Existential analysis of mothers in the care of their children with Sickle Cell Disease

Abstract

Objectives: to unveil the experience of mothers of children who had a cerebrovascular accident due to sickle cell disease. Methods: qualitative, phenomenological research based on Martin Heidegger’s philosophical framework. Ten mothers participated in the Association of People with Sickle Cell Disease of Minas Gerais. For the interpretative analysis of the reports, we performed the vague and medium understanding followed by hermeneutics. Results: the study revealed that, for the mother, the experience means remembering the diagnosis of the disease that had a significant impact. These women are in the center of care, and the consequences of stroke cause suffering. In this wandering, they seek to educate their children as close as possible to normal. Final Considerations: the study pointed out that we should look at these mothers seeking to see the multiple facets of their existence to the challenge of caring for the existential complexity of the human being.

A experiência de adoecimento falciforme pelas lentes qualitativas

“…O autocuidado [34][35][36][37][38][39] se debruçou sobre as medidas centradas nas pessoas que convivem diretamente com o adoecimento e suas formas de enfrentamento e controle da sintomatologia. O cuidado materno [40][41][42] emerge sob a égide dessa figura como responsável por proteger as pessoas acometidas pelo adoecimento, seja na 71 BVS continua tentativa de mensurar os conhecimentos referentes a DF, seja na atenção ou seja na dedicação materna frente às graves complicações da doença. Outro eixo apontado sobre o cuidado, se refere ao cuidado familiar [43][44][45][46][47][48][49] e a importância da família que, desde o momento do diagnóstico, ainda com sentimentos de temor pela gravidade do adoecimento, se torna um espaço protetor garantindo a qualidade de vida dos conviventes com a DF.…”

Death of children by domestic accidents: unveiling the maternal experience

“…In this process, the non-acceptance of the sudden death of the child and the permanent pain for the fatality are visible, demonstrated by the mothers' significant effort to explain their suffering. Although there is perceived difficulty in reporting, explaining, or even understanding this pain, talking about the child's death can benefit these women to the extent that they are able to share a real experience (35) and bring the deceased child into your world, easing the pain of loss by maintaining continuous contact with him/her (30) .…”

The sickle cell illness experience under the qualitative lens

“…Self-care [34][35][36][37][38][39] focused on measures centered on people who live directly with the illness and their ways of coping with and controlling symptoms. Maternal care [40][41][42] emerges under the aegis of this figure as responsible for protecting people affected by the illness, either in an attempt to measure knowledge regarding SCD or in care or maternal dedication in the face of the severe complications of the disease.…”