Thai CLEFT-Q: Phase 1—A Pilot Study of Translation and Cultural Adaptation in Thailand

Chaisrisawadisuk, Sarut; Jaruniphakul, Kollawat; Tongchenchitt, Sigunya; Prathyajuta, Jirapat; Liadprathom, Kanokwan

doi:10.1177/10556656221132031

Cited by 4 publications

(4 citation statements)

References 15 publications

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“…In our case, we used a text-based table with a common set of normative values to visualize results regardless of cleft type, despite prior development of more refined methods for their display. 20 Finally, this study was implemented at an urban, tertiary care center with a large multidisciplinary cleft and craniofacial team, relying on collaborators from our clinical informatics team to guide and support PRO implementation. Assistance from an EHR analyst with the necessary training and permissions to configure EHR software was essential.…”

Section: Discussionmentioning

confidence: 99%

Integration of the Cleft-Q Patient Reported Outcome Tool into a Multidisciplinary Cleft and Craniofacial Clinic: A Proof of Concept

Salinero

Villavisanis

Cheung

et al. 2023

Plastic &Amp; Reconstructive Surgery

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atient-reported outcome (PRO) instruments elicit self-reported perceptions of patient health in a standardized format. 1 Clinical implementation of PROs has increased internationally in a variety of clinical settings, 2,3 with emerging evidence suggesting they increase patient satisfaction, 4 improve patient-provider communication, 5 and aid in the management of chronic conditions. 6 However, integrating PROs into clinical workflow remains a barrier to implementation, with common challenges that include patient completion, provider review of results, integration into clinical decision-making, and future accessibility of data. 7 CLEFT-QThe CLEFT-Q is a condition-specific, validated PRO with 12 modules that assesses the aesthetic, 8 functional, [9][10][11] and psychosocial domains commonly implicated in cleft lip or palate (CL/P), including Summary: Implementation of patient-reported outcome (PRO) tools has increased internationally in a variety of clinical settings, with emerging evidence suggesting benefits for patient satisfaction, improved patient-provider communication, and management of chronic conditions. However, integrating PROs into clinical workflow remains a barrier to implementation, with common challenges including patient completion, provider review of results, and future accessibility of data. Cleft lip and/or palate presents with a variety of aesthetic, functional, and psychosocial sequelae optimally managed by a multidisciplinary team, and the CLEFT-Q is a validated 12-module PRO that captures patient perception in these domains. Given the emerging proven benefits of using PROs in a clinical setting, the authors integrated the CLEFT-Q PRO at a multidisciplinary cleft and craniofacial clinic at a large, urban, tertiary care center. The authors collaborated with their institution's electronic health record clinical informatics team to automatically identify eligible cleft lip and/or palate patients and generate the CLEFT-Q PRO before weekly multidisciplinary cleft and craniofacial clinic days. Patient results were automatically scored, compared with agebased normative data, and populated into the electronic health record patient note. CLEFT-Q results were viewed by clinicians during patient visits to initiate module-specific discussion in relation to patient age-based normative results. Patient-specific CLEFT-Q data were also discussed during multidisciplinary cleft and craniofacial team discussions to aid in clinical decision-making. This experience may have applicability to other PRO tools in plastic surgery and other medical specialties where integrating PROs may yield superior patient experience and outcomes.

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Section: Discussionmentioning

confidence: 99%

Integration of the Cleft-Q Patient Reported Outcome Tool into a Multidisciplinary Cleft and Craniofacial Clinic: A Proof of Concept

Salinero

Villavisanis

Cheung

et al. 2023

Plastic &Amp; Reconstructive Surgery

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“…CLEFT-Q continues to undergo translation and validation to other languages worldwide [63][64][65][66]. Multiple studies have demonstrated the validity and utility of CLEFT-Q [67] and the ICHOM standard set to the extent that, at this point, research is moving beyond content validity and focusing on the feasibility of implementation and verifying scales for their utility in clinically significant decision making.…”

