Validity and reliability of Turkish Caregiver Burden Scale among family caregivers of haemodialysis patients

Akıncı, Ayşe Çil; Pınar, Rukiye

doi:10.1111/j.1365-2702.2012.04235.x

Cited by 21 publications

(23 citation statements)

References 27 publications

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“…This subjectivity has widely been studied in the informal caregiving literature in the form of subjective burden , the subjective weight of being a caregiver ( Chiao et al, 2015 ). Studies have consistently shown a positive relationship between subjective burden and burnout among informal caregivers (e.g., Truzzi et al, 2008 ; Cill Akinci and Pinar, 2014 ). In the professional literature, similar findings exist with related variables: the accumulation of subjective stressors is a better predictor of professional burnout than the quantity or type of objective stressors themselves.…”

Section: Discussionmentioning

confidence: 99%

Does Informal Caregiving Lead to Parental Burnout? Comparing Parents Having (or Not) Children With Mental and Physical Issues

Gérain

Zech

2018

Front. Psychol.

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Introduction: Parenting a child with special needs (CSN) may be an important challenge. Previous research has highlighted an increased risk of parental burnout among parents caring for their CSN. Yet, these studies only focused on children with specific issues and did not consider the wide variety of CSN. There is thus a need to take a more global approach to assessing the impact of caring for a CSN on parental burnout. In addition, the impact on parental burnout of personality and parenting (dis)agreement needs to be measured to have a better understanding of parent-caregivers’ (PCgs) burnout.Method: An online survey was completed by a large sample of parents from which a subsample of PCgs was identified.Results: T-tests highlighted significantly more parental burnout among parents of CSN. However, further analyses showed that parents with only one child with one special need did not experience significantly more burnout than parents with typical children. The significant difference lay in the presence of comorbidity or the presence of multiple CSN in the family. Hierarchical regressions showed an important impact of Neuroticism for every burnout facet, along with co-parenting (dis)agreement. Subjective consequences of having to care for a CSN were also related to the burnout facets of both emotional exhaustion and emotional distancing.Discussion: The presence of comorbidity and of multiple CSN in the family were related to more PCg burnout, emphasizing the need to consider these situations in further research. The role of neuroticism in PCg burnout confirms previous research both in parental and professional contexts. Parenting (dis)agreement also highlights the importance of dyadic support among parents. Finally, the importance of subjective aspects suggests that parental perception of their situation remains a central element in understanding the consequences of caregiving.

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Section: Discussionmentioning

confidence: 99%

Does Informal Caregiving Lead to Parental Burnout? Comparing Parents Having (or Not) Children With Mental and Physical Issues

Gérain

Zech

2018

Front. Psychol.

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“…Earlier studies observed that mental health, vitality of the patient, type of relationship, pain[14] social aspect, pain, vitality, hours per week,[13] living with patient,[21] and mental and physical component[23] in caregivers of HD undergoing patients; mental component of caregiver and patients[13] in caregivers of PD undergoing patients; and male gender, marital status, low educational level, spouse or parent as caregivers and adverse effects on patient second transplant in caregivers of RT patients[32] were found to be the significant factors associated with caregiver burden.…”

Section: Discussionmentioning

confidence: 99%

“…[131435] Physical component summary score of QOL was found to be contributing 55.8%, 48.3%, and 43.3% for the burden score in caregivers of HD and PD undergoing and RT patients and indicated that it is a major component for causing burden among caregivers of patients undergoing all the three RRT. Earlier studies showed physical component in pooled dialysis caregivers;[19] mental component[14] or mixed physical and mental component in caregivers of HD; and mental component in caregivers of PD[1323] contribute largely to the burden score. It is interesting to note that coping mechanisms responsible for burden score were found to be different for caregivers of patients undergoing each modality of RRT (seeking social support and accepting responsibility in HD; self-controlling in PD; and escape avoidance in RT).…”

Section: Discussionmentioning

confidence: 99%

“…[13] It is not known whether the same aforementioned observations can be made in Indian populations which needs to be tested. It has been observed that burden score,[23] coping mechanisms,[24] and QOL[25] vary with culture. Therefore, there is a need to evaluate the burden, coping strategies, and QOL among caregivers of HD and PD undergoing and RT patients in culturally adapted instruments.…”

Section: Introductionmentioning

confidence: 99%

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Burden, coping mechanisms, and quality of life among caregivers of hemodialysis and peritoneal dialysis undergoing and renal transplant patients

