Validation of a model of family caregiver communication types and related caregiver outcomes

Wittenberg, Elaine; Kravits, Kate; Goldsmith, Joy; Ferrell, Betty; Fujinami, Rebecca

doi:10.1017/s1478951516000109

Cited by 15 publications

(17 citation statements)

References 24 publications

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“…However, lone caregivers are not comfortable with provider recommendations, suggesting that they may find information on their own similar to the partner and manager. Meanwhile, carrier caregivers depend on providers among all types yet feel the least prepared for caregiving . While prior research shows that caregivers prefer to receive information from health care professionals as a first source, our findings indicate that this likely most applicable to manager and carrier caregivers.…”

Section: Discussioncontrasting

confidence: 52%

“…Meanwhile, carrier caregivers depend on providers among all types yet feel the least prepared for caregiving. 29 While prior research shows that caregivers prefer to receive information from health care professionals as a first source, 30 our findings indicate that this likely most applicable to manager and carrier caregivers. When the family system is considered an available resource, caregivers report having more psychological resources and perceive less caregiver burden.…”

Section: Discussioncontrasting

confidence: 50%

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Variation in health literacy among family caregiver communication types

2019

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Objective Previously, four caregiver types have been identified as a result of communication patterns between patient and caregiver, revealing unique caregiver information needs and preferences. The purpose of this study was to explore variation in health literacy among the four family caregiver communication types: manager, partner, carrier, and lone caregivers. Methods The sample consisted of 115 cancer caregivers. Participants completed the Family Caregiver Communication Tool and the Health Literacy of Caregivers Scale‐Cancer. Results A significant difference in health literacy domains was found between caregiver types for cancer‐related communication with the care recipient (P = .038) and understanding of the health care system (P = .003). Of the health literacy domains, mean scores were highest on understanding the health care system for both lone and carrier caregivers. Manager and partner caregivers were highest on the social support domain. The self‐care domain was lowest for the carrier, lone, and manager caregivers. Conclusions There was a variation across health literacy domains among caregiver communication types, further validating the Family Caregiver Communication Typology. Findings showed a need for educational programs for cancer caregivers to strengthen their health literacy skills. As cancer caregivers have a prominent role in the delivery and quality of cancer care, it is pivotal for health care centers to provide caregiver communication training and support.

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Section: Discussioncontrasting

confidence: 52%

Section: Discussioncontrasting

confidence: 50%

Variation in health literacy among family caregiver communication types

2019

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“…In our prior work, Partner and Lone caregivers reported the lowest psychological distress, which may be a result of quality patient–caregiver communication. 35 Of note, the Lone caregiver was the only caregiver type to report difficulty with health care providers.…”

Section: Discussionmentioning

confidence: 99%

Understanding Family Caregiver Communication to Provide Family-Centered Cancer Care

Wittenberg¹,

Buller²,

Ferrell³

et al. 2017

Seminars in Oncology Nursing

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Objectives To describe a family caregiver communication typology and demonstrate identifiable communication challenges among four caregiver types: Manager, Carrier, Partner, and Lone. Data Sources Case studies based on interviews with oncology family caregivers. Conclusion Each caregiver type demonstrates unique communication challenges that can be identified. Recognition of a specific caregiver type will help nurses to adapt their own communication to provide tailored support. Implications for Nursing Practice Family-centered cancer care requires attention to the communication challenges faced by family caregivers. Understanding the challenges among four family caregiver communication types will enable nurses to better address caregiver burden and family conflict.

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“…Conformity includes congruence in family member attitudes, values, beliefs, and roles. High and low dimensions of conversation and conformity produce 4 different caregiver communication types: manager, partner, lone, and carrier caregivers . Figure provides an overview of the typology.…”

Section: Introductionmentioning

confidence: 99%

“…Family caregivers cared for a stage II, III, or IV cancer patient and completed the FCCT, the Cultural Justification of Caregiving Scale (CJCS), and 2 subscales (open communication and adaptability) from the Family Climate Scale (FCS). Item generation and content and face validity of FCCT items and preliminary testing are described elsewhere . The CJCS assesses caregivers' cultural reasons and expectations for providing care .…”

Section: Introductionmentioning

confidence: 99%