Telephone interventions, delivered by healthcare professionals, for providing education and psychosocial support for informal caregivers of adults with diagnosed illnesses

Corry, Margarita; Neenan, Kathleen; Brabyn, Sally; Sheaf, Greg; Smith, Valerie

doi:10.1002/14651858.cd012533.pub2

Cited by 28 publications

(30 citation statements)

References 231 publications

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“…Telephone intervention enables healthcare professionals to verbally communicate remotely with caregivers. In specific, interventions using combined in-person tele-support technology have been previously designed and successfully implemented for caregivers of chronically ill elderly patients including PD which judged as acceptable, easy to learn and user-friendly by caregivers [53,54] .…”

Section: Discussionmentioning

confidence: 99%

Effectiveness of In-person Tele-support Management on Perceived Burden, Health-promoting Practices, and Sense of Coherence among Caregivers of Older Adults with Parkinson’s Disease

Khalil

Sorour

Shaala

et al. 2020

NILES journal for Geriatric and Gerontology

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Introduction:The number of older adults with Parkinson's disease (PD) in need for supportive care is on the rise all over the world and the Middle East region in specific. While there are spending efforts to expand formal long-term care services to respond to this growing demand, informal care forms the backbone of this disorder. Parkinson's disease is a complex degenerative disorder that leads to cognitive decline and restricted physical abilities, which require eventually a constant care. Caregiving responsibilities are frequently bestowed upon close family members who are often thrown into caring tasks without being prepared and mostly experience the challenges of informal caregiving in association with other life demands which all require a significant amount of energy, dedication, and time-commitment. These responsibilities often become overwhelming and can lead to substantial burden with experience of mental stress and physical exhaustion related to the caring role, which may not be addressed appropriately or therapeutically. The often rapidly deteriorating condition of this disease threatens health promoting activities and sense of coherence of PD family caregivers, as the duration of care is in most cases hardly foreseeable with a challenge of lacking information about the entitlements, benefits, and support services. Related to our study, the tele-support service comprised both virtual communication, practice, and information with face-to-face or in-person meetings with peers of caregivers and the researchers (gerontological nurses and geriatricians). Setting: Conducted in El-Hadara Orthopedic and Traumatology University Hospital, specifically neuropsychiatric outpatient clinic; affiliated to Alexandria University in Alexandria, Egypt. Subjects: 39 primary and secondary PD informal caregivers recruited after fulfilling the inclusion criteria Tools: The following 4 measures were applied: (1) Demographic, caregiving experience, and support needs of caregivers of PD Older Adults Structured Interview Schedule, (2) Zarit Caregiver Burden Interview Arabic Abridged version (ZCBI-A 12 items-short version), (3) Health-promoting lifestyle Profile II -52 items (HPLP-II scale), and (4) Antonovsky Sense of coherence scale-13 items (SOC-13). Results: Family caregivers scored significantly lower on all measures of health promotion and sense of coherence, and higher on burden which were the areas of significant improvement after the application of individualized-based one-to-one interview and telephone counseling combined with group-based videoconferencing in the intervention timeframes. Age, level of education, duration and number of hours spent in caregiving, and caregivers' category are significant predictor variables. Conclusion: In-person tele-support intervention holds considerable promise in addressing efficiently and effectively caregiving challenges and stressors, resources available, and the health-promoting concerns of PD family caregivers where and when assistance is needed. It also contributes to bridging t...

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Section: Discussionmentioning

confidence: 99%

Effectiveness of In-person Tele-support Management on Perceived Burden, Health-promoting Practices, and Sense of Coherence among Caregivers of Older Adults with Parkinson’s Disease

Khalil

Sorour

Shaala

et al. 2020

NILES journal for Geriatric and Gerontology

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“…Thus, an early decision was that the research intervention would be implemented via telephone sessions. Telephone delivery had been found successful in previous EOLPC studies (Corry et al, 2019; Forbes & Bryant, 2020) and is preferred by patients with advanced disease (Mosher et al, 2019; Piamjariyakul et al, 2013; Vitacca et al, 2019). All participants signed informed consent to participate.…”

Section: Methodsmentioning

confidence: 99%

Verifying intervention fidelity procedures for a palliative home care intervention with pilot study results

