The impact of a child's chronic illness on school‐aged siblings

Menke, Edna M.

doi:10.1080/02739618709514759

Cited by 35 publications

(45 citation statements)

References 25 publications

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“…This contrasts with previous literature (Menke 1987), which has suggested that parents under-report their healthy children's concerns. Mothers' negativity in this study may have reflected their own anxieties about the healthy children's experience of the physical disorder.…”

Section: Discussioncontrasting

confidence: 99%

Well Sibling Psychological Adjustment to Chronic Physical Disorder in a Sibling: How Important is Maternal Awareness of Their Illness Attitudes and Perceptions?

Taylor

Fuggle

Charman³

2001

Child Psychology Psychiatry

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The psychological adjustment of healthy siblings was investigated in relation to their attitudes and perceptions about their brother's or sister's chronic physical disorder, to their mothers' awareness of these attitudes and perceptions, and to three other maternal factors (maternal distress, maternal social support, and amount of care demanded by the physical disorder). Sixty-two well siblings and mothers of children with a range of chronic physical disorders completed standardised questionnaires. The majority of siblings did not appear to have adjustment problems, although the sample had slightly increased rates of emotional symptoms compared to the general population. Mothers rated well siblings as having more negative attitudes and perceptions about the physical disorder than reported by siblings themselves. A multiple regression analysis indicated that better sibling adjustment was associated with higher maternal awareness of their attitudes and perceptions. These findings support Varni and Wallander's (1998) model that emphasises the role of relationship and attitude variables in child adjustment to chronic physical disorder. The implications of these findings for clinical practice are discussed.

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Section: Discussioncontrasting

confidence: 99%

Well Sibling Psychological Adjustment to Chronic Physical Disorder in a Sibling: How Important is Maternal Awareness of Their Illness Attitudes and Perceptions?

Taylor

Fuggle

Charman³

2001

Child Psychology Psychiatry

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“…Eiser, 1993;Varni & Wallander, 1988;Wallander & Varni, 1992). In relation to siblings, potential stressors may include: disruption to family routine and relationships; separation from parents as they meet the needs of the child who is ill; lack of information regarding their brother/sister's illness; and exposure to the suffering of their brother/sister who is ill (Drotar & Crawford, 1985;Menke, 1987). A review of the results of 26 sibling studies indicated that they are at an elevated risk for the development of mental health problems, including depression and anxiety (Williams, 1997), mediated by factors such as developmental age, coping strategies and family and social support (e.g.…”

Section: Camping Programmes and The Therapeutic Recreation Processmentioning

confidence: 99%

Children’s Perspectives of Therapeutic Recreation: Data from the ‘Barretstown Studies’

Kiernan

MacLachlan

2002

J Health Psychol

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Camps offering therapeutic recreation-based programmes seek to provide a positive experience for children with life-threatening illnesses, and their siblings. While such programmes are undoubtedly motivated by the best of intentions, there are very little data available on children's own experiences in them. This article addresses this by investigating children's experiences in The Barretstown Gang Camp in Ireland. A questionnaire was completed by 449 children from 15 European countries. Feedback was factor analysed to construct an empirical model of how liking for activities in the programme clustered. Eight distinct components were identified.. Results indicated that children's level of liking for some components and whether they felt their friends would like to come to camp were influenced by their age, gender, nationality, level of understanding of explanations in camp and patient/sibling status. Children's descriptions of their camp experience emphasized themes pertaining to fun, activities, scenic surroundings, staff and multiculturalism.

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“…30 Furthermore, research suggests that siblings of cancer patients experience poor psychological and emotional adjustment and insufficient support relative to their survivorsibling and parents. 31,32 Despite the apparent unmet needs of siblings, literature evaluating the impact of pediatric cancer on child-siblings is limited and its impact on adolescentsiblings' adjustment is even more scarce, particularly during the post-treatment period.…”

mentioning

confidence: 99%

Returning to School After Adolescent Cancer: A Qualitative Examination of Australian Survivors' and Their Families' Perspectives

McLoone

Wakefield

Butow

et al. 2011

Journal of Adolescent and Young Adult Oncology

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Additional support is needed to help parents navigate the education system and to advocate effectively for their child's academic needs beyond the immediate re-entry period. There is strong potential for school counselors to increase the level of support they provide adolescents and their parents during the school re-entry period. The impact of this period on siblings' education is under-studied and warrants further research.

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The impact of a child's chronic illness on school‐aged siblings

Cited by 35 publications

References 25 publications

Well Sibling Psychological Adjustment to Chronic Physical Disorder in a Sibling: How Important is Maternal Awareness of Their Illness Attitudes and Perceptions?

Well Sibling Psychological Adjustment to Chronic Physical Disorder in a Sibling: How Important is Maternal Awareness of Their Illness Attitudes and Perceptions?

Children’s Perspectives of Therapeutic Recreation: Data from the ‘Barretstown Studies’

Returning to School After Adolescent Cancer: A Qualitative Examination of Australian Survivors' and Their Families' Perspectives

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