Struggling and enduring with God, religious support, and recovery from severe mental illness

Webb, Marcia; Charbonneau, Anna M.; McCann, Russell A.; Gayle, Kristin R.

doi:10.1002/jclp.20838

Cited by 55 publications

(35 citation statements)

References 75 publications

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Section: Original Researchsupporting

confidence: 81%

“…Negative religious coping has been associated with poorer health outcomes in other studies (33)(34)(35). In our present study, we also found that religious coping styles that were more negative were associated with worse adherence (33)(34)(35). However, what was unexpected was that superadherent parents reported using negative religious coping more frequently than high-adherent parents did.…”

Section: Original Researchsupporting

confidence: 70%

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Adherence Determinants in Cystic Fibrosis: Cluster Analysis of Parental Psychosocial, Religious, and/or Spiritual Factors

et al. 2015

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Rationale: Cystic fibrosis is a progressive disease requiring a complex, time-consuming treatment regimen. Nonadherence may contribute to an acceleration of the disease process. Spirituality influences some parental healthcare behaviors and medical decision-making. Objectives:We hypothesized that parents of children with cystic fibrosis, when classified into groups based on adherence rates, would share certain psychosocial and religious and/or spiritual variables distinguishing them from other adherence groups.Methods: We conducted a multisite, prospective, observational study focused on parents of children younger than 13 years old at two cystic fibrosis center sites (Site 1, n = 83; Site 2, n = 59). Religious and/or spiritual constructs, depression, and marital adjustment were measured by using previously validated questionnaires. Determinants of adherence included parental attitude toward treatment, perceived behavioral norms, motivation, and self-efficacy. Adherence patterns were measured with the Daily Phone Diary, a validated instrument used to collect adherence data. Cluster analysis identified discrete adherence patterns, including parents' completion of more treatments than prescribed.Measurements and Main Results: For airway clearance therapy, four adherence groups were identified: median adherence rates of 23%, 52%, 77%, and 120%. These four groups differed significantly for parental depression, sanctification of their child's body, and self-efficacy. Three adherence groups were identified for nebulized medications: median adherence rates of 35%, 82%, and 130%. These three groups differed significantly for sanctification of their child's body and self-efficacy. Conclusions:Our results indicated that parents in each group shared psychosocial and religious and/or spiritual factors that differentiated them. Therefore, conversations about adherence likely should be tailored to baseline adherence patterns. Development of efficacious religious and/or spiritual interventions that promote adherence by caregivers of children with cystic fibrosis may be useful.

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Section: Original Researchsupporting

confidence: 81%

Section: Original Researchsupporting

confidence: 70%

Adherence Determinants in Cystic Fibrosis: Cluster Analysis of Parental Psychosocial, Religious, and/or Spiritual Factors

et al. 2015

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“…In particular, a number of studies look at the lived experience of involuntary hospitalizations during the acute phase of the disease (Williams, 2008;Wood & Pistrang, 2008). In contrast, a vast amount of literature explores solely the lived experience of the recovery process (Aston & Coffey, 2012;Dilks, Takser, & Wren, 2010;Jensen & Wadkins, 2007;Turton et al, 2011), or the coping mechanisms used to combat mental illness (Green, Hayes, Dickinson, Whittaker, & Gilheany, 2002;Webb, Charbonneau, McCann, & Gayle, 2011;Yangarber-Hicks, 2004), whilst others investigate the ambivalent relationship between medication and quality of life (Gale et al, 2012;Piat et al, 2009;Sajatovic & Jenkins, 2007). Furthermore, some other studies describe the relationship between mentally ill people and health care professionals (Borg & Krinstiansen, 2004;Cleary, Hunt, Horsfall, & Deacon, 2012;Gahnström-Strandqvist, Josephsson, & Tham, 2004;McCloughen, Gillies, & O'Brien, 2011;Schroeder, 2012).…”

Section: Introductionmentioning

confidence: 93%

“An Ongoing Struggle With the Self and Illness”: Α Meta-Synthesis of the Studies of the Lived Experience of Severe Mental Illness

Kaite

Karanikola

Merkouris

et al. 2015

Archives of Psychiatric Nursing

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“…In a study of 241 college undergraduates, spiritual struggle partially mediated the relationship between trauma and post-traumatic stress disorder symptoms (Wortmann, et al, 2011). Webb and colleagues reported that increased spiritual struggle predicted poorer recovery from mental diseases in a sample of 81 adults, and that this was mediated by religious support (Webb, Charbonneau, McCann, & Gayle, 2011). …”

Section: Association Of Spiritual Struggle With Healthmentioning

confidence: 99%

Testing the Validity of a Protocol to Screen for Spiritual Struggle among Parents of Children with Cystic Fibrosis

Grossoehme¹,

Fitchett²

2013

Research in the Social Scientific Study of Religion, Volume 24

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Spirituality is important to many Americans and is used to cope with adverse events. Some forms of spiritual coping are maladaptive or troubling, and are known as negative spiritual coping or spiritual struggle. These forms of spirituality are often associated with poorer physical and mental health outcomes. Thus, in clinical contexts there is a need to identify persons who may be experiencing spiritual struggle and, if indicated, offer spiritual care that may address that struggle. Twenty-two parents of children with cystic fibrosis (CF) completed semi-structured interviews and questionnaires exploring spirituality’s role in their child’s illness. Interviews included oral administration of a protocol to screen for spiritual struggle. The parents also completed the negative religious coping subscale of the Brief RCOPE, a commonly used measure of spiritual struggle. Descriptive statistics were obtained. The screening protocol identified 18% of the parents as potentially having spiritual struggle. Thirty-two percent had negative religious coping scores suggestive of spiritual struggle. Comparison of results with both measures found the screening protocol had good specificity (87%) but relatively low sensitivity (29%). Using either measure, indications of spiritual struggle were associated with higher levels of depressive symptoms. The screener’s administration was acceptable and feasible. The low sensitivity may be due in part to differences between the focus of the screener and that of the negative religious coping subscale, which focuses on struggle with the Divine. Further work is needed to establish the best approach to screening for spiritual struggle.

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Struggling and enduring with God, religious support, and recovery from severe mental illness

Abstract: Religious variables, including religious support and spiritual struggle, might affect recovery from severe mental illnesses.

Cited by 55 publications

References 75 publications

Adherence Determinants in Cystic Fibrosis: Cluster Analysis of Parental Psychosocial, Religious, and/or Spiritual Factors

Adherence Determinants in Cystic Fibrosis: Cluster Analysis of Parental Psychosocial, Religious, and/or Spiritual Factors

“An Ongoing Struggle With the Self and Illness”: Α Meta-Synthesis of the Studies of the Lived Experience of Severe Mental Illness

Testing the Validity of a Protocol to Screen for Spiritual Struggle among Parents of Children with Cystic Fibrosis

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