Translation, cultural adaptation, and validation of the Brazilian Portuguese version of the End-of-Life Professional Caregiver Survey

Abstract

Objectives The aim of this study was to translate, culturally adapt, and psychometrically evaluate the Brazilian version of the “End-of-Life Professional Caregiver Survey” (BR-EPCS). Method This is an observational cross-sectional study. The sample was composed of 285 Brazilian healthcare professionals who work or worked in the palliative care area. A minimum number of 280 participants were established, following the recommendation of 10 subjects for each instrument item. The European Organisation for Research and Treatment of Cancer — Quality of Life Group Translation Procedure protocol was used for the translation and the cultural adaptation. For the precise/reliable evaluation of factors measured by the BR-EPCS, Cronbach's alpha (α) and composite reliability coefficients were used. The factorial analyses were made by means of the exploratory structural equation modeling methods and confirmatory factor analysis. We have conducted a multiple linear regression analysis to evaluate the sociodemographic variables' capabilities in the result prediction measured by BR-EPCS factors. Results The factorial analysis showed the relevance of two factors: Factor 1 — “Given care effectiveness” (18 items; Cronbach's α = 0.94; Composite Reliability = 0.95) and Factor 2 — “Mourning and ethical and cultural values” (10 items; Cronbach's α = 0.89; Composite Reliability = 0.88). Multiple linear regression analyses revealed that the working time, sex, palliative care training, and its own advance directives are predictors of the constructs assessed by the BR-EPCS. Significance of results The BR-EPCS is a reliable, valid, and culturally appropriate tool to identify the educational needs of healthcare professionals who work with palliative care. This instrument can be used for educational and research reasons.

Perceived end-of-life educational needs by clinical trials nurses at a comprehensive cancer center

“…While multiple studies showed a relationship between a health care provider having a personal advanced directive and higher EPCS scores, 19 , 31 , 32 and higher scores with greater years of experience and education, 19 , 23 , 31 , 33 , 34 , 35 this analysis did not. This may be due to the relatively small, less clinically experienced sample in this study and was consistent with EPCS results in a Brazilian sample of palliative care nurses 34 and among medical/surgical and intensive care unit nurses in a North Carolina hospital. 36…”

Validation of the Simplified Chinese Palliative Care Nursing Self-competence Scale: Two cross-sectional studies

“…The results found that the factor structure evaluated by the PCNSC-SC expressed itself in three factors, which differed from the original model, which presented eight factors (17). A simple 3-factor model emerged in uenced by local cultural codes and wording differences (30). Given that the overall structure of the eight-dimensional model in CFA was consistent with the original scale, the researchers nally decided to retain the good tting eightdimensional model.…”

Cultural adaptation and psychometric evaluation of the Chinese version of the nurse-specific end-of-life professional caregiver survey: a cross-sectional study

“…The End-of-Life Professional Caregiver Survey (EPCSsee Additional file 1) is a self-reporting scale to measure multidisciplinary professionals' palliative and hospice care educational needs [9][10][11][12]. The EPCS was developed in the United States [9] and covers all 8 domains as suggested by American National Clinical Practice Guidelines for Palliative care [13,14] and the modules of the End-of-Life Nursing Education Consortium (ELNEC) curricula [15,16].…”

“…The EPCS was developed in the United States [9] and covers all 8 domains as suggested by American National Clinical Practice Guidelines for Palliative care [13,14] and the modules of the End-of-Life Nursing Education Consortium (ELNEC) curricula [15,16]. This EPCS has been widely used in United States [10,11] and has been tested in other cultural contexts [12,17,18]. The EPCS has good psychometric properties, with the Cronbach's alpha of whole scale and each dimension reported by Lazenby and colleagues as 0.96, 0.95, 0.89, and 0.87 [9].…”