2005
DOI: 10.1080/j.1440-1614.2005.01611.x
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Abstract: This study yielded important baseline data about the number of patients who have a carer. We were also able to determine that routine clinical information provided to patients and carers is inadequate from their perspective. It is anticipated that this initiative will assist ongoing service planning and improve partnerships with patients and their carers.

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Cited by 72 publications
(97 citation statements)
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References 26 publications
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“…8 There is substantial similarity between the total BAS score in the current data (M = 38.5; Objective and Subjective Burden = 19.7 and 18.9, respectively) and other datasets. 17 The factor structure of the BAS also resembled that reported by Reinhard et al, with the present study identifying factors that could be labelled carer distress, disruption to activities, guilt and time perspective. 8 (The original BAS used a 1-4 scale, but as some researchers have used a 0-3 scale scores were adjusted where necessary to permit meaningful comparisons.)…”
Section: Discussionsupporting
confidence: 87%
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“…8 There is substantial similarity between the total BAS score in the current data (M = 38.5; Objective and Subjective Burden = 19.7 and 18.9, respectively) and other datasets. 17 The factor structure of the BAS also resembled that reported by Reinhard et al, with the present study identifying factors that could be labelled carer distress, disruption to activities, guilt and time perspective. 8 (The original BAS used a 1-4 scale, but as some researchers have used a 0-3 scale scores were adjusted where necessary to permit meaningful comparisons.)…”
Section: Discussionsupporting
confidence: 87%
“…The demands, often described as the 'burden of care', are separable into an objective burden reflecting the direct impact on the carer of the sufferer (e.g. In the first sample, the components were labelled disrupted activities (items 3-8), personal distress (items 10,11,14,15), time perspective (16,18,19), guilt (12,13,17), and basic social functioning (items 2 and 9). worry about the patient).…”
mentioning
confidence: 99%
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“…Many other studies (Cleary, Freeman, Hunt, & Walter, 2005;Gasque-Cater & Curlee, 1999;Schmid et al, 2003) have documented a lack of both information and psychoeducation as one of the main burdens on caregivers of patients with mental illness. Especially at the onset of the illness, caregivers lack information about the illness and advice about how to behave when dealing with their ill family member (Schützwohl, Glöckner, Matthes, Eichler, & Kallert, 2005).…”
Section: Factors Influencing Caregivers' Burdenmentioning
confidence: 99%
“…In mental health, the stakeholders-families, consumers, carers, non-government agencies, and general health care systems-are all vital components of the care system across the health care continuum and must be included in a genuine and non-tokenistic way, including the sharing of information (Cleary, Freeman, Hunt, & Walter, 2005;Horsfall et al, 2010). A consumer's journey to social inclusion begins with a community-based approach that links consumers with non-government organisations, such as housing providers and specialist employment agencies, and also ensure that consumers are involved as partners in their treatment choices and wellness plans.…”
Section: Ways Forwardmentioning
confidence: 99%