The patients' perspective on fertility care: a systematic review

Dancet, Eline; Nelen, W.L.D.M.; Sermeus, Walter; Leeuw, L. De; Kremer, J.A.M.; D’Hooghe, Thomas

doi:10.1093/humupd/dmq004

Cited by 213 publications

(198 citation statements)

References 69 publications

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“…67,83 However, there is now a body of evidence that elucidates some of the psychological and social aspects of infertility for men. 3 While the research has been undertaken in diverse settings using varied designs, sampling and recruitment strategies, and data sources, there is considerable consistency among the findings.…”

Section: Discussionmentioning

confidence: 99%

“…A systematic review of research concerning patients' perspectives on fertility care 67 found that very few studies (3/51) had focused specifically on men's experiences. The main findings were not disaggregated to distinguish men's accounts, but it was argued that the relevant dimensions applied to all infertility treatment consumers and included the following parameters: access to services; respect for values, choices and needs; continuity and coordination of care; appropriate information and education; physical comfort; support to reduce anxiety; and involvement of partners.…”

Section: Male Experiences Of Infertility Treatmentmentioning

confidence: 99%

See 1 more Smart Citation

Psychological and social aspects of infertility in men: an overview of the evidence and implications for psychologically informed clinical care and future research

Fisher¹,

Hammarberg²

2011

Asian J Androl

192

162

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Research concerning the psychosocial aspects of infertility and infertility treatment focuses more often on women than men. The aim of this review was to synthesize the English-language evidence related to the psychological and social aspects of infertility in men and discuss the implications of these reports for clinical care and future research. A structured search identified 73 studies that reported data concerning the desire for fatherhood and the psychological and social aspects of diagnosis, assisted reproductive technology (ART) treatment and unsuccessful treatment among men with fertility difficulties. The studies are diverse in conceptualisation, design, setting and data collection, but the findings were reasonably consistent. These studies indicated that fertile and infertile childless men of reproductive age have desires to experience parenthood that are similar to those of their female counterparts; in addition, diagnosis and initiation of treatment are associated with elevated infertility-specific anxiety, and unsuccessful treatment can lead to a state of lasting sadness. However, rates of clinically significant mental health problems among this patient population are no higher than in the general population. Infertile men who are socially isolated, have an avoidant coping style and appraise stressful events as overwhelming, are more vulnerable to severe anxiety than men without these characteristics. Men prefer oral to written treatment information and prefer to receive emotional support from infertility clinicians rather than from mental health professionals, self-help support groups or friends. Nevertheless, structured, facilitated psycho-educational groups that are didactic but permit informal sharing of experiences might be beneficial. There are gaps in knowledge about factors governing seeking, persisting with and deciding to cease treatment; experiences of invasive procedures; parenting after assisted conception; adoption and infertility-related grief and shame among men. Few resource-constrained countries have any data concerning male experiences of infertility.

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Section: Discussionmentioning

confidence: 99%

Section: Male Experiences Of Infertility Treatmentmentioning

confidence: 99%

Psychological and social aspects of infertility in men: an overview of the evidence and implications for psychologically informed clinical care and future research

Fisher¹,

Hammarberg²

2011

Asian J Androl

192

162

View full text Add to dashboard Cite

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“…Participants also felt that communication with clinics was better than in the UK, often with direct and readily available access to the clinician leading their care. Many of these factors have been identified as key components of 'patient-centred fertility care' generally (Dancet et al, 2010;Dancet et al, 2011;Redshaw, Hockley, & Davidson, 2007;Schmidt et al, 2003). A systematic review of patients' perspectives of fertility care concluded that fertility patients 'want to be treated like human beings with a need for: medical skills, respect, coordination, accessibility, information, comfort, support, partner involvement and a good attitude of and relationship with fertility clinic staff' (Dancet et al, 2010, p. 467).…”

Section: It Was a Bit More Daunting There's The Language And Cyrillimentioning

confidence: 99%

“…Participants described crossborder treatment as often characterized by uncertainty. Studies of the infertility treatment experience generally highlight this as a process typified by doubt and anxiety (Dancet et al, 2010;Franklin, 1997;Thompson, 2005;Throsby, 2004). The uncertainty associated with cross-border treatment had a particular set of inflections due to its transnational dimension.…”

Section: It Was a Bit More Daunting There's The Language And Cyrillimentioning

confidence: 99%

Cross-border-assisted reproduction: a qualitative account of UK travellers’ experiences

et al. 2016

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Surveys on patients' experiences of cross-border fertility treatment have reported a range of positive and challenging features. However, the number of such studies is limited, and there is no detailed qualitative account of the experiences of UK patients who travel overseas for fertility treatment. The present study used a cross-sectional, qualitative design and in-depth interviews. Fifty-one participants (41 women and 10 men, representing 41 treatment 'cases') participated in semi-structured interviews. The experiences reported were broadly positive with a large proportion of participants (39 cases, 95%) citing a favourable overall experience with only two cases (5%) reporting a more negative experience. Thematic analysis revealed 6 major categories and 20 sub-categories, which described the positive and challenging aspects of cross-border fertility travel. The positive aspects were represented by the categories: 'access', 'control' and 'care and respect'. The more challenging aspects were categorized as 'logistics and coordination of care', 'uncertainty' and 'cultural dissonance'. The study confirms findings from others that despite some challenges, there is a relatively high level of patient satisfaction with cross-border treatment with participants able to extend the boundaries of their fertility-seeking trajectories and in some cases, regain a sense of control over their treatment.

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“…Patient-oriented care is a trend in health care established to prevent condescending relationships from medical personnel towards patients (Dancet et al 2010). The ultimate objective is to foster more informed and carefully made choices by patients.…”

mentioning

confidence: 99%

Patient-centred IVF

Martin¹

2017

MAT

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The patients' perspective on fertility care: a systematic review

Abstract: Fertility patients have 'human needs' besides their need for medical care. Evidence on PCRM is available but significant methodological limitations call for the development and validation of a European questionnaire.

Cited by 213 publications

References 69 publications

Psychological and social aspects of infertility in men: an overview of the evidence and implications for psychologically informed clinical care and future research

Psychological and social aspects of infertility in men: an overview of the evidence and implications for psychologically informed clinical care and future research

Cross-border-assisted reproduction: a qualitative account of UK travellers’ experiences

Patient-centred IVF

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