The development and psychometric analysis of the short‐form pulmonary functional status scale (PFSS‐11©)

Chen, Yea Jyh; Narsavage, Georgia L.; Culp, Stacey; Weaver, Terri E.

doi:10.1002/nur.20403

Cited by 11 publications

(5 citation statements)

References 33 publications

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“…An intervention-specific outcome. three of these tools: the Manchester Respiratory Activities of Daily Living Questionnaire (MRADL) [54], the COPD Activity Rating Scale (CARS) [55], and the 11-item Pulmonary Functional Status Scale (PFSS-11) [56]. While all three tools were considered valid options, the performance characteristics of the MRADL questionnaire were more thoroughly validated compared to CARS, while it was also considered simpler to complete, compared to the PFSS-11 tool (appendix 6.9, supplementary material).…”

Section: Treatment Adherencementioning

confidence: 99%

ERS statement: a core outcome set for clinical trials evaluating the management of COPD exacerbations

et al. 2021

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Clinical trials evaluating the management of acute exacerbations of COPD assess heterogeneous outcomes, often omitting those that are clinically relevant or more important to patients. We have developed a core outcome set, a consensus-based minimum set of important outcomes that we recommend are evaluated in all future clinical trials on exacerbations management, to improve their quality and comparability. COPD exacerbations outcomes were identified through methodological systematic reviews and qualitative interviews with 86 patients from 11 countries globally. The most critical outcomes were prioritized for inclusion in the core outcome set through a two-round Delphi survey that was completed by 1,063 participants (256 patients, 488 health professionals and 319 clinical academics) from 88 countries in 5 continents. Two global, multi-stakeholder, virtual consensus meetings were conducted to (i) finalize the core outcome set and (ii) prioritize a single measurement instrument to be used for evaluating each of the prioritized outcomes. Consensus was informed by rigorous methodological systematic reviews. The views of patients with COPD were accounted for in all stages of the project. Survival, treatment success, breathlessness, quality of life, activities of daily living, need for higher level of care, arterial blood gases, disease progression, future exacerbations and hospital admissions, treatment safety and adherence were all included in the core outcome set. Focused methodological research was recommended to further validate and optimize some of the selected measurement instruments. The panel did not consider the prioritized set of outcomes and associated measurement instruments burdensome for patients and health professionals to use.

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Section: Treatment Adherencementioning

confidence: 99%

ERS statement: a core outcome set for clinical trials evaluating the management of COPD exacerbations

et al. 2021

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“…The full list of assessment can be accessed in online appendix Table 1, http://links.lww.com/ COPM/A23. Those questionnaires of which sufficient quality data were available and needed less than 10 min to complete were scored (Table 1) [15][16][17][18][19][20][21][22][23][24][25][26][27][28][29][30].…”

Section: Resultsmentioning

confidence: 99%

Assessing patient-reported outcomes in asthma and COPD patients

Kocks

Seys

Duin

et al. 2018

Current Opinion in Pulmonary Medicine

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On the basis of ample evidence, the COPD assessment test and the clinical COPD questionnaire for COPD and asthma control questionnaire and the asthma control test for asthma can be recommended for use in both primary care and other clinical settings. A simple guide figured as smiley faces has been designed to assist physicians to easily select the appropriate measure. With the current direction of thinking into treatable traits, targeted measures that evaluate the upper airways like the control of allergic rhinitis and asthma test may also be more used in the future.

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“…The telemonitor was easy to use, with step-by-step directions provided in a friendly voice-talk or text-guided communication format; its simple manual operation used push-button data entry (YES/NO buttons) for patient responses to questions about symptom changes throughout the monitoring process. Symptom questions were selected from the telemonitor database on the basis of clinical observations of symptoms seen in patients with lung cancer using the short-form Pulmonary Functional Status Scale as a guide to changes that would indicate risk for decline in function (Chen, Narsavage, Culp, & Weaver, 2010). Figure 1 indicates the physiologic parameters and symptoms assessed via the telemonitors.…”

Section: Methodsmentioning

confidence: 99%

Feasibility Study: Home Telemonitoring for Patients With Lung Cancer in a Mountainous Rural Area

Petitte¹,

Narsavage²,

Chen³

et al. 2014

Oncology Nursing Forum

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Purpose/Objectives To explore the feasibility of rural home telemonitoring for patients with lung cancer. Design Exploratory, descriptive, observational. Setting Patient homes within a 75-mile radius of the study hospital in West Virginia. Sample 10 patients hospitalized with lung cancer as a primary or secondary-related diagnosis. Methods Data included referral and demographics, chart reviews, and clinical data collected using a HomMed telemonitor. Five patients received usual care after discharge; five had telemonitors set up at home for 14 days with daily phone calls for nurse coaching; mid- and end-study data were collected by phone and in homes through two months. Main Research Variables Enrollment and retention characteristics, physiologic (e.g., temperature, pulse, blood pressure, weight, O2 saturation) and 10 symptom datapoints, patient and family telemonitor satisfaction. Findings Of 45 referred patients, only 10 consented; 1 of 5 usual care and 3 of 5 monitored patients completed the entire study. Telemonitored data transmission was feasible in rural areas with high satisfaction; symptom data and physiologic data were inconsistent but characteristic of lung cancer. Conclusions Challenges included environment, culture, technology, and overall enrollment and retention. Physiologic and symptom changes were important data for nurse coaching on risks, symptom management, and clinician contact. Implications for Nursing Enrollment and retention in cancer research warrants additional study. Daily monitoring is feasible and important in risk assessment, but length of time to monitor signs and symptoms, which changed rapidly, is unclear. Symptom changes were useful as proxy indicators for physiologic changes, so risk outcomes may be assessable by phone for patient self-management coaching by nurses.

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The development and psychometric analysis of the short‐form pulmonary functional status scale (PFSS‐11©)

Cited by 11 publications

References 33 publications

ERS statement: a core outcome set for clinical trials evaluating the management of COPD exacerbations

ERS statement: a core outcome set for clinical trials evaluating the management of COPD exacerbations

Assessing patient-reported outcomes in asthma and COPD patients

Feasibility Study: Home Telemonitoring for Patients With Lung Cancer in a Mountainous Rural Area

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