Nagarathnam

Sivakumar

Latheef

2019

Indian J Psychiatry

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Context: Investigations on burden, coping, and quality of life (QOL) in caregivers of hemodialysis (HD) and peritoneal dialysis (PD) undergoing and renal transplant (RT) patients may lead to the well-being of caregivers, and these studies are sparse and nil in Indian context. Aim: This study aims to comparatively evaluate the burden, coping mechanisms, and QOL among caregivers of HD and PD undergoing and RT patients. Setting and Design: Tertiary care hospital, cross-sectional and descriptive study. Subjects and Methods: Burden, coping mechanisms, and QOL in caregivers of HD and PD undergoing and RT patients were investigated using Zarit burden interview, revised ways of coping and short-form 36 in 30 each caregivers of HD and PD undergoing and RT patients. Results: Moderate to severe burden, mild to moderate burden, and no burden were observed in the majority of caregivers of HD and PD undergoing and RT patients. Significantly higher mean burden score in caregivers of HD undergoing than RT patients ( P < 0.01); accepting responsibility in caregivers of RT than PD undergoing patients; social functioning in caregivers of HD than PD undergoing patients; and general health in caregivers of RT than HD undergoing patients, was observed. Lower physical component was common in each group, whereas accepting responsibility in HD, self-controlling in PD, and age and escape avoidance in RT were found to be the specific predictors of the burden score. Conclusions: Caregivers of HD and PD undergoing and RT patients have different levels of burden, use different mechanisms to cope, and showed different predictors of burden score.

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“…Recent developments in medicine and rapid changes in individuals' living conditions have led to changes in people's health and disease patterns, resulting in a decrease in acute diseases. Conversely, chronic diseases are becoming factors threatening people's health through irreversible pathological changes and constant unusual conditions . One of the medical treatments for chronic kidney disease (CKD) is hemodialysis (HD), which is a safe and effective way to help patients by not only prolonging their lives, but also maintaining their health in a relatively good condition.…”

Section: Introductionmentioning

confidence: 99%

Attitudes toward stress and coping among primary caregivers of patients undergoing hemodialysis: A Q‐methodology study

Yeun

Bang

Kim

et al. 2016

Hemodialysis International

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Introduction Hemodialysis (HD) causes many life changes, not only for patients undergoing it but also for their families by allowing them to rely on this lifesaving equipment unless they receive a kidney transplant. The stress of the primary caregivers, who spends the most time in the family taking care of the patient undergoing HD, is quite high. This study was to identify attitudes about stress and coping among primary caregivers of HD patients. Methods Q-methodology was undertaken because it integrates quantitative and qualitative research methods. A convenience sample of 33 primary caregivers of HD patients participated. Forty selected Q-samples were obtained from each participant and were classified into a forced normal distribution using a nine-point grid. Data was analyzed using a pc-QUANL program. Findings Three discrete factors emerged as follows: Factor I (they reduced their stress by participating in religious activities; religious sublimation), Factor II (they always worried about the caregiving situations and about the patients' conditions; nervousness), and Factor III (they thought it better to accept their stressful situations; leading handler). Three factors accounted for 44.5% of all the variance, including Factor I (26.0%), Factor II (10.1%), and Factor III (8.4%). The eigenvalues were 8.58, 3.34, and 2.79, respectively. Discussion The subjectivities of the three factors that were identified can be applied during the planning stages of effective interventions for stress and coping. Healthcare workers in clinical practices should consider assesses primary caregivers' attitudes about stress and coping and approaches their situation to cope with it and to adapt to lifestyle changes.

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Validity and reliability of Turkish Caregiver Burden Scale among family caregivers of haemodialysis patients

Abstract: The burden experienced by people who provide care for patients with chronic diseases can be evaluated with the Caregiver Burden Scale. Additionally, the Caregiver Burden Scale can be used in the evaluation of the effectiveness of attempts to decrease caregiver burden.

Cited by 21 publications

References 27 publications

Does Informal Caregiving Lead to Parental Burnout? Comparing Parents Having (or Not) Children With Mental and Physical Issues

Does Informal Caregiving Lead to Parental Burnout? Comparing Parents Having (or Not) Children With Mental and Physical Issues

Burden, coping mechanisms, and quality of life among caregivers of hemodialysis and peritoneal dialysis undergoing and renal transplant patients

Attitudes toward stress and coping among primary caregivers of patients undergoing hemodialysis: A Q‐methodology study

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