The Relationship Between Attitudes about Research and Health Literacy among African American and White (Non-Hispanic) Community Dwelling Older Adults

Shah, Anjali; Macauley, Christiana; Ni, Liang; Bay, Allison A; Hackney, Madeleine E.

doi:10.1007/s40615-020-00932-2

Cited by 9 publications

(7 citation statements)

References 35 publications

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“…Participants seemed to enjoy learning from the personal stories and example-based lessons in their educational modules in Theme 5. This finding is consistent with previous research that advises information presented to older adults contain personal meaning [ 22 , 23 ]. More research is needed to determine if a narrative format allows older adults to better understand traditionally difficult content.…”

Section: Discussionsupporting

confidence: 93%

“…Participants were interested in resources related to PD research, symptom management, diagnoses, and preventative measures. This finding aligns with previous research that suggests adult learners are driven by self-autonomy and emotional and physical limitations [ 23 ]. Lastly, participants requested more examples, personal stories, and testimonials, thus emphasizing our observation that they benefitted from, and enjoyed example-based learning.…”

Section: Discussionsupporting

confidence: 92%

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Qualitative Analysis of Attitudes, Knowledge, and Interest in Research of People with Parkinson’s Disease and Their Care Partners Receiving Accessible Research Education

Ramos,

Pothineni,

et al. 2023

Parkinson's Disease

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Background. People with Parkinson’s disease (PWP) and their care partners (CP) are underrepresented in research. Methods. As an eight-week research advocacy training program, TeleDREAMS was designed to increase understanding of, and participation in, clinical research by older adults through topics on the research process. Qualitative analysis was conducted to explore themes from 365 thirty-minute semistructured phone interviews with 32 PWP and 17 CP TeleDREAMS participants. Interviews gauged progress, motivation, and information retention after each weekly module. Results. Eight salient themes were identified from the interviews, including Understanding the Importance of Advocacy and Becoming Cognizant of Past Advocacy Experiences. Conclusions. While some findings aligned with weekly module topics, others, such as stated learning preferences and knowledge acquisition of older adults in an educational program, were unexpected. TeleDREAMS may increase interest in community engagement, research participation, and advocacy roles in marginalized and underrepresented participants.

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Section: Discussionsupporting

confidence: 93%

Section: Discussionsupporting

confidence: 92%

Qualitative Analysis of Attitudes, Knowledge, and Interest in Research of People with Parkinson’s Disease and Their Care Partners Receiving Accessible Research Education

Ramos,

Pothineni,

et al. 2023

Parkinson's Disease

Self Cite

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“…These data are consistent with previous studies displaying low DISCERN scores for YouTube content on thyroid‐related topics, such as thyroid cancer and hypothyroidism 16,17 . Additionally, patients with limited health information literacy, often those of low education level or ethnic minority groups, are at increased risk of the adverse effects of poor information quality appraisal, which include increased hospitalizations, morbidity, and mortality 30,31 . Our findings highlight a substantial need for physicians and healthcare groups to expand patient education beyond the point of consultation to the online landscape and increase the quality of content produced.…”

Section: Discussionsupporting

confidence: 90%

“…16,17 Additionally, patients with limited health information literacy, often those of low education level or ethnic minority groups, are at increased risk of the adverse effects of poor information quality appraisal, which include increased hospitalizations, morbidity, and mortality. 30,31 Our findings highlight a substantial need for physicians and healthcare groups to expand patient education beyond the point of consultation to the online landscape and increase the quality of content produced. While clinical training may not traditionally prepare physicians for this emerging source of patient information, it is increasingly significant due to the power and widespread use of social media and online media sources.…”

Section: Discussionmentioning

confidence: 83%

Evaluation of YouTube As A Source For Graves' Disease Information: Is High‐Quality Guideline‐Based Information Available?

