BackgroundAccording to the Beryl Institute's, patient experience (PX) is “the sum of all interactions, shaped by an organization's culture, that influence patient perceptions, across the continuum of care”; nowadays patient satisfaction is considered as one of the quality for performance in health systems (1). In order to provide a multidisciplinary quality care to patients with RA in centers of excellence (CoEs) under the coordination of a rheumatologist, provide comprehensive management of patients with this pathology, ensuring approachability to medical appointments and treatment, in order to get better clinical outcomes and improve patient safety and satisfaction of the health services provided.ObjectivesTo measure levels of satisfaction of RA patients treated at a specialized center and to evaluate patient service.MethodsIn a RA specialized center during a 24 month period we performed a satisfaction survey in order to evaluate the health services provided. We evaluated the timing on attention, appointment assignment, information provided, the treatment received by the healthcare team, facilities among others. Patients evaluated the services provided in a scale from 1 to 4, were 1 was very bad, 2 regular, 3 good and 4 excellent. Descriptive epidemiology was performed for each variable presented.ResultsWe collected 1125 surveys during 2015 and 2016, 45% considered to have a timely care, the mean of waiting time for an appointment was 9 min ± 8; regarding the appointment assignment 96% of the patients evaluated it as good or excellent (mean 3.5±0.7), 80% considered that the information provided was clear and useful, 90% reported to receive a kind and friendly treatment and to considered the facilities as good or excellent. When we evaluated the satisfaction regarding the health care team 50% of patients evaluated the rheumatologist, nurse, nutritionist, physical therapist, psychologist and physiatrist as good and 40% as excellent.ConclusionsAlthough we found that our patients are highly satisfied, there is a large opportunity to improve our services. Also, this evidence can support further research projects in order to increase the patient's satisfaction.References Th VP. Creating the ideal patient experience. Journal of medicine and life. 2016;9(4):380–385. Disclosure of InterestNone declared
BackgroundRheumatoid arthritis (RA) is the prevalent autoimmune inflammatory arthritis found in adults, with the worldwide prevalence ranging from 0.4% to 1.3% (1). Patients with this condition have permanent changes with different severity of arthritis deformities as well as functional disturbances; Studies had shown that every painful condition disturbs sleep, which can lead to mood and abilities disturbances (2).ObjectivesThe aim of this study was to describe the socio-demographic profile and sleep disorders in RA patients from a specialized RA clinic in Colombia and relationship with disease activity.MethodsA descriptive cross-sectional study was performed in a specialized clinic dedicated to care patients with rheumatoid arthritis (RA). Data was collected during our psychology consultation, through semi-structured interviews and non-probability sampling. Descriptive epidemiology was applied for continuous variables, using measures of central tendency and dispersion for categorical and qualitative variables by averages and percentages. We analyzed bivariate association with Pearson's X2.ResultsWe included 1398 patients attending to our psychology consultation. Mean age was 55±8. 80% were female and 20% male. Mean DAS28 was 2.6±1.3, mean HAQ was 1.6±1. 6; Patients had the disease for an average of 12 years ± 8; 41% of patients had comorbidities associated with non-autoimmune disease, 14% comorbidities related to autoimmune disease; 35% of our patients did not report other comorbidities. Most of patients were married 60%, followed by divorced 19%, single 14% and widowed 7%. Regarding occupation 33% were employees, 25% were housekeepers or retired due to age, 12% were retired due to disabilities, and 3% unemployed. Of the total population 45% had elementary school, 32% high school, 8% college education, 7% graduate education and 7% were illiterate. 17% of patients lived alone. When the psychologist asked about sleep disorders 69% reported no to have any, 25% primary insomnia, 1% hypersomnia, 3% OSAS and 2% alterations on the circadian rhythm. Disease activity was statically associated with sleep disorders (p<0.00).ConclusionsSleep problems are an important aspect to consider in a patient with RA and are correlated to disease activity; it is important to have a multidisciplinary care team for the patient with RA, including a psychologist that can manage this kind of illness in order to improve the life quality of patients.References Bautista-Molano W, Fernández-Avila D, Jiménez R, Cardozo R, Marín A, Soler MdP, et al. Epidemiological Profile of Colombian Patients With Rheumatoid Arthritis in a Specialized Care Clinic. Reumatología Clínica (English Edition). 2016;12(6):313–8.Purabdollah M, Lakdizaji S, Rahmani A, Hajalilu M, Ansarin K. Relationship between Sleep Disorders, Pain and Quality of Life in Patients with Rheumatoid Arthritis. Journal of caring sciences. 2015;4(3):233–41. Disclosure of InterestNone declared
