Valuing the Invaluable: 2023 Update

Reinhard, Susan C.; Caldera, Selena; Houser, Ari; Choula, Rita

doi:10.26419/ppi.00082.006

Cited by 28 publications

(20 citation statements)

References 0 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…These shifts are based on the implicit assumption that family caregivers—the majority of whom are women—will provide this increasingly complex care at home without additional support . Family caregivers are estimated to provide approximately 80% of direct home-based and community-based care services, unpaid contributions valued at $600 billion US dollars annually . Yet family caregivers are largely socially and politically invisible, and their very real and necessary labor lies outside the market economy …”

Section: Do Current Health Care Reforms Institutionalize the Marginal...mentioning

confidence: 99%

“…Every day millions of Americans provide unpaid care for a family member or friend . The COVID-19 pandemic created a crisis of care, with millions of people now more reliant on unpaid caregiving and 40% of caregivers increasing the number of hours of care they provide . The burden of unpaid care needs continues to disproportionately fall on women, with devastating effects on health, well-being, and labor force participation.…”

mentioning

confidence: 99%

See 1 more Smart Citation

Unpaid Family Caregiving—The Next Frontier of Gender Equity in a Postpandemic Future

Stall

Shah

Bhushan³

2023

JAMA Health Forum

View full text Add to dashboard Cite

show abstract

Section: Do Current Health Care Reforms Institutionalize the Marginal...mentioning

confidence: 99%

mentioning

confidence: 99%

Unpaid Family Caregiving—The Next Frontier of Gender Equity in a Postpandemic Future

Stall

Shah

Bhushan³

2023

JAMA Health Forum

View full text Add to dashboard Cite

show abstract

“…However, parallel to the assessment of the stroke survivor, providers should also assess the family caregivers for their commitment and capacity to provide necessary care, especially for the transition home. 46,47…”

Section: Cross-setting Issues In Stroke Care Transitionsmentioning

confidence: 99%

“…50 Several recent national recommendations have identified the importance of comprehensively assessing and addressing caregiver needs especially during the transition from inpatient care to home. 47,51 The PATH-s instrument is an example of a tool that was specifically developed to assess biopsychosocial and ecological factors related to the stroke family caregiver’s readiness to assume caregiving responsibilities postdischarge. The 25-item PATH-s is a standardized, validated tool based on the Improving Stroke Caregiver Readiness Model 46 and is a self-administered comprehensive assessment for stroke family caregivers before discharge from an IRF.…”

Section: Cross-setting Issues In Stroke Care Transitionsmentioning

confidence: 99%

Nursing’s Role in Successful Stroke Care Transitions Across the Continuum: From Acute Care Into the Community

Camicia

Lutz

Summers

et al. 2021

Stroke

View full text Add to dashboard Cite

Facilitating successful care transitions across settings is a key nursing competency. Although we have achieved improvements in acute stroke care, similar advances in stroke care transitions in the postacute and return to community phases have lagged far behind. In the current delivery system, care transitions are often ineffective and inefficient resulting in unmet needs and high rates of unnecessary complications and avoidable hospital readmissions. Nurses must use evidence-based approaches to prepare stroke survivors and their family caregivers for postdischarge self-management, rehabilitation, and recovery. The purpose of this article is to provide evidence on the important nursing roles in stroke care and transition management across the care continuum, discuss cross-setting issues in stroke care, and provide recommendations to leverage nursing’s impact in optimizing outcomes for stroke survivors and their family unit across the continuum. To optimize nursing’s influence in facilitating safe, effective, and efficient care transitions for stroke survivors and their family caregivers across the continuum we have the following recommendations (1) establish a system of coordinated and seamless comprehensive stroke care across the continuum and into the community; (2) implement a stroke nurse liaison role that provides consultant case management for the episode of care across all settings/services for improved consistency, communication and follow-up care; (3) implement a validated caregiver assessment tool to systematically assess gaps in caregiver preparedness and develop a tailored caregiver/family care plan that can be implemented to improve caregiver preparedness; (4) use evidence-based teaching and communication methods to optimize stroke survivor/caregiver learning; and (5) use technology to advance stroke nursing care. Nurses must leverage their substantial influence over the health care delivery system to achieve these improvements in stroke care delivery to improve the health and lives of stroke survivors and their families.

show abstract

“…About 8.3 million people in the US used long-term care services in 2016 (Sengupta et al, 2018). Medicaid financed the largest portion of paid longterm care with $158 billion in 2015 (National Center for Health Statistics (U.S.), 2019), and many unpaid family caregivers also provide a significant amount of daily care, valued at $470 billion in 2017 (Reinhard et al, 2019). Separate from the impact on future long-term care needs, increasing rates of disability would have a profound impact on broader aspects of health and wellbeing of older adults and their families.…”

Section: Introductionmentioning

confidence: 99%

Differential Trends in Disability Among Rich and Poor Adults in the United States and England From 2002 to 2016

Choi

Schoeni

Steptoe

et al. 2022

The Journals of Gerontology: Series B

View full text Add to dashboard Cite

Objective Disability in the US has not improved in recent decades. Comparing temporal trends in disability prevalence across different income groups, both within and between the US and England, would inform public policy aimed at reducing disparities in disability. Methods Using the Health and Retirement Study (HRS) and the English Longitudinal Study of Ageing (ELSA), we estimated annual percent change from 2002 to 2016 in disability among community dwelling adults (197,021 person-years of observations). Disability was defined based on self-report of limitations with five instrumental activities of daily living (IADLs) and six activities of daily living (ADLs). We examined the trends by age and income quintile and adjusted for individual-level sociodemographic status and survey design. Results The adjusted annual percent change (AAPC) in disability prevalence declined significantly in both countries for ages 75 and older during 2002--2016. For ages 55-64 and 65-74, disability prevalence was unchanged in the US but declined in England. Both countries experienced a widening gap in disability between low- and high-income adults among the younger age groups. For example, for those ages 55-64 in each country, there was no significant improvement in disability for the low-income group but a significant improvement for the high-income group (AAPC=-3.60 95% CI [-6.57,-0.63] for the US; AAPC=-6.06 95% CI [-8.77,-3.35] for England). Discussion Improvements in disability were more widespread in England than in the US between 2002 and 2016. In both countries, the disparity in disability between low- and high-income adults widened for middle-aged adults. Policies targeted at preventing disability among low-income adults should be a priority in both countries.

show abstract

Valuing the Invaluable: 2023 Update

Cited by 28 publications

References 0 publications

Unpaid Family Caregiving—The Next Frontier of Gender Equity in a Postpandemic Future

Unpaid Family Caregiving—The Next Frontier of Gender Equity in a Postpandemic Future

Nursing’s Role in Successful Stroke Care Transitions Across the Continuum: From Acute Care Into the Community

Differential Trends in Disability Among Rich and Poor Adults in the United States and England From 2002 to 2016

Contact Info

Product

Resources

About