Why Marginalization, Not Vulnerability, Can Best Identify People in Need of Special Medical and Nutrition Care

Walker, Alexis; Fox, Elizabeth

doi:10.1001/amajethics.2018.941

Cited by 17 publications

(6 citation statements)

References 17 publications

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“…There are numerous tensions between these notions in the literature. Each of them is recurrently contested (for example, see Reference [2,3]), as are the connections between them (for example, see Reference [4]).…”

Section: Introduction Materials and Methodsmentioning

confidence: 99%

Marginalisation, Ebola and Health for All: From Outbreak to Lessons Learned

Shelley-Egan

Dratwa²

2019

IJERPH

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The Ebola epidemic in West Africa between 2014 and 2015 was the deadliest since the discovery of the virus four decades ago. With the second-largest outbreak of Ebola virus disease currently raging in the Democratic Republic of the Congo, (DRC) it is clear that lessons from the past can be quickly forgotten—or be incomplete in the first instance. In this article, we seek to understand the health challenges facing marginalised people by elaborating on the multiple dimensions of marginalisation in the case of the West Africa Ebola epidemic. We trace and unpack modes of marginalisation, beginning with the “outbreak narrative” and its main components and go on to examine other framings, including the prioritisation of the present over the past, the positioning of ‘Us versus Them’; and the marginalisation—in responses to the outbreak—of traditional medicine, cultural practices and other practices around farming and hunting. Finally, we reflect on the ‘lessons learned’ framing, highlighting what is included and what is left out. In conclusion, we stress the need to acknowledge—and be responsive to—the ethical, normative framings of such marginalisation.

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Section: Introduction Materials and Methodsmentioning

confidence: 99%

Marginalisation, Ebola and Health for All: From Outbreak to Lessons Learned

Shelley-Egan

Dratwa²

2019

IJERPH

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“…2 Throughout this article we use the term citizens living in vulnerable circumstances. We purposefully do not use the term vulnerable groups since Western digitized societies place these citizens in a vulnerable position (Walker & Fox, 2018).…”

Section: Conflict Of Interestmentioning

confidence: 99%

“Never good enough.” A situated understanding of the impact of digitalization on citizens living in a low socioeconomic position

2022

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Digital inequality is a critical issue in our knowledge economy. Often digital inequality is framed as a problem that only older people encounter. This rather stereotypical portrayal can result in improvised and unsuccessful policy actions. The goal of the article is to take the experiences of citizens who never or seldom use information and communication technology as a point of departure to show the impact and outcomes of digitalization on the lives of people with a low socioeconomic position (LSEP) and across different intersections, such as gender, poverty, ethnicity, and age. The results of this qualitative study emphasize that not being able to use the Internet negatively impacts feelings of belonging and self-confidence. Citizens need to invest continually in new or different equipment and in skills to keep up. Opportunities to invest are shaped at the nexus of gender, class, educational level, and occupational status. Therefore, simply training people in particular digital skills is insufficient. We show that the complexity of digital inequality and its interrelatedness with social inequalities along lines of class, age, gender, and ethnicity demand that policy and practices address digital inequality across the entire scope.

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“… 20–22 It may also reinforce deeply ingrained prejudices that place certain people in social categories, often with an underlying assumption that there is something wrong with them. 23 , 24 Individuals who are considered vulnerable are further burdened by an epithet that is sometimes seen to describe circumstances that arise from and are part of a group affiliation. 22 …”

Section: Reference To Vulnerability In Biomedical Research Guidelinesmentioning

confidence: 99%

Vulnerability and the Ethics of Human Germline Genome Editing

et al. 2022

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The concept of vulnerability has played an important role in theoretical bioethics as well as in numerous authoritative guidelines on research ethics. The concept helps to identify situations in which research participants and other individuals may be at a heightened risk of experiencing harm. However, existing guidance documents on the ethics of human germline gene editing largely fail to make any reference to considerations of vulnerability. In this article, we discuss this oversight and we highlight the role that vulnerability can play in ethical debates about human heritable genome editing. Future guidance documents on germline gene editing should pay attention to considerations of vulnerability and reference these appropriately.

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Why Marginalization, Not Vulnerability, Can Best Identify People in Need of Special Medical and Nutrition Care

Cited by 17 publications

References 17 publications

Marginalisation, Ebola and Health for All: From Outbreak to Lessons Learned

Marginalisation, Ebola and Health for All: From Outbreak to Lessons Learned

“Never good enough.” A situated understanding of the impact of digitalization on citizens living in a low socioeconomic position

Vulnerability and the Ethics of Human Germline Genome Editing

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