BackgroundRheumatoid arthritis (RA) is the prevalent autoimmune inflammatory arthritis found in adults, with the worldwide prevalence ranging from 0.4% to 1.3%. Psychological disorders can be underestimated in this population; on the other hand studies had shown that the daily experience with RA can lead to sleep, psychological and sleep disorders.ObjectivesTo characterize a population with RA and to describe the psychological, sexual and sleep disorders in a specialized rheumatology center in Bogotá Colombia.MethodsWe perform a cross-sectional study of patients attending to our psychology consultation the information was collected through semi-structured interviews, also using classificatory criteria of pathologies described in CIE 10 diagnostic manual, applying descriptive epidemiology for continuous variables, measure of central tendency and dispersion for qualitative and categorical variables through percentages and averages.ResultsWe included 1398 patients attending to our psychology consultation. Mean age was 55 years ± 8; 80% were female and 20% male. Mean DAS28 was 2.6±1.3, mean HAQ was 1.6±1.6; patients had the disease for an average of 12 years ± 8; 41% of patients had comorbidities associated with non-autoimmune disease, 14% comorbidities related to autoimmune disease; 35% of our patients did not report other comorbidities. Most of patients were married 60%, followed by divorced 19%, single 14% and widowed 7%. Regarding occupation 33% were employees, 25% were housekeepers or retired due to age, 12% were retired due to disabilities, and 3% unemployed. Of the total population 45% had elementary school, 32% high school, 8% college education, 7% graduate education and 7% were illiterate. 17% of patients lived alone. Regarding psychological factors 25% had any mood disorders, 13% sleep disorders, 12% somatomorphic disorders, 6% sexual dysfunction, 2% dementia, 4% eating disorders and 38% reported no to have any of the above. Concerning sexual disorders, 38% reported no to have any sexual activity, 32% reported to have a satisfactory sexual life, 11% dyspareunia, 9% had an unsatisfactory sexual life, 5% loss of desire, 3% premature ejaculation and 2% orgasmic decrease. When the psychologist asked about sleep disorders 69% reported no to have any, 25% primary insomnia, 1% hypersomnia, 3% OSAS and 2% alterations on the circadian rhythm. There was a statistical association between psychological and sexual disorders, sleep and sexual disorders and, psychological and sleep disorders. Disease activity was associated only with sleep disorders.ConclusionsNot only DMARDs disease management should be a priority for RA patients, factors such as sleep, sexual and psychological are important because one third of patients have it; on the other hand there is a interdependence between them and disease activity. Thus, it is important to have a multidisciplinary care team for the patient with RA, including a psychologist that can manage this kind of conditions and if necessary refer to a psychiatrist consultation.Disclosure of...
BackgroundRheumatoid arthritis (RA) is a chronic inflammatory disease of the joints affecting more than 1% of global population, it is a long term condition that causes pain, disability and affects the quality of life (1). It has been demonstrated that patient's involvement with its treatment and disease management can be more effective than information-only given by the physician or a health care professional (2).ObjectivesTo describe patient's preferences regarding information technology tools for education and RA management in a specialized center in Bogotá Colombia.MethodsWe conducted a descriptive study where a survey was applied to a group of patients or care-givers attending to a patient-focused symposium in Bogotá Colombia. Descriptive epidemiology was done; percentages and averages were calculated for qualitative variables.ResultsWe included 452 participants, 80% were patients and 20% caregivers, only 25% referred to assist to informative activities regarding disease management, 41% reported to have information regarding RA, also between 29% and 45% of patients acknowledged the role of the health-care team in the disease activity management. Regarding technology information tools patients considered that WhatsApp was the most important tool to received messages to disease management (40%) followed by YouTube and websites. 70% reported to have a computer or a mobile phone with internet connection, 60% reported to use Facebook while only 30% reported to use easily websites and twitter.ConclusionsIt is important to know the preferences and access that patients and caregivers have to informatics technology in order to create self-care programs that really are going to be used in this population. This survey is evidence not only to start an educational program in our specialized center but to the health care professionals and stakeholders in Colombia.References Prothero L, Georgopoulou S, de Souza S. Patient involvement in the development of a handbook for moderate rheumatoid arthritis. 2016.Vermaak V, Briffa NK, Langlands B, Inderjeeth C, McQuade J. Evaluation of a disease specific rheumatoid arthritis self-management education program, a single group repeated measures study. BMC musculoskeletal disorders. 2015;16:214. Disclosure of InterestNone declared
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