Translation and cultural adaptation of the CLEFT-Q into Arabic, Dutch, Hindi, Swedish, and Turkish

Tsangaris, Elena; Riff, Karen W. Y. Wong; Dreise, Marieke M.; Stiernman, Mia; Kaur, Manraj; Piplani, Bhoomika; Aydın, Ahmet; Kharashgah, Ghassan Naser Moh'd; Stotland, Mitchell A.; Thabane, Lehana; Thoma, Achilleas; Klassen, Anne F.

doi:10.1007/s00238-018-1445-9

Cited by 13 publications

(19 citation statements)

References 22 publications

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“…This issue is not easily tackled since a change of the questionnaire, changing or taking out sensitive questions, would change the score of the questionnaire and counteract the aim of international comparison with the same instrument. Other translation processes of PROinstruments for patients with a cleft have encountered similar issues [39]. The patient testing in the linguistic translation process of CHASQ, however, did not reveal any problems with or upset feelings about of any the items in the instrument.…”

Section: Discussionmentioning

confidence: 81%

Translation and pilot study of the Cleft Hearing Appearance and Speech Questionnaire (CHASQ)

et al. 2019

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Background There has been a lack of a standardized protocol for collection of patient reported outcomes (PRO) and detection of and indication for psychological treatment in cleft care. The objectives of this paper was to translate Cleft Hearing Appearance and Speech Questionnaire (CHASQ) into eight European languages, to investigate whether levels of PRO in patients with cleft lip and/or cleft palate (CL/P) were comparable across countries and to investigate clinician experience of the instrument. Methods The PRO measure-CHASQ-was translated into Bulgarian, Estonian, Greek, Latvian, Macedonian, Romanian, Serbian and Swedish and implemented with patients in the respective countries. A focus group discussion was conducted to investigate health care professional experience on the use of CHASQ in their clinics. Data was analysed in accordance with the principles of thematic analysis. Results Analysis showed statistically significant differences between countries and groups of diagnosis in CHASQ scores. CHASQ helped clinicians gain patient information and informed on treatment decisions, broadened the clinicians' role as caregivers and was perceived as short and easy to use. Limited time and resources in clinics were limitations in implementing the instrument. Conclusions Translation and utilization of CHASQ facilitated international comparison and cooperation. Linguistically, valid replicas of CHASQ are now available in many European languages. Results from this study show that CHASQ may be used for collection of PRO on patient satisfaction and to spark conversation between clinicians, patients and families. Level of evidence: Not rateable.

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Section: Discussionmentioning

confidence: 81%

Translation and pilot study of the Cleft Hearing Appearance and Speech Questionnaire (CHASQ)

et al. 2019

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“…The field-test version of the CLEFT-Q consisted of 154 items with 13 scales was translated to Colombian, Chilean, Spanish, Arabic, Dutch, Hindi, Swedish, and Turkish [22,26]. After forward translation to Farsi, 7.54% of the items, were found difficult to translate.…”

Section: Discussionmentioning

confidence: 99%

Farsi version of the CLEFT-Q: translation, cultural adaptation process and reliability

et al. 2021

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Background The purpose of this study was the translation and cultural adaptation of the CLEFT-Q to Farsi and evaluating the reliability of it. Methods The English version of the CLEFT-Q was translated to Farsi following the guidelines set forth by the International Society for Pharmacoeconomics and Outcomes Research (ISPOR). To calculate the reliability, 50 participants filled out the Farsi version of the questionnaire twice at 2-week intervals. Results The difficulties during the translation and cultural adaptation process were as follows: 7.56% of items from the independent forward translations, 62.18% of items from the comparison between two forward translations, and 21% of items from the comparison between post-back translation and the original version. The internal consistency and stability of the Farsi version of the CLEFT-Q were 0.979 and 0.997, which both were categorized as excellent. Conclusion The Farsi version of the CLEFT-Q is a valid and reliable tool currently available for Farsi-speaking families around the world.

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“…The CLEFT-Q has been translated into multiple languages and scores very high in cross-cultural validity (Tsangaris et al, 2018). Non-English instruments were outside the design of this study, and thus not included in the assessment.…”

Section: Cleft-qmentioning

confidence: 99%

Quality of Life After Orthognathic Surgery in Patients with Cleft: An Overview of Available Patient-Reported Outcome Measures

Ploumen

Willemse

Jonkman

et al. 2021

The Cleft Palate Craniofacial Journal

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Measuring the impact of orthognathic surgery on quality of life is of significant importance in patients with cleft deformities. Standardized tools such as patient-reported outcome measures (PROMs) are needed to fully comprehend patients’ needs and perceptions. Therefore, the availability of reliable, valid, and comprehensive questionnaires for patients is essential. The aim of this study is to identify PROMs measuring the impact of orthognathic surgery on quality of life in patients with cleft deformities and to evaluate the identified PROMs. A systematic search of the literature was performed according to the preferred reporting items for systematic reviews and meta-analysis guidelines. All validated PROMs, regarding the impact of orthognathic surgery on quality of life in patients with cleft deformities, were identified and assessed according to the quality criteria proposed for measurement properties of health status questionnaires. An electronic search yielded 577 articles. After a full-text review of 87 articles, 4 articles met the inclusion criteria, comprising 58 PROMs. Of these 58 PROMs, 1 PROM (the CLEFT-Q) has been validated to measure the impact of orthognathic surgery on patients with a facial cleft. Evaluation of methodological quality of the included articles and assessment of the measurement properties of the CLEFT-Q show that the CLEFT-Q scores relatively good for all available measurement properties, making it suitable for immediate use. The CLEFT-Q was found to be the only valid instrument so far to measure the impact of orthognathic surgery on the quality of life in patients with cleft deformities.

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Translation and cultural adaptation of the CLEFT-Q into Arabic, Dutch, Hindi, Swedish, and Turkish

Cited by 13 publications

References 22 publications

Translation and pilot study of the Cleft Hearing Appearance and Speech Questionnaire (CHASQ)

Translation and pilot study of the Cleft Hearing Appearance and Speech Questionnaire (CHASQ)

Farsi version of the CLEFT-Q: translation, cultural adaptation process and reliability

Quality of Life After Orthognathic Surgery in Patients with Cleft: An Overview of Available Patient-Reported Outcome Measures

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