10 Eye donation in palliative and hospice care settings: patient views and missed opportunities!

Long-Sutehall, Tracy; Bracher, Michael; Madi-Segwagwe, Banyana Cecile; Myall, Michelle; Hurlow, Adam; Faull, Professor Christina; Rayment, Clare; Wale, Jane; Mollart, Sarah; Short, Jill; Lipscombe, Erika; Winstanley, Emma

doi:10.1136/bmjophth-2022-eeba.10

Cited by 1 publication

(1 citation statement)

References 0 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Findings from a national UK study on eye donation in palliative/hospice care revealed that although there was high potential for donation, there were very low levels of approach, few donation discussions during advance care planning, and little discussion during interdisciplinary team meetings. 5 A national UK online survey of 156 palliative/ hospice care providers, representing an 8% rate of response (n = 1894), revealed that although most respondents did not find discussion of eye donation distressing to patients/ families, the option of donation was commonly only discussed if the patient/family initiated the topic. Most hospital/palliative care settings did not actively encourage these discussions, and 64% of respondents (99/154) felt they had insufficient training related to donation.…”

Section: Review Of Literaturementioning

confidence: 99%

Turning Loss Into Legacy

Westphal,

Williams,

Sommer

2024

J Hosp Palliat Nurs

View full text Add to dashboard Cite

Organ, tissue, and eye donations provide opportunities to leave a legacy by saving and/or enhancing the quality of life of others. There has been little published related to tissue or eye donation in hospice/palliative care and few initiatives to facilitate donation among hospice patients/families. Donation myths, gaps in knowledge, and, most significantly, lack of donation referral processes result in missed opportunities for patient/families to consider donation. One donor has the potential to impact 75 lives or more through tissue donation and 2 lives through eye donation. Hospice/palliative care providers can play key roles related to education, advocacy, and collaboration. The support of hospice/palliative care organizations and the local Organ Procurement Organization/Tissue and Eye Recovery Agency are essential for facilitating donation opportunities. This article summarizes current literature, examines legislation and regulations related to donation, presents a case that illustrates an opportunity for hospice community based donation, and shares practices that support donation in hospice/palliative care organizations together with the local Organ Procurement Organization/Tissue and Eye Recovery Agency. This article will hopefully provide the impetus for further study and the development of practices to optimize donation in hospice/palliative care, thus providing more patients and families the opportunity to turn loss into legacy.

show abstract

Section: Review Of Literaturementioning

confidence: 99%