2018
DOI: 10.1590/1413-81232018232.21832017
|View full text |Cite
|
Sign up to set email alerts
|

Trajetórias Terapêuticas Familiares: doenças raras hereditárias como sofrimento de longa duração

Help me understand this report

Search citation statements

Order By: Relevance

Paper Sections

Select...
2

Citation Types

0
10
0
24

Year Published

2019
2019
2024
2024

Publication Types

Select...
5
1

Relationship

1
5

Authors

Journals

citations
Cited by 29 publications
(34 citation statements)
references
References 26 publications
0
10
0
24
Order By: Relevance
“…In the scenario of rare genetic diseases, this care is not only directed to a specific individual but the family as a whole in their projects of existence and reproduction 4 . In the face of the diagnosis of a rare hereditary disease, several people will be included in the investigation, such as siblings, cousins, nephews, for example.…”
Section: Care: Lack Of Caregiver Support and Overloadmentioning
confidence: 99%
See 4 more Smart Citations
“…In the scenario of rare genetic diseases, this care is not only directed to a specific individual but the family as a whole in their projects of existence and reproduction 4 . In the face of the diagnosis of a rare hereditary disease, several people will be included in the investigation, such as siblings, cousins, nephews, for example.…”
Section: Care: Lack Of Caregiver Support and Overloadmentioning
confidence: 99%
“…Also, the duration and consequences of a rare disease usually require extensive care involving other family members, especially mothers. Unlike the diagnosis of other diseases, the diagnosis of rare hereditary disease traverses several bodies, either through the genetic component that has been (or can be) transmitted or inherited, and which cannot be controlled or altered by the actions of the subject, or the debilitating physical conditions that will require the care of others until the end of the patient's life 4 .…”
Section: Care: Lack Of Caregiver Support and Overloadmentioning
confidence: 99%
See 3 more Smart Citations