The National Multiple Sclerosis Registry System of Iran (NMSRI): aspects and methodological dimensions

Consanguineous marriage among familial multiple sclerosis subjects: A national registry-based study

“…A team of 18 trained researchers conducted these follow-ups, ensuring precise quality checks over a four-month period from June 6th to October 8th, 2022. The questions covered various aspects of MS, including baseline characteristics, MS history in relatives, and parental consanguinity [ [22] , [23] , [24] ].…”

“…All cases are registered after being confirmed as MS patients according to the 2017 McDonald's criteria by neurologists [ 26 ]. The registry data are available through the District Health Information Software (DHIS2), and universal coverage and completeness of patient information are the most important features of the NMSRI [ 23 , 24 ]. Duplicate cases were systematically excluded based on the unique national identification code.…”