The emerging burden of hospital admissions of adults with congenital heart disease

Verheugt, Carianne L.; Uiterwaal, Cuno S.P.M.; Velde, Enno T. van der; Meijboom, Folkert J.; Pieper, Petronella G.; Sieswerda, Gertjan T.; Plokker, H. W. M.; Grobbee, Diederick E.; Mulder, Barbara J.M.

doi:10.1136/hrt.2009.185595

Cited by 155 publications

(66 citation statements)

References 22 publications

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“…4,23,29 Young adults with CHD, on the other hand, have high health care utilization, which increases with age. 38 However, CHD is much more heterogeneous, and encompasses Ͼ100 separate conditions that require specialized medical, surgical, and imaging equipment and personnel. 12 Recent studies of the prevalence of CHD have shown that the numbers of children and adults with complex CHD is roughly equal.…”

Section: Discussionmentioning

confidence: 99%

Adults With Chronic Health Conditions Originating in Childhood: Inpatient Experience in Children's Hospitals

et al. 2011

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WHAT'S KNOWN ON THIS SUBJECT:Health care innovations have improved survival in children with conditions previously fatal in childhood. Implications for specific diseases have been reported, but little information is available on disease comparisons or population increases in adult survivors of childhood illness. WHAT THIS STUDY ADDS:In this study of adults with chronic childhood diseases treated at 30 children's hospitals over a 10-year period, 6 conditions were compared and patient population growth was projected. The disparity between diagnoses suggests the existence of systemic barriers to the transition of these patients to adult health care providers. abstract OBJECTIVE: To describe the rate of increase of the population of adults seeking care as inpatients in children's hospitals over time. PATIENTS AND METHODS:We analyzed data from January 1, 1999, to December 31, 2008, from patients hospitalized at 30 academic children's hospitals, including growth rates according to age group (pediatric: aged Ͻ18 years; transitional: aged 18 -21 years; or adult: aged Ͼ21 years) and disease. RESULTS:There were 3 343 194 hospital discharges for 2 143 696 patients. Transitional patients represented 2.0%, and adults represented 0.8%, totaling 59 974 patients older than 18 years. The number of unique patients, admissions, patient-days, and charges increased in all age groups over the study period and are projected to continue to increase. Resource use was disproportionately higher in the older ages. The growth of transitional patients exceeded that of others, with 6.9% average annual increase in discharges, 7.6% in patient-days, and 15% in charges. Chronic conditions occurred in 87% of adults compared with 48% of pediatric patients. Compared with pediatric patients, the rates of increase of inpatient-days increased significantly for transitional age patients with cystic fibrosis, malignant neoplasms, and epilepsy, and for adults with cerebral palsy. Annual growth rates of charges increased for transitional and adult patients for all diagnoses except cystic fibrosis and sickle cell disease. CONCLUSIONS:The population of adults with diseases originating in childhood who are hospitalized at children's hospitals is increasing, with varying disease-specific changes over time. Our findings underscore the need for proactive identification of strategies to care for adult survivors of pediatric diseases. Pediatrics 2011;128:5-13

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Section: Discussionmentioning

confidence: 99%

Adults With Chronic Health Conditions Originating in Childhood: Inpatient Experience in Children's Hospitals

et al. 2011

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“…HCM is increasingly diagnosed in women of childbearing age due to more widespread use of echocardiography and familial screening programs. The majority of young women with heart disease, including HCM, wish to consider pregnancy and therefore obstetric admission is a common cause for hospitalisation in this patient population [1,2]. However, to date pregnancy outcome data for these patients are scarce.…”

Section: Introductionmentioning

confidence: 99%

Pregnancy in women with hypertrophic cardiomyopathy

Pieper

Walker

2012

Neth Heart J

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Hypertrophic cardiomyopathy (HCM) is increasingly being diagnosed in pregnant women. Women with HCM generally tolerate pregnancy well. The risk is however higher in women who are symptomatic before pregnancy or in those with severe left ventricular outflow tract obstruction. The incidence of arrhythmias does not appear to be increased during pregnancy and maternal mortality is low. Prior to conception, women with HCM should have a risk assessment as well as genetic counselling. During pregnancy beta-blockers should be continued and the judicious use of diuretics may be required to treat symptoms of dyspnoea. A vaginal delivery with regional anaesthesia is usually appropriate. Women should be managed by a specialist multidisciplinary team.

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“…The emerging burden of hospital admissions of adults with congenital heart disease was described using a Dutch national registry. 69 During 28,990 patient-years, 2908 patients (50%) were admitted to hospital. Median age at admission was 39 years (range 18-86).…”

Section: Adult Congenital Heart Diseasementioning

confidence: 99%

Almanac 2012: Congenital heart disease. The national society journals present selected research that has driven recent advances in clinical cardiology

Burch

Dedieu

2013

Revista Portuguesa de Cardiologia

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The emerging burden of hospital admissions of adults with congenital heart disease

Cited by 155 publications

References 22 publications

Adults With Chronic Health Conditions Originating in Childhood: Inpatient Experience in Children's Hospitals

Adults With Chronic Health Conditions Originating in Childhood: Inpatient Experience in Children's Hospitals

Pregnancy in women with hypertrophic cardiomyopathy

Almanac 2012: Congenital heart disease. The national society journals present selected research that has driven recent advances in clinical cardiology

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