The EULAR Sjogren's syndrome patient reported index as an independent determinant of health-related quality of life in primary Sjogren's syndrome patients: in comparison with non-Sjogren's sicca patients

Cho, Hyon Joung; Yoo, Jong Jin; Yun, Chan Young; Kang, Eun Ha; Lee, Hyo‐Jung; Hyon, Joon Young; Song, Yeong Wook; Lee, Yun Jong

doi:10.1093/rheumatology/ket270

Cited by 52 publications

(49 citation statements)

References 37 publications

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“… Values are the mean ± SD unless indicated otherwise. Systemic activity levels were defined according to the European League Against Rheumatism (EULAR) Sjögren's Syndrome Disease Activity Index (ESSDAI), as follows: low (<5), moderate , and high (≥14). The P values are for the comparison of the 3 groups (analysis of variance or Pearson chi‐square test as appropriate).…”

Section: Resultsmentioning

confidence: 99%

“…The chief treatment goal in chronic and usually non‐life‐threatening conditions such as primary SS is to improve the patient's perceived health‐related quality of life (HRQOL). HRQOL is profoundly impaired in primary SS . Therefore, the principal factors governing HRQOL impairment must be identified so that they can be specifically targeted by therapeutic interventions, to improve the patient's everyday experience.…”

Section: Introductionmentioning

confidence: 99%

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Severe Health‐Related Quality of Life Impairment in Active Primary Sjögren's Syndrome and Patient‐Reported Outcomes: Data From a Large Therapeutic Trial

Cornec

Devauchelle‐Pensec

Mariette

et al. 2017

Arthritis Care & Research

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Section: Resultsmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Severe Health‐Related Quality of Life Impairment in Active Primary Sjögren's Syndrome and Patient‐Reported Outcomes: Data From a Large Therapeutic Trial

Cornec

Devauchelle‐Pensec

Mariette

et al. 2017

Arthritis Care & Research

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show abstract

“…Ocular surface disease was assessed using the Ocular Surface Disease Index (OSDI). Fatigue was assessed using Fatigue Severity Scale (FSS), and sicca symptoms were assessed according to the dryness domain of the European League Against Rheumatism (EULAR) Sjögren's Syndrome Patient‐Reported Index (ESSPRI); disease activity was assessed using EULAR Sjögren's Syndrome Disease Activity Index (ESSDAI) …”

Section: Methodsmentioning

confidence: 99%

Prevalence, correlates, and impact of sleep disturbance in Chinese patients with primary Sjögren’s syndrome

Cui

et al. 2019

Int J of Rheum Dis

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Aim Sleep disturbances are common in primary Sjögren's syndrome (pSS) patients and may lead to disease aggravation and decreased health‐related quality of life (HRQoL). There are currently no known reported studies related to the prevalence, correlates, and impact of sleep disturbance in pSS patients from China. Therefore, this study aims to assess the sleep quality in Chinese pSS patients and evaluate its relationship with the disease activity, quality of life and mood disorders. Methods A self‐report survey was administered to 221 pSS patients and 198 healthy individuals using the Pittsburgh Sleep Quality Index (PSQI) for sleep quality. Disease activity and damage were evaluated with the European League Against Rheumatism Sjögren's syndrome disease activity index (ESSDAI). Independent samples t tests, Chi‐square analysis, logistic regression were used to analyze these data. Results Our results found that the prevalence of poor sleep (PSQI ≥ 6) was 57.5% and the mean global score of PSQI was 6.57 (SD 3.19) in patients, which were significantly higher than the controls (32.3% and 4.93 [SD 2.86], respectively). When trying to fall asleep, patients with pSS had some sleep disturbances, reduced sleep efficiency, increased number of awakenings than controls. There were significant correlations among dryness, ocular surface disease, HRQoL, pain, disease activity, anxiety/depression and sleep quality in pSS patients. Meanwhile, logistic regression models identified depression and Short Form‐36 mental composite score as predictors of poor sleep quality. Conclusions Sleep disturbances are commonly reported in pSS patients and sleep quality is lower in pSS patients than in healthy controls. The data suggested the need for holistic assessment and management of pSS patients.

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“…Since the last few decades, original studies15–17 and reviews18,19 have reported HRQoL in patients with SS. However, the relative degree of impairment in each domain differed among samples, and it was not obvious which domain of HRQoL was most negatively affected.…”

Section: Introductionmentioning

confidence: 99%

Sjögren’s syndrome is associated with negatively variable impacts on domains of health-related quality of life: evidence from Short Form 36 questionnaire and a meta-analysis

Zhang¹,

Wang²,

Chen³

et al. 2017

PPA

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PurposeThe purpose of this article was to systematically review the literature to identify the impact of primary Sjögren’s syndrome (pSS) on specific health-related quality of life (HRQoL) domains.MethodsA meta-analysis was performed, and the related articles were searched in Medline, Embase, Cochrane Library, China National Knowledge Infrastructure, China Biology Medicine, and Web of Science databases and in reference lists of articles and systematic reviews. Score of the Short Form 36 (SF-36) questionnaire was used as the outcome measurement, and mean differences (MD) with 95% confidence intervals (CIs) were calculated.ResultsSeven studies were included, comprising 521 patients with pSS and 9,916 healthy controls. The SF-36 questionnaire score of each domain (physical function, role physical [RP] function, emotional role function, vitality, mental health, social function, body pain, general health, physical component scale, mental component scale) was lower in patients with pSS than in healthy controls, especially the score in the dimension of RP function.ConclusionThis meta-analysis showed that patients had lower pSS score in each dimension of the SF-36, mostly in the RP function. This demonstrated that targeted interventions should be carried out to improve the HRQoL of pSS patients.

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The EULAR Sjogren's syndrome patient reported index as an independent determinant of health-related quality of life in primary Sjogren's syndrome patients: in comparison with non-Sjogren's sicca patients

Cited by 52 publications

References 37 publications

Severe Health‐Related Quality of Life Impairment in Active Primary Sjögren's Syndrome and Patient‐Reported Outcomes: Data From a Large Therapeutic Trial

Severe Health‐Related Quality of Life Impairment in Active Primary Sjögren's Syndrome and Patient‐Reported Outcomes: Data From a Large Therapeutic Trial

Prevalence, correlates, and impact of sleep disturbance in Chinese patients with primary Sjögren’s syndrome

Sjögren’s syndrome is associated with negatively variable impacts on domains of health-related quality of life: evidence from Short Form 36 questionnaire and a meta-analysis

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The EULAR Sjogren's syndrome patient reported index as an independent determinant of health-related quality of life in primary Sjogren's syndrome patients: in comparison with non-Sjogren's sicca patients

Cited by 52 publications

References 37 publications

Severe Health‐Related Quality of Life Impairment in Active Primary Sjögren's Syndrome and Patient‐Reported Outcomes: Data From a Large Therapeutic Trial

Severe Health‐Related Quality of Life Impairment in Active Primary Sjögren's Syndrome and Patient‐Reported Outcomes: Data From a Large Therapeutic Trial

Prevalence, correlates, and impact of sleep disturbance in Chinese patients with primary Sjögren’s syndrome

Sj&ouml;gren&rsquo;s syndrome is associated with negatively variable impacts on domains of health-related quality of life: evidence from Short Form 36 questionnaire and a meta-analysis

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Sjögren’s syndrome is associated with negatively variable impacts on domains of health-related quality of life: evidence from Short Form 36 questionnaire and a meta-analysis