Translation and Validation of the Indonesian MD Anderson Dysphagia Inventory (MDADI) in Head and Neck Cancer Patients with Swallowing Disorders

Fakhriani, Rizka; Surono, Agus; Rianto, Bambang Udji Djoko

doi:10.1055/s-0041-1735566

Cited by 3 publications

(1 citation statement)

References 16 publications

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“…The reliability varies between 0.85 and 0.93 21 . The MDADI is validated for, for example, Arabic, 32 Chinese, 33 Danish, 34 English, French, 35 German, 36 Indonesian, 37 Italian, 38 Japanese, 39 Portuguese, 40 Swedish, 41 and Spanish 42 …”

Section: Resultsmentioning

confidence: 99%

Health‐related quality of life and patient‐reported outcome measurements in patients with cystinosis

et al. 2022

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Nephropathic cystinosis is a rare autosomal recessive lysosomal storage disorder. With the availability of treatment and renal replacement therapy, nephropathic cystinosis has evolved from an early fatal disease to a chronic, progressive disorder with potentially high impairment. We aim to review the literature on the healthrelated quality of life and identify appropriate patient-reported outcome measurements to assess the health-related quality of life of patients with cystinosis. For this review, we conducted a literature search in PubMed and Web of Science in September 2021. Inclusion and exclusion criteria for the selection of articles were defined a priori. We identified 668 unique articles through the search and screened them based on title and abstract. The full texts of 27 articles were assessed. Finally, we included five articles (published between 2009 and 2020) describing the health-related quality of life in patients with cystinosis. All studies, apart from one, were conducted in the United States, and no condition-specific measurement was used. Patients with cystinosis reported a lower health-related quality of life (for certain dimensions) than healthy subjects. Few published studies address the health-related quality of life of patients with cystinosis. Such data must be collected standardized and follow the FAIR (Findable, Accessible, Interoperable, and Reusable) principles. To gain a comprehensive understanding of the impact of this disorder on health-related quality of life, it is necessary to use generic and condition-specific instruments to measure this, preferably in large samples from longitudinal studies. A cystinosis-specific instrument for measuring health-related quality of life has yet to be developed. K E Y W O R D Scystinosis, health-related quality of life, patient-reported outcome measurements, rare diseases, scoping review

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Section: Resultsmentioning

confidence: 99%

Health‐related quality of life and patient‐reported outcome measurements in patients with cystinosis

et al. 2022

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Patient‐reported outcome measures for dysphagia in head and neck cancer: A systematic review and appraisal of content validity and internal structure

Manduchi,

Che,

Ringash

et al. 2024

Head & Neck

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Dysphagia is a major head and neck cancer (HNC) issue. Dysphagia‐related patient‐reported outcome measures (PROMs) are critical for patient‐centred assessment and intervention tailoring. This systematic review aimed to derive a comprehensive inventory of HNC dysphagia PROMs and appraise their content validity and internal structure. Six electronic databases were searched to February 2023 for studies detailing PROM content validity or internal structure. Eligible PROMs were those developed or validated for HNC, with ≥20% of items related to swallowing. Two independent raters screened citations and full‐text articles. Critical appraisal followed COSMIN guidelines. Overall, 114 studies were included, yielding 39 PROMs (17 dysphagia‐specific and 22 generic). Of included studies, 33 addressed PROM content validity and 78 internal structure. Of all PROMs, only the SOAL met COSMIN standards for both sufficient content validity and internal structure. Notably, the development of 18 PROMs predated the publication of COSMIN standards. In conclusion, this review identified 39 PROMs addressing dysphagia in HNC, of which only one met COSMIN quality criteria. Given that half of PROMs were developed prior to COSMIN guidelines, future application of current standards is needed to establish their psychometric quality.

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A Hard Truth to Swallow: Critically Evaluating the MD Anderson Dysphagia Inventory (MDADI) as an Endpoint in Human Papillomavirus-associated Oropharyngeal Cancer Trials

McDowell,

King,

Hutcheson

et al. 2024

International Journal of Radiation Oncology*Biology*Physics

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Translation and Validation of the Indonesian MD Anderson Dysphagia Inventory (MDADI) in Head and Neck Cancer Patients with Swallowing Disorders

Cited by 3 publications

References 16 publications

Health‐related quality of life and patient‐reported outcome measurements in patients with cystinosis

Health‐related quality of life and patient‐reported outcome measurements in patients with cystinosis

Patient‐reported outcome measures for dysphagia in head and neck cancer: A systematic review and appraisal of content validity and internal structure

A Hard Truth to Swallow: Critically Evaluating the MD Anderson Dysphagia Inventory (MDADI) as an Endpoint in Human Papillomavirus-associated Oropharyngeal Cancer Trials

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