The lived experience of people with progressive advanced cancer

Esteves, Amélia; Roxo, José Reis dos Santos; Saraiva, Maria da Conceição Pereira

doi:10.12968/bjon.2015.24.sup10.s15

Cited by 6 publications

(6 citation statements)

References 5 publications

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“…Similar psychological distress was reported in a study done in Ethiopia among cervical cancer patients during follow-up care [21]. Hopelessness and lack of emotional support reported in the current study have also been reported by other studies done in different settings [14,29,31] where cancer was perceived as a death sentence for diagnosed patients. Public awareness programs are required to address such information gaps and rule out prevailing misconceptions concerning cervical cancer and other cancerous diseases in general [12].…”

Section: Discussionsupporting

confidence: 89%

The lived experiences and caring needs of women diagnosed with cervical cancer: A qualitative study in Dar es Salaam, Tanzania

Chona,

Msengi,

Gosse

et al. 2023

PLoS ONE

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Background Cervical cancer continues to be a major global public health concern affecting the lives of many women and resulting in financial burdens. In 2020, cervical cancer was the seventh most commonly diagnosed cancer among all cancers worldwide and Tanzania was ranked fourth among the countries with the highest incidence rates (59.1 new cases per 100,000 women) of cervical cancer. The lived experience and caring needs of patients and their families provide insights into the psychosocial aspects of healthcare among the affected population. However, there is inadequate information concerning the lived experiences of cervical cancer patients in Tanzania and Sub-Saharan Africa in general. This study aimed to explore the lived experiences and caring needs of cervical cancer patients at Ocean Road Cancer Institute (ORCI) in Dar es Salaam, Tanzania. Methods A qualitative descriptive study was carried out among cervical cancer patients at ORCI in Dar es Salaam, Tanzania. Using a purposeful sampling technique, 12 cervical cancer patients were interviewed with the principles of saturation guiding sample size determination. A semi-structured face-to-face interview guide was employed to collect the information. A conventional content analysis approach was used to analyze data after translation with the aid of NVivo 12.0 computer software. Results Five themes emerged after data analysis: knowledge and attitude about cervical cancer, sufferings from a disease process, socio-economic disruptions, psychological problems, and sexual and reproductive concerns. Conclusion The findings of this study provide insights into the life experiences and caring needs of cervical cancer patients and call for response from healthcare stakeholders to develop and implement comprehensive and culturally consonant approaches in providing care to the affected population. More qualitative studies are required to ascertain the lived experiences of advanced cervical cancer patients and those of long-term cervical cancer survivors.

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Section: Discussionsupporting

confidence: 89%

The lived experiences and caring needs of women diagnosed with cervical cancer: A qualitative study in Dar es Salaam, Tanzania

Chona,

Msengi,

Gosse

et al. 2023

PLoS ONE

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“…All selected studies were scrutinized and some were excluded at this stage because of not being retrievable online, being written up in a language other than English or German, taking the form of a meta-analysis or review, or because of there being a lack of clarity regarding the extent to which participants’ cancer was advanced and therefore could be considered terminal. One further study (Esteves, Roxo, & Saraiva, 2015) was excluded because the presentations of its findings was merged with a review of other studies’ findings, which made it difficult to extract themes specific to Esteves, Roxo, & Saraiva’s own data.…”

Section: Methodsmentioning

confidence: 99%

A meta-synthesis of studies of patients’ experience of living with terminal cancer.

Willig

Wirth

2018

Health Psychology

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The results from the present meta-synthesis suggest that the experience of living with the awareness of having terminal cancer is a multidimensional experience that patients actively negotiate as they search for ways in which they can rise to the psychological challenges associated with it. A better understanding of the parameters of this experience can help health care professionals provide appropriate support for this client group. (PsycINFO Database Record

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“…A study by Ellis et al (2015) found that patients suffered when being faced with their own mortality, but also, this suffering altered their view on life fundamentally and made them capable of discovering what was important for them in life. As to patients' emotional reactions during illness, Esteves et al (2015) found that patients transitioned into experiencing emotional instability, which involved emotions of fear, anger, anxiety, hopelessness and also on the contrary: acceptance, hope, a will to live and fight the disease. Furthermore, a study by Morgan et al (2017) found that patients experienced constant transitions related to their own bodily decline, which involved their bodies becoming unfamiliar, unpredictable and vulnerable.…”

Section: A C C E P T E Dmentioning

confidence: 99%

Transition experiences during courses of incurable cancer from the perspective of patients

Madsen

Uhrenfeldt

Birkelund

2019

European Journal of Oncology Nursing

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The present study explores patients' experiences of transitions during courses of incurable cancer. So far, qualitative studies have primarily contributed with insight on what it is like living with incurable cancer related to predefined areas in patients' lives. Studies rarely focus on transition experiences and none have explored patients' transition experiences throughout the course of illness. Focusing on transitions in palliative care is important as it facilitates possibilities for healthcare professionals to support patients when needed. Method: Ten patients living with incurable cancer were included from a specialised palliative care team and participated in individual semi-structured interviews conducted in participants' private homes. The study takes a phenomenological-hermeneutic approach and data analysis and interpretation were inspired by the French philosopher Paul Ricoeur. Results: Two main themes were identified: "Everyday life changes" and "Approaching end of life". In total, seven sub-themes were identified. Three related to the first main theme: "Normal life changes", "People changing attitude", "Changes hurting loved ones" and four related to the second main theme: "Approaching death", "Preparing for leaving", "Holding on to life" and "Connecting with places and belongings". Conclusion: Patients experienced multiple transitions within their everyday lives and in the process of approaching end of life. These transitions involved experiences of both suffering and well-being..

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The lived experience of people with progressive advanced cancer

Cited by 6 publications

References 5 publications

The lived experiences and caring needs of women diagnosed with cervical cancer: A qualitative study in Dar es Salaam, Tanzania

The lived experiences and caring needs of women diagnosed with cervical cancer: A qualitative study in Dar es Salaam, Tanzania

A meta-synthesis of studies of patients’ experience of living with terminal cancer.

Transition experiences during courses of incurable cancer from the perspective of patients

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