Who's keeping count? The need for regulation is a relative matter

Sawyer, Neroli

doi:10.1016/j.fertnstert.2009.01.099

Cited by 7 publications

(3 citation statements)

References 55 publications

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“…It needs to be emphasized that without adequate records concerning donor conception, it will be impossible to establish evidence-based donor limits (Sawyer, 2009). …”

Section: Establishment Of Donor Registriesmentioning

confidence: 99%

A survey of 1700 women who formed their families using donor spermatozoa

Sawyer

Blyth

Kramer³

et al. 2013

Reproductive BioMedicine Online

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This paper reports the results of an online survey of 1700 recipients of donor spermatozoa conducted by the Donor Sibling Registry, aiming to understand the perspectives of respondents who had used donor spermatozoa. The survey examined: choice of sperm bank and donor; reporting of births and genetic disorders; disclosure; contact with donor and half-siblings; regulation of sperm donor activity and genetic testing; and access to medical information. The respondents formed three groups: single women; women in a same-sex relationship; and women in a heterosexual relationship. Some differences between the three cohorts were observed: preinsemination counselling; acceptance of donors without medical records or with chronic or late-onset diseases; awareness of choice of bank and type of donor; and views on the right of offspring to know their genetic origins. However, important areas of common ground were identified: the wish by those who had used an anonymous donor that they had used an open-identity donor; support for, and willingness to pay for, comprehensive genetic testing of donors; and desire for access to their donor's family health information. The implications of these results for policies concerning the use and management of donor spermatozoa will be discussed.

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“…It needs to be emphasized that without adequate records concerning donor conception, it will be impossible to establish evidence-based donor limits (Sawyer, 2009). …”

Section: Establishment Of Donor Registriesmentioning

confidence: 99%

A survey of 1700 women who formed their families using donor spermatozoa

Sawyer

Blyth

Kramer³

et al. 2013

Reproductive BioMedicine Online

Self Cite

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“…First, such a registry would also allow research into ARTs to track longterm trends and follow up that can be used to increase the safety of the procedures (Basu, 2004;Cahn, 2008;D'Orazio, 2006;Sylvester and Burt, 2007). Second, the establishment of donor registries could be used to formulate appropriate limits on the use of donors, as currently without adequate records of how many times a donor is used it is not possible to provide scientific evidence to establish any evidence-based limits and develop robust guidelines for practice (Sawyer, 2009). Finally, a national registry could facilitate information exchange.…”

Section: Donor Registriesmentioning

confidence: 99%

Assisted reproductive technology in the USA: is more regulation needed?

Frith

Blyth

2014

Reproductive BioMedicine Online

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The regulation of assisted reproductive technologies is a contested area. Some jurisdictions, such as the UK and a number of Australian states, have comprehensive regulation of most aspects of assisted reproductive technologies; others, such as the USA, have taken a more piecemeal approach and rely on professional guidelines and the general regulation of medical practice to govern this area. It will be argued that such a laissez-faire approach is inadequate for regulating the complex area of assisted reproductive technologies. Two key examples, reducing multiple births and registers of donors and offspring, will be considered to illustrate the effects of the regulatory structure of assisted reproductive technologies in the USA on practice. It will be concluded that the regulatory structure in the USA fails to provide an adequate mechanism for ensuring the ethical and safe conduct of ART services, and that more comprehensive regulation is required.

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“…To this aim a national registry could be set up, which, besides data on donors, contained treatment outcomes. This would provide for better administration of donor use, enable better estimates on consanguinity risks and the tracing of donors by offspring (Sawyer, 2009). In The Netherlands a national registry has existed since 2004 (Janssens et al, 2006).…”

Section: Research Should Be Conducted On How Donorsmentioning

confidence: 99%

Reconsidering the number of offspring per gamete donor in the Dutch open-identity system

Janssens¹,

Nap

Bancsi

2011

Human Fertility

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The introduction of legislation in the Netherlands in 2004 enabling donor offspring to identify and make contact with their donors has led to a need to reconsider the number of offspring that an individual semen donor may produce. To this end, we made a survey on the limits for offspring per donor in 29 different countries, distinguishing between systems with anonymous and open-identity sperm donation. We counted donations as individual offspring conceived, or as the number of women/families helped, by a single donor. The interests of the various participants in gamete donation in open-identity and anonymous systems are considered with some of the basic assumptions and interactions between the different parties that might be used to formulate reasonable guidelines. A number of recommendations are made.

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Who's keeping count? The need for regulation is a relative matter

Cited by 7 publications

References 55 publications

A survey of 1700 women who formed their families using donor spermatozoa

A survey of 1700 women who formed their families using donor spermatozoa

Assisted reproductive technology in the USA: is more regulation needed?

Reconsidering the number of offspring per gamete donor in the Dutch open-identity system

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