Supporting a Person With Personality Disorder: A Study of Carer Burden and Well-Being

Bailey, Rachel; Grenyer, Brin F. S.

doi:10.1521/pedi_2014_28_136

Cited by 79 publications

(112 citation statements)

References 30 publications

(39 reference statements)

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“…For instance, previous research has identified a conflict between involvement and independence for patients with BPD when reflecting on the relationship with their parents (Gunderson & Lyoo, ). The present findings also correspond to Hooley and Hoffman's suggestion that carers may ‘suffer along with the patient’ (1999, p. 1561) and previous findings of interpersonal strain when caring for a person with personality disorder (Bailey & Grenyer, ). The findings are also supported by previous qualitative research describing conflicting emotions of love and anger while caring for a daughter with BPD (Giffin, ).…”

Section: Discussionsupporting

confidence: 91%

The relationship between expressed emotion and wellbeing for families and carers of a relative with Borderline Personality Disorder

Bailey

Grenyer

2014

Personality & Mental Health

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Background: Previous research has found that family environments high in expressed emotion, in particular emotional overinvolvement, are beneficial to the clinical outcome of patients with Borderline Personality Disorder (BPD). Aim: This study aims to investigate the relationship between expressed emotion, carer burden and carer wellbeing. Method: A total of 280 carers of a relative with BPD were administered the McLean Screening Instrument for BPD -Carer Version, The Family Questionnaire, Burden Assessment Scale and Mental Health Inventory. Results: Carers reported family environments high in expressed emotion, particularly criticism (82.9% of carers) and emotional overinvolvement (69.6%). Elevated emotional overinvolvement was correlated with higher burden and mental health problems. Conclusions: Elevated criticism and emotional overinvolvement in family environments represent a dynamic involving high conflict, anxious concern, overprotection and emotional closeness. The findings suggest that carers may benefit from intervention and support options considering the challenged interpersonal dynamic, burden and impaired carer wellbeing reported in this study.

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Section: Discussionsupporting

confidence: 91%

The relationship between expressed emotion and wellbeing for families and carers of a relative with Borderline Personality Disorder

Bailey

Grenyer

2014

Personality & Mental Health

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“…Burden among families with a member with BPD has been reported to be even greater than that associated with other severe mental disorders [8, 9]. This also includes elevated objective and subjective burden, grief, impaired ‘empowerment’ (e.g., difficulties interacting with the mental health service system), and mental health problems, including depression and anxiety [8].…”

Section: Introductionmentioning

confidence: 99%

Evaluation of a psychoeducational group intervention for family and friends of youth with borderline personality disorder

Pearce

Jovev

Hulbert

et al. 2017

bord personal disord emot dysregul

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BackgroundDespite high levels of burden and distress among families with a member who has borderline personality disorder (BPD), only two BPD specific family psychoeducation groups have been empirically evaluated. Neither of these is designed specifically for the family and friends of young people who are presenting early in the course of BPD. This study aimed to evaluate Making Sense of Borderline Personality Disorder (MS-BPD), a three-session, developmentally tailored, manualised psychoeducational group for the family and friends of youth with BPD features.MethodsThe study employed a pre- and post-intervention, repeated measures design. Twenty-three participants completed self-report measures assessing for family burden, psychological distress, and knowledge about personality disorder. Demographic data were collected for the group participants and for their associated young person with BPD. Paired-samples t-tests were conducted to evaluate the effect of the MS-BPD intervention on participants’ burden, distress and personality disorder knowledge.ResultsAt the completion of session three (day 15), group participants reported significantly decreased subjective burden and increased personality disorder knowledge. Objective burden and distress remained unchanged.ConclusionsFamily and friends of young people with BPD features experienced subjective, but not objective, benefit from attending a brief group-based psychoeducation intervention. Longer follow-up is likely to be required to detect behavioural change. The current findings support proceeding to a randomised controlled trial of MS-BPD.

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“…For this study, an informal caregiver is someone who has regular interactions with the patient and performs tasks that promote the patient's well‐being, self‐care, autonomy, and quality of life (Bailey & Grenyer, ) but receives no financial compensation for this care. For participant recruitment, we contacted the primary caregivers in the Mental Health Service where their family member was being treated by mental health specialists.…”

Section: Methodsmentioning

confidence: 99%

“…Caring for a person diagnosed with a personality disorder is a great challenge for the family and influences the caregiver's physical and mental health (Bailey & Grenyer, ). Borderline personality disorder (BPD) affects from 1 to 5.9% of the general population (Lenzenweger, ).…”

Section: Introductionmentioning

confidence: 99%

“…Caregivers of people with BPD experience more mental health problems than the general population (Bailey & Grenyer, 2014), in terms of psychological stress (Scheirs & Bok, 2007), grief, burden, interpersonal strain (Giffin, 2008;Hoffman, Fruzzetti, & Buteau, 2007), impaired empowerment, depression, and anxiety (Bailey & Grenyer, 2013), as well as poor physical health and impaired social or marital relationships (Goodman et al, 2011). Moreover, studies with caregivers of people with BPD found that this population showed impaired well-being and experienced mental health problems similar to those of clinical samples diagnosed with anxiety, mood, and posttraumatic stress disorders (Bailey & Grenyer, 2014). However, research on validated measures to assess the consequences in caregivers of people diagnosed with BPD is scarce (Bailey & Grenyer, 2013).…”

mentioning

confidence: 99%

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Psychometric properties of the Spanish version of the involvement evaluation questionnaire in caregivers of patients with borderline personality disorders

Marco

Jorquera

Fernández

et al. 2019

Clin Psychology and Psychoth

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The involvement evaluation questionnaire (IEQ) was created to evaluate the caregiver's experience of burden and the consequences of providing care to people with psychotic disorders. To date, the IEQ has not been validated with caregivers of people diagnosed with borderline personality disorder (BPD). The main objective of the study was to confirm the psychometric properties and factorial structure of the Spanish version of the IEQ in 151 caregivers of people with BPD, with an average age of 54.52 (SD = 9.91). Two models were tested by means of confirmatory factor analysis, following the original factor structure. The Models 1 and 2 displayed adequate fit, with comparative fit index and Tucker‐Lewis index > 0.90 and root‐mean‐square root of approximation < 0.08; however, Model 2 was more parsimonious. The Cronbach's alphas are adequate, ranging from 0.70 to 0.85. The consequences of providing care to people with BPD had a low or moderate association with the Level of Expressed Emotion scores. IEQ scores of caregivers of people diagnosed with BPD with psychiatric comorbidity did not differ from those of caregivers of people diagnosed with BPD without psychiatric comorbidity. The IEQ has adequate psychometric properties and can be utilized to assess burden in caregivers of people with BPD.

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Supporting a Person With Personality Disorder: A Study of Carer Burden and Well-Being

Cited by 79 publications

References 30 publications

The relationship between expressed emotion and wellbeing for families and carers of a relative with Borderline Personality Disorder

The relationship between expressed emotion and wellbeing for families and carers of a relative with Borderline Personality Disorder

Evaluation of a psychoeducational group intervention for family and friends of youth with borderline personality disorder

Psychometric properties of the Spanish version of the involvement evaluation questionnaire in caregivers of patients with borderline personality disorders

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