorders.

Estresse percebido de mães de crianças com necessidades especiais de saúde e fatores sociodemográficos relacionados

“…Faz-se importante registrar que a PSS é considerada um instrumento genérico porque pode ser usada em diversos grupos etários, desde adolescentes até idosos, pois não contém questões específicas do contexto. Nessa direção, destacamse algumas investigações nacionais e internacionais que adotaram a PSS para mensurar o estresse de cuidadores de crianças aos moldes do presente estudo (11)(12)(13) .Ainda, ao final da coleta de dados, foi calculado o coeficiente alfa de Cronbach para analisar a consistência interna da PSS entre as mães de CRIANES obtendo =0,857, valor indicativo de boa consistência interna.…”

“…Cienc Cuid Saude. 2023;22:e65793 de estresse percebido foi de 41% (11) .Na mesma direção, investigação realizada no Irã com 250 pais de crianças com deficiência reforça que os pais experimentam um alto nível de estresse e pressão mental com risco aumentado de problemas psicológicos e interrupção do funcionamento da família (15) . Em contrapartida, o nível médio de estresse percebido identificado em um estudo realizado na Turquia junto a 181 mães de crianças com deficiências físicas e/ou mentais foi de 24,99 com desvio-padrão de 4,32 (12) .…”

Resilience of Parents who Have Children with Cancer

“…Spirituality, Religiosity, Faith, and Self-Transcendence Spirituality relates to well-being, understanding the human soul, and the best plan to be carried out (Silva et al, 2021). Religiosity, spirituality, and faith can help the process of developing resilience (Silva et al, 2021). These three things are the main mechanisms and STRADA : Jurnal Ilmiah Kesehatan DOI: https://doi.org/10.…”

“…30994/sjik.v12i1.987 ISSN: 2252-3847 (print);2614-350X (online) Vol.12 No.1 May 2023 Page. 12-27 sources of support that can be used by parents who have children diagnosed with cancer in the face of the difficult reality of life due to cancer (Silva et al, 2021).…”

“…Resilience is important for parents who have children with cancer, because resilience can train parents to emphasize more humanity, can help in maintaining health, and train parents to find new meanings of the difficult conditions that are being experienced caused by cancer experienced by children (Silva et al, 2021). Resilience is shown by how parents can keep moving forward, living better after a cancer diagnosis in a child by being optimistic and effective (Silva et al, 2021). Religious teachings, prayer and faith in God play an important role in increasing parental resilience (Mustafa et al, 2019).…”