The Experience of Dying With Dementia: A Retrospective Study

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“…This is consistent with caregiver interviews in a prior DLB study [5]. Additionally, increased confusion, urinary incontinence, pain, low mood, loss of appetite, and dyspnea are also described as end-of-life symptoms in dementia generally [29][30][31].…”

Development of a caregiver-reported measure to support systematic assessment of people with dementia in long-term care: The Integrated Palliative care Outcome Scale for Dementia

“…Our study demonstrates the relevance of palliative care symptoms in this population. 2,40,41 Furthermore, our results indicate the importance and relevance of functional and behavioural concerns when they impact on residents’ distress. The inclusion of these concerns in our measure supports comprehensive assessment of symptoms distressing to resident.…”

Needs of People with Severe Dementia at the End-of-Life: A Systematic Review

“…The physical problems and symptom burden of people with severe dementia are thus shown to be very similar to other terminal diseases such as cancer [29]. Conceivably, this could indicate that other study results and experience from the care of cancer patients might be transferred to people with severe dementia.…”