Stress, Overload and Quality of Life in Caregivers of Children With/Without Orofacial Cleft and Dysphagia

Bom, Gesiane Cristina; Prado, Priscila Capelato; Farinha, Francely Tineli; Manso, Maila Meryellen Ferreira Garcia; Dutka, Jeniffer de Cássia Rillo; Trettene, Armando dos Santos

doi:10.1590/1980-265x-tce-2020-0165

Cited by 9 publications

(8 citation statements)

References 29 publications

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“…A relevant information in the present study concerns the prevalence of unemployed mother caregivers, aged between 31 and 40 years. Other studies with caregivers of children and adolescents with health problems, such as cystic fibrosis, chronic diseases and dysphagia, found similar results [23][24][25][26] .…”

Section: Discussionsupporting

confidence: 62%

Influence of religiosity/spirituality on informal caregivers of children with leukemia

et al. 2022

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Faced with diagnosis and treatment of serious illness in children, including oncology, parents, especially mothers, tend to fully assume the demands of care and, consequently, must develop situational coping strategies. In this regard, this descriptive and cross-sectional study sought to identify the use of religious/spiritual coping by informal caregivers of children with acute lymphoid leukemia via the Brief Religious/Spiritual Coping (SRCOPE) scale. A total of 30 informal caregivers participated in the study, presenting high religious/spiritual coping (mean=3.90; SD=0.34) regarding positive methods (mean=3.67; SD=0.48). Finally, results show that mothers use religious/spiritual coping deal with the imposed demands for care, linked to the child’s health condition. This reinforces the possibility of using spirituality and or religiosity as indicators of physical and mental well-being, since the quality of care is closely related to the caregivers’ health.

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Section: Discussionsupporting

confidence: 62%

Influence of religiosity/spirituality on informal caregivers of children with leukemia

et al. 2022

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“… 27 As soon as the malformation is discovered, parents should be immediately referred to a multidisciplinary team for counseling and support, considering the repercussions on the quality of life of parents and family members. 28 , 29 …”

Section: Discussionmentioning

confidence: 99%

Prenatal diagnosis of orofacial clefts: unveiling the parents’ experience

Silva

Gifalli

Capone

et al. 2023

Rev. paul. pediatr.

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Objective: To understand the experience of parents regarding prenatal diagnosis of orofacial cleft in their children. Methods: Descriptive study with a qualitative approach, carried out in a Brazilian public tertiary hospital between January and March 2019. Parents who were accompanying their children during hospitalization for primary surgeries and who had received the diagnosis of malformation during pregnancy were included in this study. Data was collected through semi-structured interviews, which were audio-recorded and transcribed in full. To prepare the results, Content Analysis was used in the Thematic modality. Results: The sample had 17 participants: 16 mothers and one father. From the speeches, three categories were unveiled: dealing with the unknown, assimilating the diagnosis, and positive and negative implications of prenatal diagnosis. Conclusions: We learned how complex and conflicting it was for parents to receive the diagnosis of malformation in their children, and that family and professional support was essential to the process of assimilation and coping. The findings point to the need for planning and implementing interventions, protocols and/or public policies aimed at assisting these parents in this period.

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“…Um dado relevante do presente estudo relacionou-se à prevalência de cuidadoras mães, com idade entre 31 e 40 anos, sem vínculo empregatício. Resultado similar foi observado em outras pesquisas que incluíram cuidadores de crianças e adolescentes com problemas de saúde, como fibrose cística, doenças crônicas e disfagia [23][24][25][26] .…”

Section: Discussionunclassified

Influência da religiosidade/espiritualidade em cuidadores informais de crianças com leucemia

et al. 2022

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Resumo Perante diagnóstico e tratamento de doença grave em crianças, incluindo a oncológica, os pais, em especial as mães, tendem a assumir integralmente as demandas de cuidados, necessitando desenvolver estratégias de enfrentamento situacional. Nesse sentido, este estudo descritivo e transversal objetivou identificar o uso do coping religioso/espiritual em cuidadores informais de crianças com leucemia linfoide aguda mediante aplicação da escala de coping religioso/espiritual breve. Participaram 30 cuidadores informais, que apresentaram coping religioso/espiritual alto (média=3,90; Dp=0,34) na modalidade positiva (média=3,67; Dp=0,48). Por fim, identificou-se que as mães utilizam coping religioso/espiritual para lidar com a demanda de cuidados a elas imposta, vinculada à condição de saúde da criança. Com isso, reforça-se a possibilidade de utilizar a espiritualidade e/ou a religiosidade como indicadores de bem-estar físico e mental, visto que a qualidade dos cuidados prestados está intimamente relacionada à saúde de quem cuida.

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Stress, Overload and Quality of Life in Caregivers of Children With/Without Orofacial Cleft and Dysphagia

Cited by 9 publications

References 29 publications

Influence of religiosity/spirituality on informal caregivers of children with leukemia

Influence of religiosity/spirituality on informal caregivers of children with leukemia

Prenatal diagnosis of orofacial clefts: unveiling the parents’ experience

Influência da religiosidade/espiritualidade em cuidadores informais de crianças com leucemia

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