Background and Objectives
Few reports have investigated patient experiences following total en bloc sacrectomy. The aims of this study were to obtain a deeper understanding of patients’ personal experiences, needs, and satisfaction with the treatment to reveal areas in which perioperative and long‐term patient care can be improved.
Methods
A qualitative design was applied to examine patient experiences and supportive care needs. Patients treated between 2007 and 2017 were identified from our institutional database.
Results
A total of 28 survivors were interviewed (13 females, age 13‐75 years). Eight themes were identified: the effect of surgery on patients’ (a) daily lives, (b) social activities, (c) work or school activities, (d) and family lives; (e) acceptance of ostomy surgery; (f) need for guidance regarding long‐term rehabilitation; (g) satisfaction with the medical services provided in the hospital; and (h) satisfaction with the treatment outcomes.
Conclusion
Total en bloc sacrectomy can yield satisfactory oncological outcomes; however, the procedure is a life‐changing event for patients and their families. Physicians must provide long‐term support and guidance after surgery to enable patients to fully understand and cope with the changes in their lives.