The DISABKIDS generic quality of life instrument showed cross-cultural validity

Applying a developmental approach to quality of life assessment in children and adolescents with psychological disorders: challenges and guidelines

“…Although studies generally endorse the idea that any school-aged child can self-report his or her health [101] and despite evidence of reliable QL self-reports from children five years and older [102], in the context of the present review, it is suggested that school-aged children and adolescents with mental disorders can be clustered within the age groups of 8-12 years and 13-18 years old, respectively, as a harmonized guideline for research. This guideline is in agreement with the methodological options of previous world-renowned pediatric QL projects, such as KIDSCREEN [103], PedsQL [94] and DISABKIDS [97].…”

“…Given that a number of QL instruments with sound psychometric properties have been developed over recent years and are now available in a variety of languages, it is no longer acceptable to utilize adult QL measures, such as the Medical Outcomes Study (MOS)-SF-36 or the EuroQoL-5D, to conduct these assessments in pediatric populations. The PedsQL [94], KIDSCREEN [95], and KINDL questionnaires [96] are widespread measures that, in addition to their well-established developmental adequacy and sound psychometric properties, may facilitate cross-cultural pediatric QL studies for pediatric patients with chronic physical conditions [97], which are lacking for pedopsychiatric patients. Nevertheless, it is interesting that in a 1993 paper, the WHO stated that children's QL instruments should "be age-related or at least developmentally appropriate" (p. 3), thus revealing the subtlety of a distinction between age group specificities from common QL markers across childhood and adolescence.…”

Examining a developmental approach to health-related quality of life assessment: Psychometric analysis of DISABKIDS generic module in a Portuguese sample

“…The fact that every facet's internal consistency was always higher than its correlation to the other facets suggests that facet scores depict distinct aspects of paediatric HRQL; however, the suggested factorial structure is to be tested in further studies since the ones 16 conducted so far reported inconsistent findings (Sandeberg, Johansson, Hagell, & Wettergren, 2010;Schmidt et al, 2006). Regarding convergent validity, the fact that moderate to strong associations were observed between generic QL and HRQL instruments underlines the pertinence of assuming those two concepts as complementary in their applications, but somehow distinct in nature (Wallander, Schmitt, & Koot, 2001).…”

Disease‐related differential item functioning in the work instability scale for rheumatoid arthritis: Converging results from three methods

“…Examples of popular DIF detection methods include the Mantel-Haenszel procedure (10), logistic regression (11) and, more recently, approaches based on item response theory (IRT) measurement frameworks. To date, most attention has been given to investigations of DIF associated with age (12,13), sex (12,14,15), language/translations (16 -18), or culture (12,19,20), but few studies have examined disease-related DIF (21). Given the high relevance of work disability in both RA and OA and the potential of the RA-WIS for cross-disease applications, the current objective was to assess for disease-related DIF in this measure and its impact on the comparability of scores between RA and OA at the scale level.…”