EOS remains an uncommon but important cause of morbidity and mortality among VLBW infants. Gram-negative organisms continue to be the predominant pathogens associated with EOS.
Professionals commonly advise parents of disabled children to raise their children as they would children who were not disabled. The purpose of this study was to describe the management styles used by the parents of 15 children and adolescents with osteogenesis imperfecta. In particular, the behavioural strategies related to providing a normalized existence for the child and the family are discussed. Sources of threats, validation, and support for the process are also described. The convenience sample of parents was selected from the appointment calendar of a specialty clinic in a midwestern philanthropic, paediatric-orthopaedic referral hospital. Qualitative interview data were gathered using a semi-structured guide. During interviews parents described behavioural strategies they used to normalize their child's and family life. Data were analysed using a previously developed framework of normalization. This work of normalization was described as a constant process of active accommodation to the changing physical and emotional needs of the child or adolescent. It was initiated out of practical necessity at birth as a conscious solution to problems with activities of daily living, relating to the child, and engaging in family activities. Certain events constituted 'threats' to normalization and served as an impetus for parents to alter behavioural strategies. Implications for clinical practice and research are explicated.
M any adolescents are at an increased risk for anemia due to their rapid growth and increasing muscle mass. However, adolescent females with heavy menstrual bleeding are at an even greater risk for anemia. Heavy menstruation in adolescent females not only has negative effects on health-related quality of life and school attendance, but also has major health implications such as iron deficiency anemia. About 75% of teen girls do not meet the Recommended Dietary Allowance (RDA) for iron, due in part to busy lifestyles, and self-imposed trendy diets. 1-3 At a time in their lives when young women have an increased need for iron to compensate for menstrual blood loss and increased growth, many young women are preoccupied with body image.³ The combination of heavy menstrual bleeding (HMB) and an inadequate diet frequently leads to iron deficiency in young women. DRAWBACKS OF ORAL IRON THERAPY When we developed a program for females with HMB at the Adolescent Hematology Clinic at Nationwide Children's Hospital, anemia quickly became a very prevalent concern de
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