06 Focusing on the Future: Reducing Barriers and Improving Access to Ibd Specialty Care

Heisler, Courtney; Kits, Olga; Zanten, Sander Veldhuyzen van; Jones, Jennifer

doi:10.1093/ibd/izy393.000

Cited by 1 publication

(4 citation statements)

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“…For this reason, patients with IBD require comprehensive and multidisciplinary care, including psychosocial support. 21,44,49 There are patient organizations that carry out activities oriented toward IBD. Despite some isolated efforts by these groups, the truth is that organizations focused on IBD are very few in the region, and in certain countries they still do not exist.…”

Section: Therapeutic Advances In Gastroenterologymentioning

confidence: 99%

“…Being a chronic disorder with no identified cure that begins in patients at an early age, they will often need complex treatments throughout their lives, which has a significant impact on health systems, but also on the country's productivity and economic development. 27,28,49,50 While there is no rigorous information on the direct and indirect costs of IBD in Latin America, studies carried out in countries such as the United States, Canada, and Spain show the possible costs associated with these diseases for the patient and for the country. According to these studies, people with IBD can incur health costs three times higher than people without it.…”

Section: Therapeutic Advances In Gastroenterologymentioning

confidence: 99%

“…For this reason, patients with IBD require comprehensive and multidisciplinary care, including psychosocial support. 21 , 44 , 49 …”

Section: Incidence Prevalence and Burden Of The Diseasementioning

confidence: 99%

Section: Incidence Prevalence and Burden Of The Diseasementioning

confidence: 99%

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Latin America consensus statement inflammatory bowel disease: importance of timely access to diagnosis and treatment

Steinwurz,

Machado,

Veitia

et al. 2023

Therap Adv Gastroenterol

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Background: Inflammatory bowel diseases (IBDs) are chronic conditions that negatively interferes with the quality of life of the patients, on a physical, emotional, and social level. Its symptoms can vary including diarrhea, bleeding, abdominal pain, fever, and weight loss, depending on the type and location and severity of the disease. Despite evolving treatment, they do not always achieve control of the symptoms, so between 23% and 45% of people with idiopathic chronic ulcerative colitis, and up to 75% of those with Crohn’s disease, eventually, will need surgery. Objective: The increase in its incidence in Latin America has promoted a renewed interest on the part of the medical and scientific community in standardizing and unifying criteria for the proper diagnosis and management of the disease, which is part of the current discussions of various events; however, this interest has not yet been reflected in policies and initiatives by governments to address the disease. We decided to develop a consensus meeting in order to elucidate the actual situation of IBD care in our region. Design: The methodology employed to build the consensus document derived from a review of literature, evidence, and policies on IBD, followed by a process of validation and feedback with a group of 10 experts in the field. Methods: Nine experts from different countries in Latin America were reunited in web meetings on 2 days and voted on topics derived from the consensus document. A full agreement with 100% approval was needed, so topics were discussed to reach the consensus otherwise were removed. Results: There is still a lack of information about IBD in Latin America, therefore IBD continues to be an ‘invisible’ disease and is little recognized by decision-makers. Conclusion: This document describes the current situation of IBDs in the Latin American region, highlighting the main barriers and challenges in timely access to diagnosis and treatment, in order to demonstrate the need to promote the development and implementation of policies, in order to improve the quality of care of patients with IBD.

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Section: Therapeutic Advances In Gastroenterologymentioning

confidence: 99%

Section: Therapeutic Advances In Gastroenterologymentioning

confidence: 99%

“…For this reason, patients with IBD require comprehensive and multidisciplinary care, including psychosocial support. 21 , 44 , 49 …”

Section: Incidence Prevalence and Burden Of The Diseasementioning

confidence: 99%

Section: Incidence Prevalence and Burden Of The Diseasementioning

confidence: 99%

See 2 more Smart Citations