hcq volume 20, issue 4, P6-9 2018 DOI: 10.12927/hcq.2018.25431 View full text
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Evelyn Pyper, David Henry, Erika Yates, Graham Mecredy, Sujitha Ratnasingham, Brian Slegers, Jennifer Walker

Abstract: Indigenous data governance principles assert that Indigenous communities have a right to data that identifies their people or communities, and a right to determine the use of that data in ways that support Indigenous health and self-determination. Indigenous-driven use of the databases held at the Institute for Clinical Evaluative Sciences (ICES) has resulted in ongoing partnerships between ICES and diverse Indigenous organizations and communities. To respond to this emerging and complex landscape, ICES has es…

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