‘The care that you give to yourself’: A qualitative study exploring patients' perceptions of self-care

Hughes, John; Sharma, Raj Kumar; Brough, Nicola; Majumdar, Anne; Fisher, Peter

doi:10.1016/j.eujim.2020.101246

Cited by 7 publications

(5 citation statements)

References 7 publications

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“…Consistent with the findings from the West [17,61], this study shows that self-care efficacy is negatively related to Chinese students' experience of negative emotions, including depression, anxiety, and stress, and is positively related to mental well-being in the face of relationship-related and schoolwork-related stressors. It also shows the role of age, gender, and parent education in managing such campus stressors.…”

Section: Discussionsupporting

confidence: 88%

Making “Joy Pie” to Stay Joyful: Self-Care Interventions Alleviate College Students’ Mental Health Challenges

Zhong

Xie

2023

IJERPH

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As more college students are facing mental health challenges, it is imperative to explore innovative ways of improving their mental health, including developing self-care interventions that help mitigate their stressors. Based on the Response Styles Theory and self-care conceptions, this study creates the “Joy Pie” project that consists of five self-care strategies, aiming to regulate negative emotions and increase self-care efficacy. Using an experimental design and two-wave data collected from a representative sample of Beijing college students (n1 = 316, n2 = 127), this study assesses the effects of the five proposed interventions on the students’ self-care efficacy and mental health management. The results show that self-care efficacy helped improve mental health through emotion regulation, which is mediated by age, gender, and family income. The promising results support the effectiveness of the “Joy Pie” interventions in strengthening self-care efficacy and improving mental health. This study offers insights into building back better mental health security among college students at this critical time when the world is recovering from the COVID-19 pandemic.

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Section: Discussionsupporting

confidence: 88%

Making “Joy Pie” to Stay Joyful: Self-Care Interventions Alleviate College Students’ Mental Health Challenges

Zhong

Xie

2023

IJERPH

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“…Similarly, a former study reported that patients with chronic conditions used psychological interventions such as mindfulness, cognitive behavioral therapy, tai chi exercise, and yoga for coping with uncertainty. [ 37 ] Patients relied on their abilities and values by positive thinking and focusing on their possessions; the use of this technique increased self-confidence and controlled the tension created to a great extent. [ 38 ]…”

Section: Discussionmentioning

confidence: 99%

“…[ 39 ] Cognitive and behavioral stress management techniques are effective in improving physical and mental functioning among patients. [ 37 ] Mindfulness-based metacognitive skills may improve depression, anxiety, stress, and sense of well-being in patients with SLE. [ 40 ] Therefore, healthcare providers need to educate their patients about these techniques in order to enable them to better cope with uncertainty.…”

Section: Discussionmentioning

confidence: 99%

Uncertainty and its related coping strategies in systemic lupus erythematosus. Life in the fog

Dianati¹,

Mazhariazad²,

Taghadosi³

et al. 2023

Journal of Education and Health Promotion

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BACKGROUND: One of the most prevalent problems of patients with systemic lupus erythematosus (SLE) is the uncertainty over an indefinite future. Uncertainty has significant effects on quality of life. The aim of this study was to explore uncertainty and personal strategies to cope with it among patients with SLE. MATERIALS AND METHODS: This qualitative study was conducted in 2020–2021 using conventional content analysis. Participants were 21 patients with SLE who were purposefully selected from rheumatology clinics in Kashan, Kerman, and Bandar Abbass in Iran. Data collection was performed using face-to-face, in-depth, semi-structured interviews and was continued up to data saturation. Data were analyzed concurrently with data collection through conventional content analysis approach proposed by Graneheim and Lundman. RESULTS: Two main themes, namely, “life in the fog” and “attempt to find peace” emerged from patients’ experiences of illness uncertainty of SLE. Life in the fog included three main categories of “perception of threat to health”, “challenge of doubt and certainty,” and “indefinite future.” Attempt to find peace included three main categories of “spirituality,” “reflection,” and “attempt to acquire SLE-related knowledge. CONCLUSIONS: Uncertainty is a major psychological stress for patients with SLE. Healthcare providers should therefore consider the challenges and concerns faced by patients and, through utilizing appropriate training and communicational practices, plan interventions and strategies to empower patients for coping with uncertainty.