Piamjariyakul

Smothers

Young

et al. 2021

Research in Nursing & Health

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Fidelity (consistency of intervention implementation) is essential to rigorous research. Intervention fidelity maintains study internal validity, intervention reproducibility, and transparency in the research conduct. The purpose of this manuscript is to describe intervention fidelity strategies/procedures developed for a pilot study testing a new palliative care nursing intervention (FamPALcare) for families managing advanced lung disease. The procedures described herein are based on the fidelity best practices recommendations from the NIH Consortium. An evidence‐based checklist guided observational ratings of the fidelity procedures used and the intervention content implemented in each intervention session. Descriptive data on how participants understood (received), enacted, or used the intervention information were summarized. The fidelity checklist observational scores found ≥93% of the planned intervention content was implemented, and the fidelity strategies were adhered to consistently during each intervention session. The small variation (7%) in implementation was expected and related to participants' varying experiences, input, and/or questions. The helpfulness scale items include participants' ability to use home care resources, to anticipate and manage end‐of‐life symptoms, and to use Advance Directive forms. The high ratings (M = 4.4) on the 1–5 (very helpful) Likert Helpfulness Scale verified participants utilized the information from the intervention. Furthermore, there was an improvement in patients' breathlessness scores and completion of Advance Directive forms at 3 months after baseline. It is essential to plan intervention fidelity strategies to use throughout a study and to report fidelity results.

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“…Another systematic review of 21 trials found that telephone interventions providing support for caregivers may slightly reduce anxiety and improve preparedness to care, but did not significantly improve other caregiver outcomes. 16 None of the included trials in this review measured changes in HRQOL 16 and both reviews recommended further high-quality trials in caregiver populations. Recent qualitative research conducted with caregivers of older adults discharged from hospital indicated that negative impacts of caregiving at this time can stem from feelings of uncertainty exacerbated by gaps in formal support, the strain of balancing caregiving with other life demands and a sense of helplessness.…”

Section: Open Accessmentioning

confidence: 98%

“…[10][11][12][13] In addition to problems faced by caregivers in providing ongoing care, there is limited evidence about how to effectively support caregivers of older adults when they are discharged from hospital, including what interventions can sustain and improve caregivers' health and well-being. [14][15][16] Older adults discharged from hospital are at high risk of functional decline, unplanned hospital readmissions and injurious falls. [17][18][19] This transition can be particularly problematic for older adults who receive care support and their caregivers.…”

Section: Open Accessmentioning

confidence: 99%

Evaluating the provision of Further Enabling Care at Home (FECH+) for informal caregivers of older adults discharged home from hospital: protocol for a multicentre randomised controlled trial

et al. 2021

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IntroductionThere are personal and societal benefits from caregiving; however, caregiving can jeopardise caregivers’ health. The Further Enabling Care at Home (FECH+) programme provides structured nurse support, through telephone outreach, to informal caregivers of older adults following discharge from acute hospital care to home. The trial aims to evaluate the efficacy of the FECH+ programme on caregivers’ health-related quality of life (HRQOL) after care recipients’ hospital discharge.Methods and analysisA multisite, parallel-group, randomised controlled trial with blinded baseline and outcome assessment and intention-to-treat analysis, adhering to Consolidated Standards of Reporting Trials guidelines will be conducted. Participants (N=925 dyads) comprising informal home caregiver (18 years or older) and care recipient (70 years or older) will be recruited when the care recipient is discharged from hospital. Caregivers of patients discharged from wards in three hospitals in Australia (one in Western Australia and two in Queensland) are eligible for inclusion. Participants will be randomly assigned to one of the two groups. The intervention group receive the FECH+ programme, which provides structured support and problem-solving for the caregiver after the care recipient’s discharge, in addition to usual care. The control group receives usual care. The programme is delivered by a registered nurse and comprises six 30–45 min telephone support sessions over 6 months. The primary outcome is caregivers’ HRQOL measured using the Assessment of Quality of Life—eight dimensions. Secondary outcomes include caregiver preparedness, strain and distress and use of healthcare services. Changes in HRQOL between groups will be compared using a mixed regression model that accounts for the correlation between repeated measurements.Ethics and disseminationParticipants will provide written informed consent. Ethics approvals have been obtained from Sir Charles Gairdner and Osborne Park Health Care Group, Curtin University, Griffith University, Gold Coast Health Service and government health data linkage services. Findings will be disseminated through presentations, peer-reviewed journals and conferences.Trial registration numberACTRN12620000060943.

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Telephone interventions, delivered by healthcare professionals, for providing education and psychosocial support for informal caregivers of adults with diagnosed illnesses

Abstract: This is a repository copy of Telephone interventions, delivered by healthcare professionals, for providing education and psychosocial support for informal caregivers of adults with diagnosed illnesses.

Cited by 28 publications

References 231 publications

Effectiveness of In-person Tele-support Management on Perceived Burden, Health-promoting Practices, and Sense of Coherence among Caregivers of Older Adults with Parkinson’s Disease

Effectiveness of In-person Tele-support Management on Perceived Burden, Health-promoting Practices, and Sense of Coherence among Caregivers of Older Adults with Parkinson’s Disease

Verifying intervention fidelity procedures for a palliative home care intervention with pilot study results

Evaluating the provision of Further Enabling Care at Home (FECH+) for informal caregivers of older adults discharged home from hospital: protocol for a multicentre randomised controlled trial

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