The environmental barriers of children with Muscular Dystrophies and its effect on mother's low back pain

Düger, Tülin; Yılmaz, Öznur; Akı, Esra; Kayıhan, Hülya; Karaduman, Ayşe

doi:10.1080/09638280310001599952

Cited by 21 publications

(24 citation statements)

References 17 publications

Supporting

Mentioning

Contrasting

Unclassified

Order By: Relevance

“…The adaptation resolved most safety issues, especially those related to back problems in parents, which is in line with results from previous studies (Duger et al, 2003). However, some safety issues remain for some children and could be prevented through careful observation of activities as a means of assessment prior to the home adaptation process.…”

Section: Discussionsupporting

confidence: 84%

“…Most parents subsequently noted that their child's self-esteem was raised as a result of increased independence. The relationship between the physical environment and the child's independence and well-being has been documented before (Duger et al, 2003;Ostenjo et al, 2003;Skar, 2003), and our results add to the evidence that adapted environments are essential to the development of children with disabilities.…”

Section: Discussionsupporting

confidence: 78%

“…Most of the studies reviewed related physical features of the home to specific outcomes in parents (Duger et al, 2003;Eker & O'Brien, 2001;Tuzun, 2004). No study has examined home adaptation as a process in which parents are involved and affected.…”

Section: Introductionmentioning

confidence: 96%

“…They work fewer hours per week and retire later in life (Seltzer, Greenberg, Floyd, Pettee, & Hong, 2001). Back pain, which is common among these parents, is related to the child's level of independence in activities of daily living and accessibility within the home environment (Duger, Yilmaz, Aki, Kayihan, & Karaduman, 2003).…”

Section: Introductionmentioning

confidence: 99%

See 3 more Smart Citations

Parental Experience of Home Adaptation for Children with Motor Disabilities

Roy

Rousseau

Allard

et al. 2008

Physical & Occupational Therapy In Pediatrics

View full text Add to dashboard Cite

Home adaptation is essential in increasing independence of children with disabilities and reducing the burden of care for parents. Physical and occupational therapists involved in home adaptations are faced with various challenges in meeting the needs and expectations of parents. This study aimed at exploring the experience of parents throughout the home adaptation process. We conducted an exploratory qualitative study, whereby we interviewed a sample of 11 parents of children with motor disabilities, using focus groups and individual interviews. Dominant themes that emerged were financial and organizational constraints, child's independence/self-esteem, respect of temporal aspects, safety, respect for parent's roles, need for information, and appearance of the home. Parents wish physical and occupational therapists to take on roles that extend beyond provision of home adaptation, such as those of consultants and advocates.

show abstract

Section: Discussionsupporting

confidence: 84%

Section: Discussionsupporting

confidence: 78%

Section: Introductionmentioning

confidence: 96%

Section: Introductionmentioning

confidence: 99%

See 2 more Smart Citations

Parental Experience of Home Adaptation for Children with Motor Disabilities

Roy

Rousseau

Allard

et al. 2008

Physical & Occupational Therapy In Pediatrics

View full text Add to dashboard Cite

show abstract

“…The study of Prudente et al, in which following a 10-month rehabilitation program, the motor function of the children with cerebral palsy and the life quality of the mothers were investigated, they found an improvement in the coarse motor functions in children following rehabilitation and improvement in only body pain among the lower domains of life quality of the mothers. [13] In the study of Duger et al, [14] which was performed on mothers who had children with muscular dystrophy, they found a correlation between back pain and daily life activities of the children. The current study also supports the finding that as the functional dependency increases, the complaint of pain also increases in this patient group.…”

Section: Discussionmentioning

confidence: 99%

Musculoskeletal system pain and related factors in mothers of children with cerebral palsy

Terzi¹

2015

Agri

View full text Add to dashboard Cite

SummaryObjectives: The aim of the present study was to identify prevalence of musculoskeletal system diseases and related factors among mothers of children with cerebral palsy. Methods: Eighty-five mothers of children with cerebral palsy were included as the treatment group, and 42 mothers of healthy children were included as the control group. Sociodemographic characteristics of all subjects were recorded. Musculoskeletal system pain was evaluated by the standardized Nordic Musculoskeletal Questionnaire, and level of depression was evaluated according to Beck's Depression Scale. Results: Musculoskeletal system pain and depression scores of the treatment group were significantly higher than those of the control group. Most frequently reported by mothers in the treatment group was low back pain (44.7%). In multiple regression analysis, number of children, age, and functional level of the child with cerebral palsy, as well as depression level of the mother were identified as independent risk factors for musculoskeletal system pain. Conclusion: Mothers of children with cerebral palsy are at higher risk for musculoskeletal system pain and depression. Prevalence of musculoskeletal system pain in these mothers, especially those with older children who have lower functional statuses, should be kept in mind.Keywords: Cerebral palsy; children; mothers; pain. Özet amaç:Amacımız serebral palsili çocuğa sahip olan annelerde görülen musküloiskeletal sistem ağrıları ve bunlarla ilişkili faktörlerin belirlenebilmesidir. Gereç ve Yöntem: Çalışmamıza serebral palsili çocuğa sahip 85 kadın ile, kontrol grubu sağlıklı çocuğa sahip 42 kadın dahil edilmiştir. Tüm annelerin sosyodemografik özellikleri kaydedilmiştir. Kas iskelet sistem ağrıları standardize edilmiş İskandinav Kas-İskelet Sistemi Anketi ile, depresyon düzeyleri Beck depresyon skalasına göre değerlendirilmiştir. Bulgular: Serebral palsili çocuğa sahip annelerde kas iskelet sistem ağrıları ve depresyon skorları, kontrol grubuna göre istatistiksel olarak anlamlı oranda yüksek bulunmuştur. Serebral palsili çocuğa sahip annelerde en sık görülen ağrı bel ağrısıydı (%44.7). Yapılan multipl regresyon analizinde serebral palsili çocuğa sahip annelerde kas iskelet sistemi ağrılarında; çocuk sayısı, serebral palsili çocuğun yaşı, çocuğun fonksiyonel düzeyi ve anne depresyon düzeyi bağımsız risk faktörleri olarak bulunmuştur. Sonuç: Serebral palsili çocuğa sahip anneler sağlıklı çocuklara sahip annelere göre kas iskelet sistem ağrıları ve depresif bulgular açısından risk altındadırlar. Özellikle fonksiyonel düzeyi kötü, yaşca büyük serebral palsili çocuğa sahip annelerde kas iskelet sistemine ait ağrılarının daha sık gözlendiği unutulmamalıdır.

show abstract

Les aidants familiaux des personnes myopathes : liaisons entre charge de soins, qualité de vie et santé mentale

Boyer

Novella

Coulon³

et al. 2006

Annales de Réadaptation et de Médecine Physique

View full text Add to dashboard Cite

The environmental barriers of children with Muscular Dystrophies and its effect on mother's low back pain

Abstract: The protective back health programmes and home arrangements that are suitable for disabled children must be added to the neuromuscular rehabilitation programmes.

Cited by 21 publications

References 17 publications

Parental Experience of Home Adaptation for Children with Motor Disabilities

Parental Experience of Home Adaptation for Children with Motor Disabilities

Musculoskeletal system pain and related factors in mothers of children with cerebral palsy

Les aidants familiaux des personnes myopathes : liaisons entre charge de soins, qualité de vie et santé mentale

Contact Info

Product

Resources

About