We are the experts: people with asthma talk about their medicine information needs

Raynor, David K.; Savage, Imogen; Knapp, Peter; Henley, Jeremy M.

doi:10.1016/s0738-3991(03)00126-5

Cited by 113 publications

(155 citation statements)

References 25 publications

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“…In this context, healthcare professionals are responsible for assuring the transmission of information fundamental to the adequate use of medicines, despite what materials might exist, in particular dosage instructions, side effects and strategies for patients' adherence [25][26][27].…”

Section: Questionnaire Part B: B) Participants' Suggestions To Improvmentioning

confidence: 99%

Exploring the perspectives of potential consumers and healthcare professionals on the readability of a package insert: a case study of an over-the-counter medicine

Pires

Cavaco

2014

Eur J Clin Pharmacol

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2 AbstractPurpose To explore and compare the opinions of physicians, pharmacists and potential users on the readability of a package insert of an over-the-counter medicine.Methods Exploratory study based on the administration of a semi-open questionnaire. This instrument was developed according to the readability guideline of the European Medicine Agency (EMA) and used to evaluate participants' accessibility to, and comprehensibility of, the package insert for diclofenac 12.5 mg tablets. Sixty-three participants were recruited from the Lisbon region and enrolled in three groups: 21 physicians (Dg), 22 pharmacists (Pg) and 20 potential consumers (PCg).Results Almost all (85%) of the PCg participants were educated above the 9 th grade, although the majority of them (95%) referred at least one package insert interpretation issue, mainly related to the comprehension of technical terms. Amongst other differences between groups, the Pg participants obtained a significantly less score regarding the opinion on the layout of the titles. Furthermore, the Pg and Dg participants proposed technical enhancements, such as the use of a table to explain the posology, precautions in case of renal failure, or the recommendation to take the tablets with meals.Conclusions Differences in the way of using the diclofenac tablets are expected, considering the comprehension dissimilarities between health professionals and potential consumers. The package insert of diclofenac 12.5 mg could be enhanced. Regarding the readability assessment of this package insert, the method proposed in the EMA guideline might not be as effective as expected. Future research is advisable.

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Section: Questionnaire Part B: B) Participants' Suggestions To Improvmentioning

confidence: 99%

Exploring the perspectives of potential consumers and healthcare professionals on the readability of a package insert: a case study of an over-the-counter medicine

Pires

Cavaco

2014

Eur J Clin Pharmacol

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“…The chronic diseases researched included Chronic pulmonary disease (COPD) [46,47] , asthma [48,49] , hypertension [50,51] , rheumatoid arthritis [42,43,52,53] , diabetes [40,54,[55][56][57][58] , heart failure [59][60][61] and chronic back pain [44,62] . One study encompassed several chronic diseases: diabetes, congestive heart failure and hypertension [41] .…”

Section: General Description Of Studiesmentioning

confidence: 99%

“…In addition, they were largely unaware of side-effects [43,[48][49][50]61] . They also needed to understand more about the complications of their disease [40,54] .…”

Section: The Counseling Needs Of Adults With Chronic Illnessmentioning

confidence: 99%

“…Chronically ill adults needed counseling in handling their emotions, such as anxiety [46,49,54,58,60,68] , distrust [44,46,48,61] , loneliness [46,52,53,60] , insecurity [52,60,70] and depression [44,46,49,52,58,59,68] . Anxieties for those with diabetes included the fear of hypoglycemia [54] , while those with chronic obstructive pulmonary disease were plagued by the fear that they would die of breathlessness or suffocation [46] .…”

Section: The Counseling Needs Of Adults With Chronic Illnessmentioning

confidence: 99%

“…Other chronically ill adults feared death [46,60] . Feelings of distrust related to the fact that some adults with chronic illness felt they were not told everything about their disease by the nursing staff [44,46,48,61] . For chronically ill adults, hope was powerful and they did not want to lose it [52,59] .…”

Section: The Counseling Needs Of Adults With Chronic Illnessmentioning

confidence: 99%

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Counseling chronically ill adults in the healthcare setting: An integrative literature review

Kaakinen¹,

Leena²,

Kääriäinen³

et al. 2012

JNEP

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Background: Chronic diseases among the adult population have increased rapidly worldwide. Chronically ill adults use health services more frequently; they are hospitalized more often and for a longer time than the average. Although counseling is an essential part of the care of chronically ill adults, there is no clear conception of counseling elements in healthcare settings. The aim of this integrative review is to describe the key elements of counseling of adults with chronic diseases. Methods:This integrative literature review describes elements of the counseling of chronically ill adults. The study was conducted by means of a systematic search of CINAHL (1981 to April 2010), Medline (1973 to March 2010 and Medic (1978 to April 2010) databases. Three reviewers selected the studies and two reviewers independently assessed the quality of studies. 31 studies were included in the data extraction and narrative synthesis. Results:The review identifies the following typical elements in the counseling of adults with chronic disease: the counseling needs of chronically ill adults; the implementation of counseling; and the impact of counseling. The counseling needs of chronically ill adults included 1) gaining an understanding of the disease and treatment in relation to everyday life, 2) handling of emotions, 3) social support. The implementation of counseling concerned 1) need-based and goal-oriented counseling, 2) the content of counseling, 3) the nature of interaction and atmosphere of counseling, 4) counseling time, 5) counseling methods and materials, and 6) challenges of implementation. The impact of counseling included increased 1) compliance with medication, 2) ability to cope with feelings, 3) understanding of the disease, and 4) quality of life. Conclusions:This study found that effective counseling should be based on the individual needs of chronically ill adults and it should include more knowledge about social services and provide support in handling emotions. The study also revealed it is important to plan counseling and to set goals in conjunction with chronically ill adults. The results of this review are useful for the development of counseling of chronically ill adults in a variety of healthcare settings.

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Written information about medicines for consumers

Knapp

Raynor

Nicolson

et al. 2005

Cochrane Database of Systematic Reviews

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We are the experts: people with asthma talk about their medicine information needs

Cited by 113 publications

References 25 publications

Exploring the perspectives of potential consumers and healthcare professionals on the readability of a package insert: a case study of an over-the-counter medicine

Exploring the perspectives of potential consumers and healthcare professionals on the readability of a package insert: a case study of an over-the-counter medicine

Counseling chronically ill adults in the healthcare setting: An integrative literature review

Written information about medicines for consumers

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