Understanding pediatric tuberculosis: Perspectives and experiences of the parents in a city of India

Parmar, Piyushkumar C; Modi, Anjali; Godara, Naresh R

doi:10.5455/ijmsph.2018.1232920122017

Cited by 5 publications

(11 citation statements)

References 5 publications

(7 reference statements)

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“…Participants confessed that many people still believe that TB patients need total isolation; TB disease cannot be cured and will end up with death. TB stigma were reported in various studies exploring challenges among TB patients [10,12,13,25].…”

Section: Discussionmentioning

confidence: 99%

“…The sample size was estimated at 12 participants using the maximum variation sampling technique to cover participants from a wide socio-demographic background differences and the variation of participants' experience according to the age of the children with TB disease. Based on the previous study, the range of sample size was between 11 to 35 participants [17,25]. Theoretically, a phenomenology study design may achieve saturation within less than ten interviews [26,27].…”

Section: Setting and Participantsmentioning

confidence: 99%

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Exploring challenges faced by parents of children with tuberculosis to achieve treatment success

Awaluddin

Ismail

Yasin

et al. 2020

JCHS

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Introduction: Parents play an essential role in the success of their children’s tuberculosis (TB) treatment. They faced many challenges from the initial children’s health status changes until completing the TB treatment. The challenges were also described as perceived barriers, according to the Health Belief Model (HBM). This study aims to explore parents’ experiences on the challenges in achieving a successful TB treatment for their child in two districts of Selangor, Malaysia. Methods: The research was carried out using the phenomenology study design. In-depth interviews were conducted among purposely sample primary caregivers of children with TB disease who have completed TB treatment or still under treatment. MyTB version 2.1 data were sought from TB Unit, Selangor Health State Department for Klang and Petaling districts. The participants were selected based on the registration year of 2017 to 2019. The collected data was considered as achieving its saturation level if no new themes arise from the latest interviews session. The R-based Qualitative Data Analysis (RQDA) package version 0.2-8 was used for thematic data analysis. Results: The total number of participants in this study was fifteen mothers of children with TB disease. There were six main themes identified from this study, which were health symptoms challenges, TB investigation challenges, personal challenges, healthcare facilities challenges, administration medication challenges, and community challenges. Conclusions: Understanding the challenges faced by parents of children with TB disease is vital for improving the TB services and providing the required psychosocial support to the children’s family.

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Section: Discussionmentioning

confidence: 99%

Section: Setting and Participantsmentioning

confidence: 99%

Exploring challenges faced by parents of children with tuberculosis to achieve treatment success

Awaluddin

Ismail

Yasin

et al. 2020

JCHS

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“…HCWs performed an essential role in giving the correct information, a calm but reassuring explanation on TB disease, its complication, and plan of treatment. Various studies observed that a mutual relationship between caregiver and HCWs increased the treatment adherence of their patients (21,30,37). This study also found a similar relationship between caregiver and HCWs in terms of correct information, positive advice, and effective communication.…”

Section: Discussionsupporting

confidence: 76%

“…Children can regain their previous healthy status even with a short duration of TB medication; thus, it is important to ensure the completion of total period of TB treatment by continuous DOT and clinic follow-up. Parents of children in this study who have completed TB treatment confessed that they strictly adhered to the HCW's advice because of fear of restarting the drug regimen and fear of TB complications such as death (21,30).…”

Section: Discussionmentioning

confidence: 99%

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“…Child-TB medicines were free of charge within the government services but unlike the adult-TB medicines they were not supposed to be as good as those privately purchased. Moreover, the thought of numerous visits to the government treatment centre with or without the child for the picking up of the medicines was a strong deterrant (Parmar et al 2018). In consequence, most bal-tibi cases, in contrast to most adult-TB cases, were not only diagnosed within the private sector but also treated within the same.…”

Section: Summary and Concluding Remarksmentioning

confidence: 99%

Experiences of Tuberculosis in a Tarai Village, Nepal

Engelbrektsson¹,

Subedi

2019

Dhaulagiri

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In focus is the experience of being a Tuberculosis (TB) patient in the mid-west Tarai of rural Nepal. The information derives from a longitudinal qualitative study between 2005 to 2017 in one and the same community. The findings show few changes in the experience of being a TB patient. The availability of anti-TB medicine free of cost within the government health services was greatly appreciated. The cause of TB, ways and means of transmissions, and the need for preventive measures, however, were not well understood. In the case of Child-TB, the expectation of numerous visits to the government treatment centre for the picking up of medicines was a strong deterrant. In consequence, most child-TB cases were diagnosed and treated within the private sector. The distribution system of the medicines, particularly within the government system, clearly added to the burden of being a TB patient and much would have been gained had the arrangement been more patient-friendly, a difference which most likely had also resulted in more children being treated within the public services rather than within the money-geared private sector. Various misunderstandings about the cause/s of the disease need to be addressed. And, much would be gained was the central directive of “patient support”, truly implemented and was a true “two-way communication” to take place.

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Understanding pediatric tuberculosis: Perspectives and experiences of the parents in a city of India

Cited by 5 publications

References 5 publications

Exploring challenges faced by parents of children with tuberculosis to achieve treatment success

Exploring challenges faced by parents of children with tuberculosis to achieve treatment success

Table_1.docx

Experiences of Tuberculosis in a Tarai Village, Nepal

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