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“…Furthermore, it has been shown that patients understand self-care in different ways (Hughes et al, 2020). This varying understanding should be met by healthcare professionals.…”

Section: The Role and Presence Of Self-carementioning

confidence: 99%

“…Self-care must be done of one's own free will. Patients have previously expressed that they have felt forced to perform self-care and described being informed in a threatening way, resulting in non-adherence (Hughes et al, 2020).…”

Section: The Role and Presence Of Self-carementioning

confidence: 99%

Living with a venous leg ulcer: Lived experiences and the presence of self-care in daily life

Rosenburg

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[en] Aim: The overall aim of this thesis was to describe the lived experiences of patients with hard-to-heal venous leg ulcers before and after healing, as well as the understanding of the role and presence of self-care activities in ulcer management. Methods: The thesis is based on four studies, with differing designs. In Studies I and II, a phenomenological approach was used. To describe lived experiences of undergoing ulcer management, 16 persons were interviewed (I), and to describe lived experiences of daily life after healing,15 persons were interviewed (II). Study III was a registry-based, quantitative study. In total, data from 699 patients with venous leg ulcers(VLUs) were analyzed. Logistic regressions were performed to describe associations between advice given on self-care and its impact on ulcer healing. Study IV, which focused on patient experiences of the feasibility of an intervention for self-care, was based on eleven interviews with six patients with VLUs. The data from the interviews underwent qualitative content analysis. Results: Ulcer management aims at ulcer healing. In the protracted process, patients often experience hopelessness. When healing is slow, patients doubt the professionals’ knowledge. A patient’s trust in professionals and the entire healthcare system may erode if treatment and information vary between different professionals (Study I). Study II revealed that daily life after healing was still strongly affected by the ulcer. Memories from a lost period in life were ever-present. Life after healing was changed – for some, life was not very eventful. The patients’ own knowledge was often limited, and there was a struggle to do what was best for the own body to prevent a new ulcer. Study III revealed that advice on nutrition and physical activity had no impact on healing time. Only 44% of the sample were advised on both nutrition and physical activity. It was common to have an ulcer for a long time before seeking help; about half of the sample had an ulcer for >84 days before registration. Other findings were that the median age among the 699 patients was 77 years, the majority were female, and comorbidity was common. The intervention tested in Study IV offered welcomed information. However, even among those experiencing some sense of recognition, the link to their own situation and life was unclear. The technical solution with videos on a flash drive was difficult for most people to use. The importance of close cooperation with professionals was highlighted. Conclusion: Venous leg ulcers have a profound impact on patients and their life situations. Ulcer management can, in different ways, impose suffering on patients. Not being listened to or seen as a person is anexperience that leaves its marks on a patient. When healing is slow, and someone has to be blamed, relationships with professionals are damaged. The role of self-care is unclear for most patients, which makes self-care harder. Those who tried a video-based intervention for self-care showed difficulties in relating it to their own life. Enabling a caring relationship can enhance patients’ understanding of information and advice. Patients must be invited to share their own experiences, to create a foundation for self-care. The provision of advice alone is not the solution to the issues related to self-care.

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‘The care that you give to yourself’: A qualitative study exploring patients' perceptions of self-care

Cited by 7 publications

References 7 publications

Making “Joy Pie” to Stay Joyful: Self-Care Interventions Alleviate College Students’ Mental Health Challenges

Making “Joy Pie” to Stay Joyful: Self-Care Interventions Alleviate College Students’ Mental Health Challenges

Uncertainty and its related coping strategies in systemic lupus erythematosus. Life in the fog

Living with a venous leg ulcer: Lived experiences and the presence of self-care in daily life

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