Ayo‐Ajibola,

Davis,

Therriault

et al. 2024

OTO Open

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ObjectiveTo understand the quality of informational Graves' disease (GD) videos on YouTube for treatment decision‐making quality and inclusion of American Thyroid Association (ATA) treatment guidelines.Study DesignCross‐sectional cohort.SettingInformational YouTube videos with subject matter “Graves' Disease treatment.”MethodThe top 50 videos based on our query were assessed using the DISCERN instrument. This validated algorithm discretely rates treatment‐related information from excellent (≥4.5) to very poor (<1.9). Videos were also screened for ATA guideline inclusion. Descriptive statistics were used for cohort characterization. Univariate and multivariate linear regressions characterized factors associated with DISCERN scores. Significance was set at P < .05.ResultsThe videos featured 57,513.43 views (SD = 162,579.25), 1054.70 likes (SD = 2329.77), and 168.80 comments (SD = 292.97). Most were patient education (52%) or patient experience (24%). A minority (40%) were made by thyroid specialists (endocrinologists, endocrine surgeons, or otolaryngologists). Under half did not mention all 3 treatment modalities (44%), and 54% did not mention any ATA recommendations. Overall, videos displayed poor reliability (mean = 2.26, SD = 0.67), treatment information quality (mean = 2.29, SD = 0.75), and overall video quality (mean = 2.47, SD = 1.07). Physician videos were associated with lower likes, views, and comments (P < .001) but higher DISCERN reliability (P = .015) and overall score (P = .019). Longer videos (P = .015), patient accounts (P = .013), and patient experience (P = .002) were associated with lower scores.ConclusionThe most available GD treatment content on YouTube varies significantly in the quality of medical information. This may contribute to suboptimal disease understanding, especially for patients highly engaged with online health information sources.

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“…Similar views were identified in prior research from Tibet [ 139 ] and Jilin province [ 140 ] of China. Due to socio-economic status challenges, especially the lower educational attainment, ethnic minority elderly were at risk for poor health literacy [ 141 , 142 ].…”

Section: Discussionmentioning

confidence: 99%

Do Health Information Sources Influence Health Literacy among Older Adults: A Cross-Sectional Study in the Urban Areas of Western China

Liu

Zhou

et al. 2022

IJERPH

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Background: Previous studies have found that the dissemination pattern and delivery mechanism of information can provide crucial resources and empowerment for individuals to the promotion of health literacy. The present study investigates how health information sources are associated with health literacy among older adults in west China, and tries to explain the mechanisms underlying the link between health information sources and health literacy in the Chinese context. Methods: The cross-sectional study employed a representative sample of 812 urban citizens aged 60 and older in 2017 in Western China. Results: We found that health information sources including healthcare practitioners (B = 4.577, p < 0.001), neighbors (B = 2.545, p < 0.05), newspapers (B = 4.280, p < 0.001), and television (B = 4.638, p < 0.001) were positively associated with health literacy. Additionally, age (B = −1.781, p < 0.001) was negatively associated with health literacy, and the socio-economic status factors including minority (B = −10.005, p < 0.001), financial strain status of perceived very difficult (B = −10.537, p < 0.001), primary school (B = 11.461, p < 0.001), junior high school (B = 18.016, p < 0.001), polytechnic school or senior high school (B = 21.905, p < 0.001), college and above (B = 23.433, p < 0.001) were significantly linked to health literacy, and suffering from chronic diseases (B = 3.430, p < 0.01) was also positively related to health literacy. Conclusions: Health information sources including healthcare practitioners, neighbors, newspapers, and television have a strong influence on health literacy, which implies that the four main types of sources are the important patterns of health information dissemination in the reinforcement of health literacy. In addition, the present findings also indicate age, minority and disease differences in health literacy and confirm the influence of enabling factors including educational attainment and financial strain on health literacy. Based on these findings and their implications, specific evidence is presented for the reinforcement of health literacy in interpersonal and mass communication, and in the educational and financial settings in the Chinese context. The present results also suggest that the age-specific, minority-specific and disease-specific measures should be taken to promote health literacy among older adults.

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The Relationship Between Attitudes about Research and Health Literacy among African American and White (Non-Hispanic) Community Dwelling Older Adults

Cited by 9 publications

References 35 publications

Qualitative Analysis of Attitudes, Knowledge, and Interest in Research of People with Parkinson’s Disease and Their Care Partners Receiving Accessible Research Education

Qualitative Analysis of Attitudes, Knowledge, and Interest in Research of People with Parkinson’s Disease and Their Care Partners Receiving Accessible Research Education

Evaluation of YouTube As A Source For Graves' Disease Information: Is High‐Quality Guideline‐Based Information Available?

Do Health Information Sources Influence Health Literacy among Older Adults: A Cross-Sectional Study in the Urban Areas of Western China

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