Validation of questionnaires to assess quality of life related to fecal incontinence in children with anorectal malformations and Hirschsprung's disease

Mathias, Arthur Loguetti; Tannuri, Ana Cristina Aoun; Ferreira, Mariana Aparecida Elisei; Santos, Marcela de Souza; Tannuri, Uenis

doi:10.1016/j.rppede.2015.06.022

Cited by 10 publications

(11 citation statements)

References 12 publications

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“…The major causes of fecal incontinence reported in this study were anorectal malformations and spinal cord anomalies. The two groups of malformations have been variously documented as the leading indications for referral to pediatric surgeons of patients with fecal incontinence [1,[3][4][5]. Anorectal malformations, occurring in a spectrum, are commonly associated with fecal incontinence at the upper end of the spectrum.…”

Section: Discussionmentioning

confidence: 99%

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Influence of workshop attendance on management of pediatric fecal incontinence in Nigeria

Lawal

2019

Ann Pediatr Surg

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Background: The care of children with fecal incontinence is suboptimal with inadequate support and training opportunities. The postgraduate training of pediatric surgeons on the management of fecal incontinence is inadequate since each training center is not likely to see enough number of cases yearly. Supplemental training through workshops on fecal incontinence may help to bridge the gap. The aim of this cross sectional study was to evaluate the impact of previous attendance of a workshop on fecal incontinence management practices among pediatric surgeons. Results: A total of 41 respondents participated. Eleven (26.8%) respondents had attended a workshop in the past and seven (17.1%) had done a Malone antegrade continent enema (MACE) on patients. A higher proportion of respondents who had practiced for over 15 years had attended a workshop on fecal incontinence compared to those who had not attended one (90.9% vs. 33.3%, p = 0.001). The proportion of respondents who had attended a workshop on fecal incontinence and had performed a MACE (18.2%) was higher than the proportion of those who had not attended a workshop and had performed a similar procedure on patients (3.3%), p = 0.047. Conclusions: One quarter of pediatric surgeons in the country surveyed had attended a workshop on fecal incontinence. Prior attendance of a workshop on fecal incontinence is significantly related to experience and significantly influenced the performance of a MACE procedure. Supplementation of the training of pediatric surgeons through workshops on fecal incontinence will help to improve capacity in pediatric colorectal surgical care.

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Section: Discussionmentioning

confidence: 99%

“…Other important causes include treatment for Hirschsprung disease, sacral agenesis, trauma, and tumors [1]. In pediatric colorectal practice, fecal incontinence occurs in 10 to 60% of patients who have had surgery for anorectal malformations and Hirschsprung disease [2][3][4][5].…”

Section: Introductionmentioning

confidence: 99%

Influence of workshop attendance on management of pediatric fecal incontinence in Nigeria

Lawal

2019

Ann Pediatr Surg

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“…Fecal incontinence is a challenging problem in pediatric surgical practice as it may complicate surgery for the two most common colorectal conditions treated in the specialty, i.e., anorectal malformation and Hirschsprung disease [1]. Fecal incontinence occurs in 25 to 50% of children who have undergone surgery for anorectal malformation [2][3][4]. Fecal incontinence is commoner in patients with anorectal malformation that is associated with poorer prognosis [5][6][7][8].…”

Section: Introductionmentioning

confidence: 99%

“…Fecal incontinence is a much larger problem than reported [9], and it is associated with impairment of several domains of quality of life measures [3,13]. The impact on the quality of life is similar in patients treated either for anorectal malformation or Hirschsprung disease [3]. It is, thus, important to manage pediatric fecal incontinence appropriately and adequately to improve the quality of life of patients.…”

Section: Introductionmentioning

confidence: 99%

Management of postoperative fecal incontinence by pediatric surgeons in Nigeria: a pilot study

