Supporting young carers: a qualitative review of young carer services in Canada

Stamatopoulos, Vivian

doi:10.1080/02673843.2015.1061568

Cited by 28 publications

(33 citation statements)

References 14 publications

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“…As a result of the awareness raising and research results borne out of the contributions of these four countries, additional nations have begun acknowledging youth as both potential providers and receivers of care. The most advanced of the new countries is Canada, which can be seen holding a ''preliminary'' designation because of the operation of a handful of dedicated young carer programs that have assisted an estimated 1250 young carers since their inception in 2005 (Stamatopoulos 2015b). Germany holds a place somewhere between ''emerging'' and ''preliminary'' because of a small but developing research base and the existence of one official young carer project funded by the German Federal Ministry of Education and Research (Schlarmann et al 2011).…”

Section: International Young Carer Researchmentioning

confidence: 99%

Unacknowledged Caregivers: A Scoping Review of Research on Caregiving Youth in the United States

et al. 2015

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With over 43 million family caregivers living in the United States, families are the largest providers of informal care in this country. Despite the extensive caregiving literature about prevalence, characteristics of care providers and care recipients, risks to caregivers' health and well-being, economic costs, impact on personal and family well-being, evidence-based interventions, and model community-based programs and supports for adult caregivers, gaps exist, specifically relating to caregiving youth, i.e., children under the age of 18 years. With no previous comprehensive review to assess what is known about US youth caregivers, a scoping review, focusing on mapping the key concepts, including the main sources and types of evidence available, was undertaken. By drawing conclusions about the overall state of research activity and identifying research gaps and priorities in the existing literature, this study provides a baseline assessment of youth caregiver research published in peer-reviewed journals from 1996 to 2015. A total of 22 articles were included in the analysis. Beyond inconsistencies with naming and defining young/youth caregivers, the review found significant knowledge gaps in crucial areas including SES status of families who rely on caregiving youth, the role of race, ethnicity and culture, support across schools, communities and medical professions, and the lack of caregiving programs and polices inclusive of youth under 18. The results underscore the need for further inquiry, including longitudinal study, into the lives and experiences of caregiving youth, informing the development of youth caregiver focused supports and polices across the US.

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Section: International Young Carer Researchmentioning

confidence: 99%

Unacknowledged Caregivers: A Scoping Review of Research on Caregiving Youth in the United States

et al. 2015

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“…The second aspect of the findings, the need for individual developmental space, refers to individuals’ need for temporary respite from caring responsibilities and time to act as an individual person. Many studies have highlighted the importance of responding to these needs (Moore & McArthur, ; Nigel et al., ; Purcal, Hamilton, Thomson, & Cass, ; Stamatopoulos, ; Watson, ). However, it is often difficult for children to ensure their own developmental spaces.…”

Section: Discussionmentioning

confidence: 99%

“…The third aspect of the findings focuses on families’ cooperation with formal and informal support networks. This is a frequently discussed issue in research and policies related to young carers (Becker & Becker, ; Berggren & Hanson, ; McAndrew et al., ; Metzing & Schnepp, ; Moore & McArthur, ; Nichols et al., ; Stamatopoulos, ). This study suggests that cooperation with formal and informal networks is important.…”

Section: Discussionmentioning

confidence: 99%

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Being we and being me: Exploring the needs of Austrian families with caring children

Nagl‐Cupal

Hauprich

2018

Health Soc Care Community

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Children and adolescents with caring responsibilities are an uncontested reality in our society. Most are hidden from public view, and they perform a broad range of caring activities for chronically ill or disabled family members. The research literature has accumulated a comprehensive body of knowledge about young carers' personal needs. However, knowledge and understanding are limited regarding the needs of young carers' families. This knowledge can contribute to preventing children and adolescents from assuming inappropriate caring roles. A qualitative research approach was used to investigate the needs of young carers' families in terms of managing daily caring demands. Nine family interviews were conducted with 34 individuals including 15 young carers during spring/summer 2015 in eastern Austria. Open and axial coding procedures and constant comparison method were used to analyse the data. The findings revealed that young carers' families need to live in accordance with their inherent family logic. Family logic is generated and maintained via (i) family reciprocity that involves the natural help within the family, (ii) individual developmental space that allows family members to be perceived and act as individuals and (iii) network cooperation that offers formal and informal support and recognition from society in general. The findings contribute to understanding how families with caring children manage the caring demands of their everyday lives. The findings also indicate that formal support for families with young carers should consider the individuality of caring arrangements with respect to the holistic and personal needs and avoid stigmatising families that integrate children into caring.

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“…The movement of women into the workplace in the past decades has made it more challenging for families to care for their elders at home and has led to an increased reliance on younger caregivers. 3 In the context of limited resources in health care, supporting young carers is a strategic investment in the future health and well-being of a large group of Canadian youth.…”

mentioning

confidence: 99%