To be present, share and nurture: a lifeworld phenomenological study of relatives’ participation in the suicidal person’s recovery

Abstract

In today’s health care, participation is acknowledged as important. However, there is limited research on how relatives of patients at risk of suicide experience their opportunities to participate in care during periods when their close ones are subject to inpatient care. The aim of this study was to describe the phenomenon of participation, as experienced by relatives of persons who are subject to inpatient psychiatric care due to a risk of suicide. The study was conducted through a reflective lifeworld research (RLR) approach, based on phenomenological philosophy. Eight relatives of patients receiving care from professionals in a psychiatric specialist health care context in Sweden participated in phenomenon-oriented interviews. Data were analysed to elucidate a meaning structure of the phenomenon. The findings show that the phenomenon of participation was more associated with patients’ recovery processes than with the caring process, and means “being actively involved in a process in which the person regains the desire to live”. The meaning of participation is further described by its meaning constituents: struggling for being able to be present for the person at risk of suicide, being able to share everyday life, and nurturing sources for vitality. These insights into the meaning of participation highlight the importance of allowing supportive relatives to be a part of the patient’s life, while the person is cared for in an inpatient hospital setting. Thus, participation enables relatives to be acknowledged as resourceful human beings in the patient’s recovery process, and thereby facilitates a sense of being able to manage and share life itself together with the person. This means that mental health nurses need to recognize individual variations of relatives’ participation processes, and take on the responsibility of acknowledging relatives’ lifeworlds.

‘I can only be properly myself when I’m with her’: Early adolescent intra-ethnic immigrant group friendships as a safe space for identity exploration, negotiation and validation

“…The RLA, which has principally been used to explore different aspects of adult health and well-being in clinical settings (e.g. Sellin et al, 2017), adopts a phenomenological position of openness and sensitivity to the complexities of lived experiences This study both extends its use by looking at early adolescence in non-clinical settings and expands it through the incorporation of expressive arts activities.…”

Zdravstvena nega pacienta, ki je samomorilno ogrožen

“…Medicinske sestre delujejo na različnih področjih, kjer prepoznavajo, posredujejo in vrednotijo stanje Tabela 2: Razporeditev kod po kategorijah Lynch, et al, 2008;Chan, et al, 2009;Meerwijk, et al, 2010;Bregar, 2012;Sakinofsky, 2014;Bolster, et al, 2015;Hagen, et al, 2017;Seixas Santos, et al, 2017;Jansson & Hällgren Graneheim, 2018 Cutcliffe & Stevenson, 2008;Lynch, et al, 2008;Lakeman, 2010;Bregar, 2012;Sun, et al, 2013;Sakinofsky, 2014;Sellin, et al, 2017;Seixas Santos, et al, 2017;Hagen, et al, 2017Hagen, et al, , 2018 Palmieri, et al, 2008;Chan, et al, 2009;Meerwijk, et al, 2010;Bolster, et al, 2015;Lygnugaryte-Griksiene, et al, 2017;Jansson & Hagen, et al, 2018;Hällgren Graneheim, 2018;Wang, et al, 2018 Ukrepi za izboljšanje obravnave in preprečevanje samomora Izobraževanje in usposabljanje na področju samomorilno ogroženih pacientov Povečanje samozavesti medicinskih sester Razvoj preventivnih praks Zagotavljanje podpore medicinskim sestram pri obravnavi samomorilno ogroženih pacientov Izboljšanje načina spopadanja medicinskih sester s samomori pacientov Preprečevanje izgorevanja medicinskih sester Palmieri, et al, 2008;Chan, et al, 2009;Bolster, et al, 2015;Griksiene, et al, 2017;Seixas Santos, et al, 2017;Lygnugaryte-Jansson & Hällgren Graneheim, 2018;…”

“…Pomembno vlogo pri obravnavi samomorilno ogroženega pacienta imajo tudi njegovi svojci (Sun, et al, 2013;Sellin, et al, 2017;Seixas Santos, et al, 2017). Medicinske sestre imajo večjo možnost, da preprečijo samomor, če vključijo informacije svojcev (Seixas Santos, et al, 2017).…”

Experiences of a Recovery-Oriented Caring Approach to Suicidal Behavior: A Single-Case Study

“…As relatives are supposed to play an important role in this process, the second study was dedicated to exploring their lived experiences of participation. From the relatives’ perspectives, participation was about being actively involved in a process in which the person regains the desire to live (Sellin, Asp, Kumlin, Wallsten, & Wiklund Gustin, 2017b). The results from these studies (Sellin et al, 2017a, 2017b) were the point of departure when designing a Delphi-study, to which researchers in suicide prevention, registered nurses, and representatives from a Swedish organization working with suicide prevention and support to relatives, were invited to give their perspectives and reflect on what characterizes a recovery-oriented caring approach (ROCA) (Sellin, Kumlin, Wallsten, & Wiklund Gustin, 2018).…”

“…From the relatives’ perspectives, participation was about being actively involved in a process in which the person regains the desire to live (Sellin, Asp, Kumlin, Wallsten, & Wiklund Gustin, 2017b). The results from these studies (Sellin et al, 2017a, 2017b) were the point of departure when designing a Delphi-study, to which researchers in suicide prevention, registered nurses, and representatives from a Swedish organization working with suicide prevention and support to relatives, were invited to give their perspectives and reflect on what characterizes a recovery-oriented caring approach (ROCA) (Sellin, Kumlin, Wallsten, & Wiklund Gustin, 2018). The Delphi-panel concluded that such a caring approach needs to support patients in giving voice to their perspectives in dialogue with mental health nurses in what can be understood as a “communicative togetherness.” This means that the communication between the patient and the nurse is recognized as essential and needs to take place and evolve in relation to the patient’s lifeworld.…”