1992
DOI: 10.1016/0277-9536(92)90021-h
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The negotiation of death: Clinical decision making at the end of life

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Cited by 113 publications

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“…In this study, even the patients who had clear preferences for future resuscitation answered that they would rely on their family and physicians to make resuscitation decisions for them instead of preferring that their own prior decisions be followed were they to become incapable of making a choice. This finding corroborates the need for the 'process of negotiated decision making', 22 which allows for a critical sharing by patients, families and medical staff of the moral burden of decisions to forgo treatment, which is in sharp contrast to the ideal of pure patient choice. Families and health care providers therefore need to be incorporated into the negotiation process 23 by reflecting the notion of 'optional autonomy' favored by a majority of these patients or the broader view of 'mandatory autonomy' to include the option not to decide.…”
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confidence: 72%