Quality of life in patients with ileal pouch for ulcerative colitis

Tilio, Marcela Soares Gonçalves de; Arias, Larissa Berbert; Camargo, Michel Gardere; Oliveira, Priscila Sene Portel de; Panzetti, Nathalia Vieira; Ayrizono, Maria de Lourdes Setsuko; Leal, Raquel Franco; Fagundes, João José; Coy, Cláudio Saddy Rodrigues

doi:10.1016/j.jcol.2013.06.001

Cited by 7 publications

(8 citation statements)

References 9 publications

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“…Se notó también prevalencia del sexo femenino, color pardo, casados/unión estable y escolaridad Enseñanza Secundaria completa. Esos datos, en especial el sexo, es evidente en la mayoría de los estudios internacionales y brasileños (8)(9)(10)(11)(12) . Mientras tanto, autores afirman que esa no sea característica general, pudiendo sufrir variaciones geográficas de localidades de la investigación, así como diferencias de hábitos culturales relacionados al género y los diferentes factores de riesgos que están inherentes (13) .…”

Section: Discussionunclassified

“…Como referencia será utilizada para la clasificación de CV las puntuaciones: ≥ 200 puntos se clasifican con Excelente, 101-150 como bueno, 151-199 como regular y ≤100 se caracteriza como mala CV (9) . Para la evaluación cualitativa de la suma de cada ámbito del IBDQ, fue utilizado el método matemático propuesto por Tilio et al (10) . Se dividió en tres el intervalo entre la puntuación mínima y máxima de cada ámbito, así se consideró para síntomas intestinales puntuaciones de 24 - La recolección de los datos ocurrió en el mes de diciembre de 2015.…”

Section: Materials Y Métodounclassified

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Qualidade de vida de pacientes com doença de Crohn

Lopes

Moura²,

Machado

et al. 2017

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Objetivo: Evaluar la calidad de vida de los pacientes con enfermedad de Crohn tratados en la clínica de un Hospital Universitario. <br />Método: Estudio transversal, descriptivo, exploratorio en el Hospital Universitario del Piauí- Brasil, de julio a diciembre de 2015, y con una muestra de 52 pacientes con enfermedad de Crohn. Se aplicó un formulario sociodemográfico y clínico, y el instrumento "Inflammatory Bowel Disease Questionnaire” para evaluar la calidad de vida. <br />Resultados: La mayoría eran mujeres, adultos, auto-declarados morenos, casados, con un ingreso familiar de dos salarios mínimos (392 euros), escuela secundaria completa y no bebían alcohol ni fumaban. Con más de cinco años de tiempo de diagnóstico y están parcialmente en remisión de la enfermedad. No mostraron frecuentemente pérdida de peso, diarrea y dolor abdominal en los últimos tres meses. Los pacientes fueron hospitalizados debido a la enfermedad de Crohn, una cuarta parte de ellos fueron sometidos a resección quirúrgica del intestino y como complicaciones las fístulas estaban más presentes. Como tratamiento medicamentoso utilizan asociación de inmunomoduladores y azatioprina. La mayoría hacía pruebas de laboratorio como control, seguido por colonoscopia y nunca ha abandonado el tratamiento. Presentaron calidad de vida regular y tuvieron respuesta "nunca" como la más puntuada en el instrumento. En los dominios síntomas sistémicos, aspectos sociales y emocionales la calidad de vida ha sido regular y en los síntomas intestinales fue satisfactoria con un promedio de 56,15 puntos.<br />Conclusión: Los pacientes con enfermedad de Crohn presentaron una calidad de vida regular.

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Section: Discussionunclassified

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Qualidade de vida de pacientes com doença de Crohn

Lopes

Moura²,

Machado

et al. 2017

eglobal

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“…Determination of the factors affecting the quality of life in the post-operative period [ 42 , 46 – 48 ].…”

Section: Discussionmentioning

confidence: 99%

Health-related quality of life assessment among patients with inflammatory bowel diseases after surgery – review

Bączyk¹,

Formanowicz²,

Gmerek³

et al. 2017

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Aim of the work was to review systematically the published literature addressing whether quality of life (QoL) and health-related QoL (HRQoL) are influenced by surgery among patients with inflammatory bowel disease (IBD). Electronic databases and published articles were searched to identify relevant studies published in the years 1990–2015. Then, a multistep selection was undertaken to identify articles that met specific selection criteria, such us specific key-words (IBD, HRQoL, ulcerative colitis (UC), Crohn’s disease (CD), and surgery), and the population was assessed (studies concerning patients < 18 years old were excluded). The review included 27 studies that were evaluated in the context of the influence of surgery on QoL and HRQoL. Concluding, with the increase in the incidence of IBD, monitoring of QoL is an important indicator of the health effects at each stage of the surgical treatment.

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“…The IBDQ has four domains: bowel symptoms, systemic symptoms, and emotional and social functioning. It has been used previously in patients with an ileoanal pouch 19 . The total score ranges from 32 to 224, with higher scores representing better functioning.…”

Section: Methodsmentioning

confidence: 99%

Determinants of long‐term function and general well‐being in patients with an ileoanal pouch

et al. 2020

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Background and aim: Fecal incontinence and/or evacuation difficulty are common after ileoanal pouch surgery. This study aimed to determine whether the development of these symptoms can be predicted so that preventive measures might be instituted. Methods: A consecutive series of 46 patients with ulcerative colitis (median age at surgery, 41 years; 50% female) and a functioning pouch for a duration ≥12 months was included. Assessment utilized medical record review and questionnaires on preand postoperative bowel function, quality of life, and psychological well-being. Pouch function was assessed by the Colorectal Functional Outcome score (0 = no impairment, 100 = worst impairment). Good pouch function was defined as a score ≤24. Results: Fecal incontinence occurred in 67% preoperatively and 54% postoperatively; evacuation difficulty occurred in 65% and preoperatively and 85% postoperatively. The postoperative median Colorectal Functional Outcome score was 20 (range 2-74), with 44% of patients >24 (poor pouch function). Preoperative nocturnal fecal incontinence (odds ratio [OR] 4.92, 95% confidence interval [CI] 1.2-19.4, P = 0.02) and pouchitis (OR 5.41, 95% CI 1.2-23.7, P = 0.02) were associated with poor pouch function after multivariable regression analysis. Postoperative satisfaction, psychological well-being, and quality of life were significantly better in those with good pouch function, while poor sleep, impaired work, and sexual dysfunction were independently associated with poor pouch function. Conclusions: Functional bowel symptoms are common before and after pouch surgery and are associated with the impairment of patient-reported outcomes. Preoperative nocturnal fecal incontinence predicts poor pouch function. Therapeutic focus on continence, bowel evacuation, psychological well-being, and quality of life should begin before surgery.

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Quality of life in patients with ileal pouch for ulcerative colitis

Cited by 7 publications

References 9 publications

Qualidade de vida de pacientes com doença de Crohn

Qualidade de vida de pacientes com doença de Crohn

Health-related quality of life assessment among patients with inflammatory bowel diseases after surgery – review

Determinants of long‐term function and general well‐being in patients with an ileoanal pouch

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