Section: Outcome Measurementsmentioning

confidence: 99%

“…Institutional support and financial resources are vital to effective adoption and implementation, which can be a Outcomes Measurement (ICHOM) has also produced a standard set of standardized outcome measures [62] that is also commonly used by cleft teams for the comprehensive appraisal of cleft care (see Figure 2). CLEFT-Q continues to undergo translation and validation to other languages worldwide [63][64][65][66]. Multiple studies have demonstrated the validity and utility of CLEFT-Q [67] and the ICHOM standard set to the extent that, at this point, research is moving beyond content validity and focusing on the feasibility of implementation and verifying scales for their utility in clinically significant decision making.…”

Section: Outcome Measurementsmentioning

confidence: 99%

Advances in Cleft Lip and Palate Surgery

Aycart,

Caterson

2023

Medicina

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Cleft lip with or without cleft palate is one of the most common congenital malformations, with an average prevalence of 1 in 1000 live births. Cleft lip and/or palate is incredibly phenotypically diverse, with constant advancements and refinements in how we care for patients. This article presents an in-depth review of the latest advances and current evidence in cleft lip and palate surgery. This includes presurgical infant orthopedics, perioperative practice patterns including use of enhanced recovery after surgery (ERAS) protocols, patient-reported outcome measures, and the latest adjuncts in cheiloplasty and palatoplasty.

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“…This instrument represents a significant advancement in the field of cleft care, providing a comprehensive and validated tool to assess a wide range of outcomes relevant to patients with CLP. Its development involved a significant international effort, encompassing psychometric analyses and the establishment of normative values based on a large sample of children and young adults from various countries [7,9]. This global perspective ensures the applicability of the CLEFT-Q in different cultural and healthcare contexts, making it an invaluable instrument for clinicians and researchers.…”

Section: Introductionmentioning

confidence: 99%

Impact of surgical repair on the patients' quality of life with cleft lip and palate in the DRC: A longitudinal study using the CLEFT-Q scale

Kabuyaya,

Mukuku,

Onalongombe

et al. 2024

Adv. Health Behav.

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Introduction: Cleft lip and/or palate (CLP) are congenital anomalies that can have profound impacts on individuals’ lives, physically, emotionally and socially. In this context, patients’ quality of life (QoL) is of paramount importance to evaluate the effectiveness of surgical interventions and improve patient-centered care. The objective of this study was to evaluate the QoL of patients with CLP in the Democratic Republic of the Congo (DRC) before and after surgical repair, using the CLEFT-Q scale as a standardized measurement tool.Methods: This longitudinal study was conducted between January and April 2024, involving 43 patients aged 8 to 29 years with CLP. The French version of the CLEFT-Q scale was utilized to evaluate various aspects of QoL both pre- and post-surgical intervention.Results: the study revealed a significant enhancement in all facets of QoL assessed by the CLEFT-Q following surgical repair. Mean scores exhibited a statistically notable increase across all scales post-intervention. Furthermore, noticeable variations were noted among facial cleft types, indicating varying effects on QoL based on the particular cleft type.Conclusion: This study underscores the significance of surgical repair in enhancing the QoL of individuals with CLP in the DRC. It also emphasizes the necessity of a personalized approach considering the distinct type of facial cleft to maximize treatment outcomes.

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Thai CLEFT-Q: Phase 1—A Pilot Study of Translation and Cultural Adaptation in Thailand

Cited by 4 publications

References 15 publications

Integration of the Cleft-Q Patient Reported Outcome Tool into a Multidisciplinary Cleft and Craniofacial Clinic: A Proof of Concept

Integration of the Cleft-Q Patient Reported Outcome Tool into a Multidisciplinary Cleft and Craniofacial Clinic: A Proof of Concept

Advances in Cleft Lip and Palate Surgery

Impact of surgical repair on the patients' quality of life with cleft lip and palate in the DRC: A longitudinal study using the CLEFT-Q scale

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