The safety challenges of therapeutic self-care and informal caregiving in home care: A qualitative descriptive study

Sun, Winnie; Ashtarieh, Bahar; Zou, Ping

doi:10.1016/j.gerinurse.2020.07.013

Cited by 7 publications

(6 citation statements)

References 16 publications

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“…Participants were hesitant to relay their knowledge gaps and health care needs unless prompted by a healthcare provider. Older adults, similar to our sample, have reported di culty in decision-making during complex medical situations and express concerns about cognitive capabilities (16). Our ndings suggest that pre-determined and consistent support in self-management is a key component that could minimize anxiety about self-care.…”

Section: Discussionsupporting

confidence: 59%

A Qualitative Study of Home Care Client and Caregiver Experiences With a Complex Cardio-respiratory Management Model

Schumacher

Dash

Mowbray

et al. 2021

Preprint

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BackgroundHome care clients are typically older and have some degree of medical, physical, cognitive or social conditions that require formal or informal support to promote healthy aging in the community. Home care clients contribute a significant proportion of health service use, including emergency department visits. The DIVERT-CARE trial introduced a cardio-respiratory management model to improve patient motivation, symptoms and rates of unwarranted health service use. Our objective was to explore the perceptions and experiences of individuals who participated in the DIVERT-CARE self-management support and education intervention.MethodsA qualitative study was nested within a pragmatic randomized control trial and conducted following a 15-week multicomponent cardio-respiratory intervention. A phenomenological descriptive design was employed using thematic analysis. Post-intervention, clients and their caregivers were invited to participate in a semi-structured telephone interview. Interview questions were designed to elicit the experience with the intervention components.ResultsA total of 29 interviews were completed from June 2018 to March 2020 from participants in Ontario, Newfoundland, and British Columbia. Five themes were identified; self-care trajectory and responsibility, learning and behaviour change, pre-emptive connection to care providers, connection to information and the health system, and connection through therapeutic relationships.ConclusionsHome care clients experience unique challenges in managing chronic disease. Home-based interventions fostered a therapeutic relationship of connectedness while equipping clients with necessary knowledge and skills. These results inform recommendations for community nursing, and home-based self-management supports for older community-residing individuals.

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Section: Discussionsupporting

confidence: 59%

A Qualitative Study of Home Care Client and Caregiver Experiences With a Complex Cardio-respiratory Management Model

Schumacher

Dash

Mowbray

et al. 2021

Preprint

View full text Add to dashboard Cite

show abstract

“…Additionally, participants struggled with discerning severity of symptoms that required medical attention and hesitated to relay gaps in knowledge and care needs unless prompted by a healthcare provider. Older adults, similar to our sample, have reported difficulty in decision-making during complex medical situations and express concerns about cognitive capabilities [ 32 ]. In a systematic review of barriers and facilitators of self-management, it is reported that expert self-managers become experts on their own through trial and error, most often during critical times, where behaviours are adapted to achieve a desirable result [ 33 ].…”

Section: Discussionmentioning

confidence: 99%

A qualitative study of home care client and caregiver experiences with a complex cardio-respiratory management model

et al. 2021

View full text Add to dashboard Cite

Background Home care clients are typically older and have some degree of medical, physical, cognitive or social conditions that require formal or informal support to promote healthy aging in the community. Home care clients contribute a significant proportion of health service use, including emergency department visits. The DIVERT-CARE trial introduced a cardio-respiratory management model to improve client motivation, symptoms and rates of unwarranted health service use. Our objective was to explore the perceptions and experiences of individuals who participated in the DIVERT-CARE self-management support and education intervention. Methods A qualitative study was nested within a pragmatic randomized control trial and conducted following a 15-week multi-component cardio-respiratory intervention. A phenomenological descriptive design was employed using thematic analysis. Post-intervention, clients and their caregivers were invited to participate in a semi-structured telephone interview. Interview questions were designed to elicit the experience with the intervention components. Results A total of 29 interviews were completed from June 2018 to March 2020 from participants in Ontario, Newfoundland, and British Columbia. Three themes were identified; self-care trajectory and burden of responsibility, learning and behaviour change, and feeling connected pre-emptively to care providers, the information and medical advice, and connection through the therapeutic relationship. Conclusions Home care clients experience unique challenges in managing cardio-respiratory related chronic disease. Home-based interventions fostered a therapeutic relationship of connectedness while equipping clients with necessary knowledge and skills. These results inform recommendations for community nursing, and home-based self-management supports for older community-residing individuals.

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“…2020). The terms "informal caregiver" and "family caregiver" refer to a relative or "family-like" individual who provides unpaid and ongoing assistance to the care recipient (Sun et al, 2021;Magid et al, 2021).…”

Section: Introductionmentioning

confidence: 99%

Spirituality and Social Support as Predictors of Resilience among Elderly Cancer Patients' Informal Caregivers in Punjab, Pakistan

Hussain¹,

Kazemi²

2021

J. manag. pract. humanit I am. sci

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In the context of informal caregiving studies, the use of resilience as a coping mechanism for mitigation of informal care burden is regarded as crucial. More than half of the caregivers of elderly cancer patients experience at least one suspected psychiatric symptom, including depression, anxiety, alcohol abuse/dependence, and post traumatic stress disorder. Besides this, various studies have supported the role of social support and spirituality as predictors of resilience in protecting and maintaining the physical and psychological health of informal caregivers. But, by analyzing previous literature, there is a dearth of empirical research in the Pakistani context which may examine spirituality and social support as predictors of resilience among informal caregivers of elderly cancer patients. To 􀅫ill this research gap, the current study aimed to analyze spirituality and social support as predictors of resilience among informal caregivers of elderly cancer patients. In this regard, the current study was conducted using a quantitative research design. By using a purposive sampling technique, the data was collected from 200 informal caregivers of elderly cancer patients from the following hospitals: In mol Cancer Hospital, Cancer Care Hospital Lahore, the Oncology ward of Mayo Hospital Lahore, and the Oncology ward of Jinnah Hospital Lahore. An interview schedule was used as a tool of data collection by adopting the following scales: Caregiver's Resilience Scale, Caregiver's Spirituality Scale, and MOS Social Support Scale. The study results were analysed using SPSS software, and the descriptive section of the results indicated that the larger proportion of informal caregivers were male, dependent upon their families, aged between 24 and 29, and had only a secondary level of education. Furthermore, when the inferential statistics of the study's correlation and regression analysis tests were used, the results revealed that caregiver spirituality and social support had a signi􀅫icant and positive effect on the care giver's resilience to caregiving burden.

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The safety challenges of therapeutic self-care and informal caregiving in home care: A qualitative descriptive study

Cited by 7 publications

References 16 publications

A Qualitative Study of Home Care Client and Caregiver Experiences With a Complex Cardio-respiratory Management Model

A Qualitative Study of Home Care Client and Caregiver Experiences With a Complex Cardio-respiratory Management Model

A qualitative study of home care client and caregiver experiences with a complex cardio-respiratory management model

Spirituality and Social Support as Predictors of Resilience among Elderly Cancer Patients' Informal Caregivers in Punjab, Pakistan

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