The impact of an integrated early palliative care telehealth intervention on the quality of life of heart failure patients: a randomized controlled feasibility study

Objectives This study evaluates a multi-centered complementary medicine (CM) student-led telehealth clinic during the COVID-19 pandemic. Likert and qualitative responses explore student and educator learning and teaching perceptions of the implementation of a successful telehealth clinic. Results 51 students and 17 educators completed the survey. Respondents agreed that support from educators (90%) and orientation (70%) assisted effective performance. Over 90% (93%) of all respondents supported telehealth in student-led clinics, whilst 87% encountered barriers such as technical and infrastructure issues. Respondents agreed that telehealth practice skills improved in case history taking (90%), treatment (90%) and building patient rapport (60%). Respondents (61%) disagreed that physical examination was effectively performed, and 100% of respondents agreed telehealth was a valuable learning experience. This study is the first to explore student and educator perceptions of telehealth in an Australian University multi-centered CM student-led clinic. To be successful in an educational environment, students and educators require digital literacy and adequate telehealth practice infrastructure. Whilst some in-person practice skills are transferable to telehealth, educators need to adapt curriculum to ensure counselling and physical examination skills are specifically taught for virtual consultations. Telehealth in clinical practice requires continued investigation and educational development.

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Cultural adaptation of the ENABLE (Educate, Nurture, Advise, Before Life Ends) as an early palliative care model among heart failure patients and caregivers in Iran: A qualitative study protocol

Mirshahi,

Khanipour-Kencha,

Bakitas

et al. 2024

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Introduction: ENABLE (Educate, Nurture, Advise, Before Life Ends) is a model of nurse-led, early palliative care that was originally developed for U.S. patients with advanced cancer and their family caregivers and then adapted for patients with heart failure. ENABLE coaching topics include problem-solving, communication, advance care planning, symptom management, and self-care. The purpose of this paper is to detail a qualitative study protocol to assess the cultural acceptability of ENABLE among heart failure patients and their family caregivers in Iran. Methods and analysis: This is a qualitative study employing a thematic analysis approach. In the first phase, the translation and validation of ENABLE model contents will be conducted using the standard forward-backward method and an expert panel. In the second phase, through the purposive sampling method and by using semi-structured interviews, approximately 45 participants including heart failure patients (n≈15), their family caregivers (n≈15), and healthcare professionals involved in their care (n≈15) will be invited to participate in one-on-one semi-structured interviews exploring three main areas: (1) the primary needs and challenges faced by individuals with heart failure and their family caregivers, (2) the extent of patients’ involvement in healthcare decision-making, and (3) participants’ preferences for content and delivery method of ENABLE. Interview audio recordings will be transcribed verbatim and data will be analyzed using Clarke and Braun thematic analysis method including 1) Familiarization with the data, 2) Generating initial codes, 3) Searching for themes, 4) Reviewing themes, 5) Defining and naming themes, and 6) Preparing the report/manuscript. Study rigor will be assessed based on Lincoln and Guba’s gold standards: credibility, dependability, confirmability, and transferability. Ethics and dissemination: Ethical approval has been granted by Institutional Review Board at Tehran University of Medical Sciences (IR.TUMS.FNM.REC.1401.133). We expect to disseminate study findings through journal articles, conference presentations, and public and social multimedia.

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The impact of an integrated early palliative care telehealth intervention on the quality of life of heart failure patients: a randomized controlled feasibility study

Cited by 3 publications

References 59 publications

Effectiveness of integrated palliative care telehealth intervention in patients with chronic heart failure: A systematic review and meta-analysis of randomized controlled trials

Effectiveness of integrated palliative care telehealth intervention in patients with chronic heart failure: A systematic review and meta-analysis of randomized controlled trials

A complementary medicine student-led telehealth clinic: evaluating learning & teaching perceptions

Cultural adaptation of the ENABLE (Educate, Nurture, Advise, Before Life Ends) as an early palliative care model among heart failure patients and caregivers in Iran: A qualitative study protocol

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