Lawal

2020

Ann Pediatr Surg

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Background Fecal incontinence is a challenging problem in pediatric surgical practice as it occurs in 25 to 50% of patients who have undergone surgery for anorectal malformation and in 5 to 23% after transanal pull-through for Hirschsprung disease. Fecal incontinence impacts on the quality of life of patients; hence, it is important that optimum management is instituted. The management of fecal incontinence in children in sub-Saharan Africa is largely unreported. The study, therefore, evaluated the management practices regarding fecal incontinence by pediatric surgeons in Nigeria. Results A total of 37 pediatric surgeons participated in the cross-sectional pilot study. The mean length of practice as specialists was 9.7 (± 7.8) years. The majority, 33 (89.2%), were males; 23 (62.2%) were ≤ 45 years of age, and 14 (37.8%) had practiced as consultant pediatric surgeons for ≥ 10 years. When presented with a patient with anorectal malformation and recto-bladder neck fistula or Hirschsprung disease who developed fecal incontinence after surgery, 25 (67.6%) and 22 (59.5%), respectively, will combine modalities in managing the patient. Bowel management (81.1% and 83.8% respectively) was the most commonly selected option of managing postoperative fecal incontinence. Other options selected for the management of postoperative fecal incontinence were as follows: examination under anesthesia (43.2% and 37.8%), constipating diet (43.2% and 35.1%), re-operation (24.3% and 27.0%), and diverting colostomy (21.6% and 16.2%) for anorectal malformation and Hirschsprung disease respectively. There were no statistically significant associations between the length of practice as specialist pediatric surgeons and the selection of single vs. multiple treatment options for a patient with fecal incontinence after surgery either for anorectal malformation or Hirschsprung disease. Conclusions A combination of modalities will be adopted by at least 60% of pediatric surgeons in Nigeria to manage postoperative pediatric fecal incontinence with bowel management favored by over 80% of specialists surveyed.

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“…As for the Portuguese language, our group previously validated the Fecal Continence Index (ICF) questionnaire and the Questionnaire for Assessment of Quality of Life Related to Fecal Continence in Children and Adolescents (QQVCFCA). 7 This work was developed with the purpose of applying the ICF and QQVCFCA questionnaires in patients with ARM attending a tertiary center of pediatric surgery. We will thus be able to know more about the profile of patients and their conditions, and to start using these tools in clinical practice.…”

Section: Introductionmentioning

confidence: 99%

Long-term evaluation of fecal continence and quality of life in patients operated for anorectal malformations

Tannuri

Ferreira

Mathias

et al. 2016

Rev. Assoc. Med. Bras.

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Summary Introduction: Patients operated for correction of anorectal malformations (ARM) can develop fecal incontinence, constipation, and soiling, with loss in quality of life. Objective: To evaluate, through the use of questionnaires, fecal continence, and quality of life of children in the late postoperative follow-up of ARM correction, both high and low. In addition, the levels of fecal continence and quality of life were compared with those of a control group. Method: A Fecal Continence Index Questionnaire (ICF) and a Questionnaire for Assessment of Quality of Life Related to Fecal Continence in Children and Adolescents (QQVCFCA) were administered to 63 patients with ARM, aged from 7 to 19 years, whose surgical treatment had been completed for at least 6 months. The patients were compared to a control group of 59 children. Results: In the control group, 25 (42.4%) patients had good continence and 34 (57.6%), normal continence. We found that the quality of life in children with ARM is compromised globally, in all areas and in the ICF questionnaire, compared to controls (p<0.001). There was no difference between patients with high and low defects. Thirty-two (50.8%) patients had other associated anomalies. Conclusion: In patients operated for ARM correction, quality of life and ICF were compromised, and there was no difference between patients with high-type and low-type of the disease. In about half the cases there are other associated malformations.

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Validation of questionnaires to assess quality of life related to fecal incontinence in children with anorectal malformations and Hirschsprung's disease

Cited by 10 publications

References 12 publications

Influence of workshop attendance on management of pediatric fecal incontinence in Nigeria

Influence of workshop attendance on management of pediatric fecal incontinence in Nigeria

Management of postoperative fecal incontinence by pediatric surgeons in Nigeria: a pilot study

Long-term evaluation of fecal continence and quality of life in patients operated for anorectal malformations

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